Artist, ACOR founder, Smart Patients co-founder. Longtime witness of the amazing power of networked patients, a radical social change facilitated by technology.

Miami, FL
Joined March 2008
Gilles Frydman retweeted
Hello Katherine Maher @krmaher, congratulations on joining the sinking ship @WebSummit. As the newly appointed CEO, tasked with ensuring the success of future events for your company (given that #Lisbon is now a dud thanks to @paddycosgrave), you have a unique opportunity to start fresh. We urge you to take immediate action by instructing Adam Condon to cease and desist from these pathetic DMCA claims or face immediate termination. His vindictive and inconsistent behavior is eroding any remaining shreds of credibility your company may have. You see Katherine, it's 2023, and it's quite astonishing that self-proclaimed social media experts like yourselves fail to comprehend the basic principles of free expression. Your feeble attempt to gag a video not only exposes staggering ignorance but also showcases the glaring hypocrisy that undermines the very foundation of your event. Time is of the essence. Act swiftly and decisively. Thanks #TBC
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Gilles Frydman retweeted
So the plot thickens! Yesterday night, Tel Aviv time, my video about WebSummit and the Oct 7th genocide in Israel was removed from Twitter. It wasn't only removed from my account (400,000 views), but also from @BillAckman's account (over 600,000 views), @HilzFuld's account (130,000 views), @JGreenblattADL, and multiple other accounts across Twitter. The claim, listen to this: copyrights infringement! This morning i got the official claim to my email. Do you know who's fighting to take down a video that went viral globally on every social platform? It's the General Council of @WebSummit, Adam Connon! The claim (attached): their official trailer "has been edited and repurposed to promote political agenda". Seriously, you can't make that shit up! A week before their "celebration of pluralism" in Lisbon, the company is chasing every URL of our video in an attempt to shut our mouth and censor a video that legitimately criticize a behaviour they already "apologized" for! The funny thing is we used less than 20 seconds from Web Summit's Official Trailer, in 6 different scenes, out of a 4:30mins video. The trailer is a promotional video that didn't change a thing to the real context of our story. You might have heard that @paddycosgrave resigned a the CEO of WebSummit (he's still the largest share holder). Paddy also published a post he titled as "a sincere apology". If that's the case, how come the company, which stated it'll make the right changes, is aggressively trying the take down our video from every social platform out there? What happened to it's "two sided liberalism" approach? What happened to free speech? I hearby publicly ask WebSummit's new CEO, Katherine Maher, to pull back from it's ridiculous copyright infringement claim! Let the video run its course, swallow the PR damage, and act like a true progressive organization! I invite every journalist that wants to cover the story to DM me. WebSummit's behaviour is a mix of cowardness and hypocrisy, and should be called out. Please share this tweet 🙏 *** The blocked video is attached in the following tweet as a great evidence of what WebSummit has become. #StandWithIsrael
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Tell me , in your history book, when did the colonizers become the "natives"? Hamas, in its 1988 covenant says that any land conquered by Muslims has to remain Muslim forever. They are no for liberation but for the Waqf everywhere.
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In a broken society the 2 extremes are, once again, at it with the Jews. This is the version of the trumpian side of the GOP. #FightAntisemitism (The top image is of the crematorium in Theresinstadt, an extermination camp specialized in exterminating Jewish children)
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Children with obstructive sleep apnea who don't outgrow it by adolescence have nearly 3 times the risk of high blood pressure as teens compared to those without the breathing issue, a new long-term study shows. heart.org/en/news/2021/05/21…
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You have sleep apnea and have specific concerns about #COVID19 and #sleepapnea? Please let @sleepapneaorg know what your concerns are at bit.ly/AWAKEcovid19. @sleepapneaorg will gather experts to answer your questions in a webcast.
That's patient-centered medicine in 2018! Paternalism, silo protection and profit-making at all costs is what it's all about. As usual. xitter.cf/sleepapneaorg/status/1…
truly patient centered professional organizations and society Not !!!!!!! #SLEEP2018 xitter.cf/nvhs0401/status/100333…
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Studies show that as many as 40% of all clinical trials don't meet participant enrollment goals. Our goal is to help get #OnePersonCloser to better medicine #4YourPatient
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Dear @Avianca you have misplaced ALL my luggage for now 3 days. Our 4 pieces of luggage, including the one piece with my life-saving medication, are nowhere to be found and no one is calling or even answering phones. Do you call yourself a proud, modern airline company?
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Donald Trump on CBS: "I think I am, actually humble. I think I'm much more humble than you would understand".
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Isn't #frozen about the dangers of trusting a fluffy haired charlatan out to take a kingdom away from a woman?
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My personal gift to NeoNazis: Medical records show Hitler had micropenis & 1 testicle jpost.com/Not-Just-News/Over…
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Replying to @ReginaHolliday
Thank you @ReginaHolliday! @rzeiger and @smart_patients team are doing great work to help finding appropriate trials for cancer patients
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Very sad of learning about Ellen Stovall passing. She was 1 of the greatest patient advocates I've met in my journey canceradvocacy.org/news/advo…
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Botkin: We've NEVER done informed consent well. Comprehension reqs far more than rewriting consents. Therapeutic misconception key. #UMNHSR