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EverythingALS Launches #Vision2030 AI Hub – an innovative platform leveraging AI and #machinelearning to accelerate progress towards a cure. We're charting the path to a future free from #ALS and advancing neurodegenerative disease research. #endALS #cureALS @MIT @MassGeneralNews
Join us this Wednesday, October 21 for our next Fireside Chat, featuring a special panel with the Pathfinders!🔥
These conversations are a dedicated space for our community to come together, share real-life experiences, ask questions, and learn directly from one another.
Whether you are living with ALS, caregiving, or joining us for the first time, your unique voice and story strengthen the collective knowledge and support we build together.
We hope you’ll join us and our Pathfinders for an engaging, meaningful, and deeply supportive discussion.
🗓️ Wednesday, October 21, 2026
⏰ 4 PM PT / 7 PM ET
🔗 Register here: tinyurl.com/3aw5ah7t
#ALSCommunity #StrongerTogether #FiresideChat #EverythingALS #CareToCure #ALSFamily #ALSPathfinders
Could AI voice agents make clinical research more accessible?
From routine follow-ups to patient communication, the possibilities are worth exploring but safety, privacy, and trust must come first.
Join Dr. Michael Weiner Oct. 27: tinyurl.com/4hc854du
#AlzheimersDisease
What could advances in Alzheimer’s testing mean for care that is more tailored to each person?
Join EverythingALZ for an Expert Talk with Dr. David Soleimani-Meigooni, MD, Assistant Professor of Neurology at the UCSF Weill Institute for Neurosciences. He’ll discuss how testing and precision medicine may support personalized Alzheimer’s care.
The conversation is for people living with Alzheimer’s, care partners, families, and anyone seeking to better understand this evolving area.
📆Tuesday, October 13, 2026
⏰2:00 pm PT / 4:00 pm CT / 5:00 pm ET
Register to attend: tinyurl.com/ETOct13
Please share with someone who may find this conversation helpful.
#AlzheimersDisease #Alzheimers #dementia #brainhealth #caretocure #EverythingALZ #ExpertTalk
What happens when the brain becomes part of research?
Brain donation can play an important role in helping researchers better understand ALS.
Join our experts on September 30 for a conversation about brain donation, its role in research, and what you should know about the process.
📅 Wednesday, September 30, 2026
⏰ 4 PM PT | 7 PM ET
Register: tinyurl.com/5ajyypsx
#ALS #ALSResearch #BrainDonation #EverythingALS #CareToCure
🧠 What if one of the most important questions in Alzheimer’s research isn't just what are we treating?
It's:
How are we measuring whether it works?
Clinical trials rely on measurements to detect change. But not every measurement captures the same thing.
And what researchers can measure can shape what they learn.
That's why this conversation matters.
📅 Sept. 29
⏰ 2 PM PT / 5 PM ET
🎙️ Dr. John Harrison
💻 Virtual Expert Talk
Register: tinyurl.com/ETSept29
#Alzheimers #AlzheimersResearch #ClinicalTrials #Dementia #EverythingALZ #CareToCure #AlzheimersTreatment #neurology #BrainHealth
ALS research cannot afford to move in silos.
Vision 2030 has expanded its Scientific Advisory Board with 13 additional international leaders in ALS research, neuroscience and patient advocacy, bringing even more expertise to the race to understand how ALS progresses and charge towards a cure.
Together, these experts will help guide Vision 2030’s collaboration with the Allen Institute’s Brain Health Accelerator, connecting science, technology, data, and the ALS community to help turn promising discoveries into progress faster.
Because when it comes to ALS, every opportunity matters, and every day counts.
Check out our announcement here: Vision 2030 Scientific Advisory Board tinyurl.com/msvf97v8
#Vision2030 #CareToCure #ALS #Neurodegeneration #HealthTech #PatientCare
What if we're entering a new era of #Alzheimer's treatment?
Researchers aren't just asking what causes Alzheimer's.
They're asking what we can change.
What treatments are next?
Join Dr. Lon Schneider on Sept. 15 to explore the possibilities.
Register: tinyurl.com/ETSept15
ALS research is a global effort. What does collaboration across countries look like?
Join us for our next #ExpertTalk with Dr. David Taylor, Chief Scientific Officer at the ALS Society of Canada, as he shares his perspective on global collaboration in ALS research and the work being done to help disrupt ALS.
📅Wednesday, September 16, 2026
🕖4 PM PT | 7 PM ET
Register Now: tinyurl.com/mpcz64f2
We hope you'll join us!
#ALS #ALSTalk #EverythingALS
Join us for our next Citizen Research session with Dr. Terry Heiman-Patterson and Dr. Lyle Ostrow. Learn how to better understand emerging ALS research, clinical trials, and the scientific evidence behind them.
