Researching health and education outcomes in children and young people using linked administrative data @adr_uk @The_MRC Funders: @adr_uk @The_MRC

Cardiff
Joined January 2009
Our study into the educational outcomes for young people with type 1 diabetes has been published in the Journal of Diabetes Care @DiabetesCareADA. Thank you to our funders @adr_uk @The_MRC. To read the findings visit: cardiff.ac.uk/news/view/2687… #diabetes #type1diabetes #WDD
The largest ever study of how children with type 1 diabetes are doing in schools and university. Cardiff University present new evidence from UK linked administrative data. @ADA_Pubs Find Out More Here: doi.org/10.2337/dc21-0693
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Rob French retweeted
We've published a short report about our evidence at @SeneddEquality inquiry. @french152 & @C_Carrigan responded to wide-ranging questions for #usemydata, including on patient choice, patient access & transparency. bit.ly/410ZNPA - with a Welsh translation coming soon!
We're looking forward to giving evidence at today's Data Justice inquiry at the Welsh Parliament - focussing on the personal use of data in the NHS. Watch the session live here! - bit.ly/42LzZJx #usemydata @C_Carrigan @french152
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📢 On Monday, the Committee will hold a one-day inquiry into Data Justice. Members will receive evidence from @useMYdata , @DHCWales , @SAILDatabank_Cy and more. Find the agenda here⬇️ business.senedd.wales/ieList…
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Rob French retweeted
We're looking forward to giving evidence at today's Data Justice inquiry at the Welsh Parliament - focussing on the personal use of data in the NHS. Watch the session live here! - bit.ly/42LzZJx #usemydata @C_Carrigan @french152
📢 On Monday, the Committee will hold a one-day inquiry into Data Justice. Members will receive evidence from @useMYdata , @DHCWales , @SAILDatabank_Cy and more. Find the agenda here⬇️ business.senedd.wales/ieList…
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Rydym yn @SeneddCymru i glywed am ymchwil @PrifysgolCdydd ar ganlyniadau addysgol i blant sy'n byw gyda diabetes. Cyflwyniadau rhagorol gan @CYPDiabNetwork, @ALPHA_DECIPHer ac eraill. Rhagor o wybodaeth yma: bit.ly/3xbKOGc
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We are at @SeneddWales to hear about @CardiffUni research on educational outcomes for children living with diabetes. Excellent presentations from @CYPDiabNetwork, @ALPHA_DECIPHer and others. More information here: bit.ly/3IdCMCI
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Cardiff University welcome the publication of the @SeneddWales Committee's report into Pupil Absence and the inclusion of our evidence relating to children missing education due to their diabetes and how that impacts upon their learning. @DiabetesUK @CUmedicengage #WDD2022
🚨🚨NEW REPORT!🚨🚨 Today the Committee has published its report on Pupil Absence Read the report here: business.senedd.wales/mgIssu…
It's very exciting to see the new developments regarding Type 1 screening for children. We know from our forthcoming research the importance of early indentification and how that impacts children's lives and future outcomes @DiabetesUK @elsadiabetes @JDRFUK #WDD2022 @cardiffuni
This #WorldDiabetesDay, we're delighted to announce that a brand new, UK-first screening programme for type 1 diabetes that we’re funding in partnership with @JDRFUK is open for recruitment! A thread 👇 (1/6) #Type1Diabetes #gbdoc @elsadiabetes

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Rob French retweeted
We’ve published the findings of the @UKRI_News-funded DARE UK Sprint Exemplar Projects. They uncovered & tested early thinking in the design & delivery of a coordinated & trustworthy national #data #research infrastructure @HDR_UK @adr_uk Find out more 👇 bit.ly/3LRIUkg
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🎉 Join us in congratulating our Deputy Director @gillwyness_econ on her promotion to Professor of Economics 🎉
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We are organising meetings for young people with diabetes to discuss how their data is used for research:
Are you aged 13-24 and have #type1diabetes? In our upcoming video, @DukeAlDurham invites you to be a catalyst for change and join the STEADFAST study. Watch the teaser below. To know more about the study, check out the link and sign up today: diabetes.org.uk/research/tak…
Are you aged 13-24 and have #type1diabetes? In our upcoming video, @DukeAlDurham invites you to be a catalyst for change and join the STEADFAST study. Watch the teaser below. To know more about the study, check out the link and sign up today: diabetes.org.uk/research/tak…
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New research from @NCPHWR_Wales shows that having a health check was associated with reduced deaths for people with a #learningdisability - especially those with #autism and #Downsyndrome. @SineadBr @pphillips2020 @ResearchWales @ImprovementCym @PopDataSci_SU @SwanseaUni
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Families may be more important in determining educational achievement than we thought. Our new research in @sreesociety's journal with GeorgeLeckie @DylanKneale @AmirSariaslan @LarssonPsychEpi @cardiffuni @BristolUni @ucl @NCRMUK @ESRC @The_MRC @adr_uk tinyurl.com/4rn92r9t
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Our project with @CardiffUniversity & @DiabetesUK is looking for young people with Type 1 diabetes to give feedback on how their data is used. To read more please visit diabetes.org.uk/research/tak…
🔬 This #ResearchFriday, we're talking about new study called 'STEADFAST', which is looking at how to involve young people in research about their data, such as health and education outcomes. (1/8)
🔬 This #ResearchFriday, we're talking about new study called 'STEADFAST', which is looking at how to involve young people in research about their data, such as health and education outcomes. (1/8)
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📣 New paper! Delighted to share my latest publication in @PLOSONE: COVID-19 mitigation measures in primary schools and association with infection and school staff wellbeing: An observational survey linked with routine data in Wales, UK doi.org/10.1371/journal.pone… @PopDataSci_SU
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📢 DARE UK & @UKRI_News are delighted to announce the award of over £2m to fund a programme of nine Sprint Exemplar Projects to uncover & test early thinking in the development of a more joined-up & trustworthy national data research infrastructure bit.ly/3Fl0xEj @adr_uk
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