epilepsy express (@epilepsyexpress) header
epilepsy express (@epilepsyexpress) profile picture

epilepsy express

@epilepsyexpress

Epilepsy advocacy, research, and SUDEP global conversation. (SUDEP: Sudden Unexpected Death in Epilepsy)

 Australia
epilepsyingeneralpractice.com
Joined June 2014
  • Tweets197
  • Following175
  • Followers396
70Media
Photo by epilepsy express (@epilepsyexpress)Photo by epilepsy express (@epilepsyexpress)Photo by epilepsy express (@epilepsyexpress)Photo by epilepsy express (@epilepsyexpress)Photo by epilepsy express (@epilepsyexpress)Photo by epilepsy express (@epilepsyexpress)Photo by epilepsy express (@epilepsyexpress)Photo by epilepsy express (@epilepsyexpress)Photo by epilepsy express (@epilepsyexpress)Photo by epilepsy express (@epilepsyexpress)
Follow the purple project xitter.cf/Action4Epilepsy/status…
Epilepsy Action Australia (@Action4Epilepsy) profile pictureEpilepsy Action Australia@Action4Epilepsy1 Sep 2019
ANNOUNCEMENT 📣 We've launched The Purple Project, a promise to continue the fight for those living with epilepsy. Are you with us? bit.ly/2NEj5Iw
Fabulous idea. Great work. Brings back memories of the 'Out of the Shadows' Dragon Boat Crew in bright yellow paddling the Yarra for epilepsy.
Mahalia Dobson (@MahaliaDobson) profile pictureMahalia Dobson@MahaliaDobson4 Nov 2018
A group of parents of children who received life-changing neurosurgery are attempting to set a new world record for the longest journey by dragon boat to help fund new epilepsy research @abcnews abc.net.au/news/2018-11-04/d…

Daughters' epilepsy inspires record attempt for longest journey by dragon boat

A group of parents of children who received life-changing neurosurgery have their sights set on a new world record for the longest recorded journey by dragon boat to help fund new epilepsy research.

abc.net.au
1
Pleased to se an incrasing focus on primary care in epilepsy.
David Lumb (@david_lumb1) profile pictureDavid Lumb@david_lumb11 Nov 2018
Good morning. Today the BBC reveals what campaigners call a fundemenal flaw in epilepsy care- costing hundreds of lives a year. @SudepAction @SUDEPaware @EpilepsyFdn Read more here: Epilepsy: Calls for 'critical' funding to save lives bbc.co.uk/news/health-459641…
Epilepsy: Calls for 'critical' funding to save lives

Epilepsy: Calls for 'critical' funding to save lives

Hundreds of people with epilepsy are dying every year because "critical" checks are not taking place, campaigners warn.