Wednesday, September 2, 2026 | 4 PM PT / 7 PM ET
Register Now: tinyurl.com/2amzrn9c
#ALS #CitizenResearch #EverythingALS
The ALSTARS Trial continues to evolve. Join Dr. Tyrell Simkins and Dr. James Berry to hear the latest updates on the COYA 302 clinical trial and what lies ahead.
Wednesday, August 19, 2026 (4 PM PT / 7 PM ET)
Register now: tinyurl.com/4knmvnjd
#ALS #EverythingALS #ExpertTalk #ALSResearch
Join us for our next Citizen Research session with Dr. Terry Heiman-Patterson and Dr. Lyle Ostrow.
Learn how to better understand emerging ALS research, clinical trials, and the scientific evidence behind them with guidance from leading experts.
Wednesday, August 5, 2026 | 4 PM PT / 7 PM ET
Register: tinyurl.com/2amzrn9c
#ALS #CitizenResearch #EverythingALS
We are excited for our next #ExpertTalk with Dr. Bryan Traynor.
Join us to learn about the recent genomic and proteomic advances in ALS/FTD.
Wednesday, July 22nd 2026, (4 PM PT | 7 PM ET )
Register: na2.hubs.ly/H06B2LJ0
Hope to see you there!
#ALS #ALSTalk #EverythingALS
Join us for an Expert Talk with Dr. Thomas M. Holland, MD, MS, Assistant Professor at Rush University.
Learn how diet and lifestyle may support brain health.
Tuesday, July 21, 2026 | 2 PM PT / 5 PM ET
Register: tinyurl.com/er6wemek
#BrainHealth #ALS #EverythingALS
A powerful moment for the future of ALS:
Allen Brain Health Accelerator - a $400 million investment. EverythingALS is honored to be part of this effort.
It is inspiring to hear Ed Lein share $400 Million investment into this bold vision for accelerating discoveries across neurological diseases through collaboration, data, technology, and open science at the Allen Brain Health Accelerator.
EverythingALS is honored to be among the partners, alongside the National Institute on Aging, AWS, and the Bezos Family Foundation, supporting this effort to better understand and treat diseases of the brain.
For too long, ALS has been hindered by fragmented data, slow research cycles, and limited access to real-world patient insights. By bringing together citizen researchers, neurologists, and neuroscientists with industry and technology partners, as part of the Brain Health Accelerator initiative we have an opportunity to fundamentally change that trajectory.
The future of medicine will be driven by large-scale, longitudinal, patient-centered data combined with AI-powered analysis and collaborative innovation.
This is exactly the vision that drives EverythingALS, EverythingAD, and Vision 2030.
We are grateful to our partners, participants, researchers, and supporters who continue to make this work possible.
#BrainHealth #ALS #Alzheimers #DigitalBiomarkers #AIforGood #OpenScience #EverythingALS #EverythingAD #Vision2030 #AllenInstitute
A landmark collaboration: EverythingALS + Allen Institute unite to accelerate ALS & brain disease breakthroughs. #OpenScience #AIforGood
Dr. Jinsy Andrews invites you to EverythingALS' next Expert Talk, happening this week!
She'll be discussing:
✨ Review of current ALS treatment options and when it may be time to consider clinical trials
✨ Break down of how to evaluate and choose the right clinical trial, including key decision factors and an overview of today’s pipeline
✨ Exploring Sava AI and how it supports trial navigation, decision-making, and continuous feedback to improve the patient experience
📅 Wednesday, April 29, 2026
⌚ 4 PM PT / 7 PM ET
🔗 Register: rnrli.share-na2.hsforms.com/…
#everythingals #alscommunity #endals #alstrials #alsresearch #peoplelivingwithALS #als #alscaregivers #motorneurondisease
Our monthly Fireside chat is tomorrow where PALS and CALS come together to share everyday life questions and experiences.
📆 Wednesday, April 8, 2026
⏰ 4 PM PT / 5 PM MT / 6 PM CT / 7 PM ET
💻 held on Zoom
✍🏻 register at: rnrli.share-na2.hsforms.com/…
The more, the merrier! If you have friends or other people in your ALS community, please invite them!
#ALSResearch #ALSJourney #alscaregivers #livingwithals #lifewithals #ALSCommunity #ALS #CaretoCure #everythingals #motorneurondisease
We’re expanding our work.
Introducing @Everything__AD, a new initiative under the Peter Cohen Foundation focused on Alzheimer’s disease and brain health.
Neurodegenerative diseases share overlapping biology, and progress in one area can accelerate breakthroughs across others. This is a natural next step in our commitment to citizen-driven research and open dialogue.
Join us tomorrow for our first EverythingAD Expert Talk, including live Q&A.
Register: tinyurl.com/bdzzzk54
#BrainHealth #Alzheimers #Neurodegeneration #EverythingALS #EverythingAD



















