Building a safe space where #stroke and #braininjury survivors have a voice & can connect with people who understand. Help us – join our sustainability army 👇
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Joined March 2015
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Disrupt The Isolation Industry!
Join Our Sustainability Army 👉genyusnetwork.com/join-genyu…
📢 👉Don’t be part of the Isolation Industry!
Find out how you can create a better future for Stroke and Brain Injury Survivors!
Join our Sustainability Army here 👉genyusnetwork.com/join-genyu…
You’re a superstar, @lisakidd22 !
Wonderful round up of #stroke2023 privileged to have been a very small part of this…can’t wait to agitate and collaborate more in advocating for the power of lived experience @calebrixon @genyusnetwork great work from the team behind the conference!
🚨 Check Out the Latest Blog from our Founder Caleb Rixon 🚨
#STROKE2023 #LivedExperienceVisibility
💥STROKE 2023: Shaking Up Conventions! Lived Experience Revolution, Game-Changing Insights & Connections That Broke the Mould! 👉 calebrixon.com/post/stroke-2…
#STROKE2023 #LivedExperienceVisibility #ConferenceConnections #Empowerment @lisakidd22 @NatashaLannin @neurodana @AVERTtrial
genyus network retweeted
A week on from the UK Stroke Forum and still thinking about the fantastic Humanising Stroke presentation @genyusnetwork @calebrixon - stories not statistics - powerful stuff 😍
Hear hear, @SummerFoundtn!
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Boom, @UKStrokeForum 🖐️🎤!
Interactive session from @ShigginsC, @MadelineCruice and Dan Taylor from @TheStrokeAssoc about shaping the future of stroke research through survivor involvement, and how to encourage participation.
“Involvement is doing research with the public, rather than to.”
#UKSF22
genyus network retweeted
Had a great first day at @UKStrokeForum Lots of interesting presentations and discussions. #knowledgenotdata #UKSF22
Thank you for engaging, @Katie_Chadd! #Team
Great talk from Caleb, stroke survivor @genyusnetwork
Key points for clinicians:
- be mindful of terminology used, change it & change the rhetoric
- give HOPE
- prioritise addressing patient priorities (swallow versus speech)
#UKSF22
genyus network retweeted
What a fantastic talk by Caleb. Will definitely be recommending @genyusnetwork . Love the idea of disrupting loneliness the way air bnb has disrupted accommodation 😄👏💪
Caleb wants you to leave #UKSF22 with this thought, “understand the impact of your words. Create a SAFE space - specific, affirming, fun, engaging.”
genyus network retweeted
Yes! We presented our group’s tried & tested framework for just this yesterday at @ACRMconference
At all stages of the #RCT this is important #ACRM2022
@cdkempson @SophieAOKeefe @egee1 @calebrixon @DrSandyReeder @DrArwelWJones @AnneHol96238668 @narelle_cox
Hear hear, @princewilkins 👏
Our founder, @calebrixon, soon to be sharing our living experience WISDOM at @UKStrokeForum!
#traumasurvivors #storysharing #genyusnetwork
In this session you will be introduced to the power of stories and the need for life-world humanising approaches in Stroke care.
Caleb Rixon will kick things off and share his story about his experience of surviving a stroke at 24 - Connection: Stories not statistics @calebrixon
Shoutout to our #Friend, #Mentor & #ResearchDirector, @NatashaLannin for being recognised with the @SSA_Stroke Mentor Award.
Thank you for your leadership and partnership 👏
Thrilled to have been awarded the 2022 @SSA_Stroke Mentor Award.
Very appreciative to the amazing team who nominated me (❤️) and most grateful for all those I get to work with #strokerehab #alliedhealth #rehabilitation #clinicianscientists
👏 Awesome feature on improving pathways for #YoungStrokeSurvivors by @apaphysio!
🎤 Sharing expert voices @AVERTtrial, @GavinWPhysio, @NatFiniPhysio and our founder (#YSS) @calebrixon!
🗣 Check it out!
Lovely piece on #YoungStroke in @apaphysio InMotion magazine - was a delight to be involved.
Featuring:
@calebrixon @AVERTtrial @GavinWPhysio @NatFiniPhysio #GemmaAllinson
#stroke @PhysioUnimelb
australian.physio/inmotion/w…
genyus network retweeted
Hey, did you know that @genyusnetwork has as online zoom-coffee meet-up for 'support crew'? Loved ones, carers, friends, family of people who have survived stroke, trauma, live with chronic illness and disability. If this is you & you wanna chat ➡️ genyusnetwork.com/coffee-clu…
Thanks for your support @strokefdn 😊
WE’VE DOUBLED CAPACITY for our upcoming #genyusCoffeeClub meetup for #supportcrew.
ONLY 2 SPOTS LEFT! SAVE YOURS, NOW…
Are you a member of someone's 'support crew' after a stroke? @genyusnetwork are holding online meet-ups - are you a family member, carer, friend or partner. Be part of a social, peer-lead meet up and talk to others who get it! bit.ly/3DIlYQo #coffeeclub
Thank you, @strokefdn for your kind words about our founder @calebrixon, and for shining your light on the power and significance of #survivorstories!
Shout out to @calebrixon on an amazing film about the pressure, and reality, of dating after a stroke. 👏
The founder of @genyusnetwork, Cal has shared not only his stroke story with @abcnews, but he has also bared his soul. #inclusion
genyus network retweeted
Are you a member of someone's 'support crew' after a stroke? @genyusnetwork are holding online meet-ups - are you a family member, carer, friend or partner. Be part of a social, peer-lead meet up and talk to others who get it! bit.ly/3DIlYQo #coffeeclub
Our #founder and #chiefvisionofficer, @calebrixon sharing the impact of sharing his #vulnerable #strokesurvivor story.
Elated that my #survivor story is being used for greater impact!
Thanks for sharing with your students,
@lustreeducation!
➡️ What 1 comedy-of-errors date taught me about my disability & disclosure abc.net.au/news/2021-12-11/d…
#abi #braininjury #stroke #storysharing #genyusnetwork
genyus network retweeted
“While he poked and prodded inside my throat, I sheepishly looked at him and explained, ‘This is hard… for me… because… I’m a singer.’ He replied, ‘You were a singer’. I was crushed.”
We can do better, here’s how: cambridge.org/core/journals/…
#braininjury
#stroke
#tbi