bbc.co.uk
1
4
#Prevent21Summit Catching up with Jane Hanna and Phil Smith at the reception with Ed Vaisey - Corpus Christi College Oxford. Collaborations Workshop today
Image from epilepsy express (@epilepsyexpress)
2
9
epilepsy express retweeted
SUDEP Action (@SudepAction) profile picture
SUDEP Action@SudepAction2 Nov 2018
Today is the #Prevent21Summit Looking forward to welcoming representatives from #epilepsy orgs, academic & medical professionals and policy makers - all collaborating together to tackle #epilepsy deaths. More updates will be shared throughout the day.
Image from SUDEP Action (@SudepAction)
2
18
1
35
epilepsy express retweeted
SUDEP Action (@SudepAction) profile picture
SUDEP Action@SudepAction2 Nov 2018
"The proportion of epilepsy deaths is rising. Substantial number of epilepsy deaths are potentially preventable. Changes in service structure and funding mechanisms are needed." Prof Hannah Cock, Professor of Epilepsy and Medical Education #Prevent21Summit
23
29
epilepsy express retweeted
The Alfred (@AlfredHealth) profile picture
The Alfred@AlfredHealth30 Aug 2018
The Alfred is now the only hospital in Australia with the capability to offer and test the most innovative new treatments and therapies in neurology – all in the safety of a ward setting. Collaborating with @CCSMonash bit.ly/2wmCqELb
Image from The Alfred (@AlfredHealth)
1
15
41
Congrations Rohit. This UK initiative is showing the world the potential of education and preventative action to reduce epilepsy deaths. xitter.cf/SudepAction/status/947…
SUDEP Action (@SudepAction) profile pictureSUDEP Action@SudepAction30 Dec 2017
Sending huge congratulations to Dr Rohit Shankar (@haritsa1), clinical lead for the #SUDEP & Seizure Safety Checklist, for being awarded an MBE in this years' #NewYearsHonours List! #LearningDisabilities #Epilepsy sudep.org/article/dr-rohit-s…
Image from SUDEP Action (@SudepAction)
1
4
Purple plans for Japan! Heard all about it at the American Epilepsy Society Meeting - Washington
Image from epilepsy express (@epilepsyexpress)
4
Good morning Washington DC. 7AM at American Epilepsy Society meeting -SUDEP SIG / Deadly Bedfellows: Sleep & SUDEP. So much we still do not understand.
Image from epilepsy express (@epilepsyexpress)
2
11
So pleased to see such a positive step towards tackling SUDEP and epilepsy-related death in Australia - launched this SUDEP Action Day 2017 xitter.cf/SudepAction/status/922…
SUDEP Action (@SudepAction) profile pictureSUDEP Action@SudepAction22 Oct 2017
Exciting news! SUDEP Action have partnered with @Action4Epilepsy for #SUDEPACTIONDAY2017 Read more here - sudepactionday.org/about/pre…
Image from SUDEP Action (@SudepAction)
2
7
Australian problem too. Instead of waiting for the wheels to fall off altogether....let's have realistic research on this. xitter.cf/omeara_p/status/910953…
Dr Peter (@omeara_p) profile pictureDr Peter@omeara_p21 Sep 2017
Do pts care who provides services? Competent & ethical providers? xitter.cf/NYCEMSwatch/status/910…
epilepsy express retweeted
SUDEP Action (@SudepAction) profile picture
SUDEP Action@SudepAction14 Sep 2017
Take a look at Jane Hanna's blog post after the International Epilepsy Congress last week - sudep.org/content/back-inter…
Image from SUDEP Action (@SudepAction)
5
6
epilepsy express retweeted
SUDEP Action (@SudepAction) profile picture
SUDEP Action@SudepAction6 Sep 2017
Yesterday, CEO Jane Hanna and Dr. Shankar presented SUDEP & Seizure Safety Checklist and EpSMon technology at #EpilepsyCongress #IEC2017
Image from SUDEP Action (@SudepAction)
Image from SUDEP Action (@SudepAction)
9
1
12
#IEC2017 @SudepAction @digitalhealthUX excited to be in Barcelona to talk with Jane on our risk work alongside some SUDEP world leaders – at Barcelona, Spain
Image from Professor Rohit Shankar (@haritsa1)
11
22
Exciting to see the streamlined Version2 of the SUDEP and Seizure Safety Checklist ready to go. xitter.cf/SudepAction/status/903…
SUDEP Action (@SudepAction) profile pictureSUDEP Action@SudepAction1 Sep 2017
We're delighted to announce Version 2 of our award-winning SUDEP & Seizure Safety Checklist, has now been released. ow.ly/LJaY30eAprT
Image from SUDEP Action (@SudepAction)
5
4
Katie & Shelly making a difference @SUDEPAction - making sure that every @epilepsy death counts sudep.org/
Image from epilepsy express (@epilepsyexpress)
1
5
At #SUDEPAction annual meeting. Prof Stephen Brown adds his name to the timeline of 21 years for SUDEP Action
Image from epilepsy express (@epilepsyexpress)
2
5
Henry Smithson updates #SUDEPAction meeting re the International Epilepsy Deaths Register. What can the Register do? epilepsydeathsregister.org/
Image from epilepsy express (@epilepsyexpress)
1
3
Looking forward to SUDEP Action's National Conference starting today. xitter.cf/SudepAction/status/859…
SUDEP Action (@SudepAction) profile pictureSUDEP Action@SudepAction2 May 2017
SUDEP Action host their National Conference from 9-11 June 2017, in Leamington Spa. Details and bookings via sudep.org/conferences-0
Image from SUDEP Action (@SudepAction)
Load more