ECMTF retweeted
Read this 2022 Top Accessed article for FREE in JPNS: onlinelibrary.wiley.com/doi/… Want to see more? Join the PNS today! #BestofJPNS #openaccess
ECMTF retweeted
CMTA is relentlessly striving to discover a cure for CMT. 👏
CMTA is pursuing treatments and a cure for all types of CMT with great determination.
✨We invite you to support our mission by becoming a Partner in Research.
Learn more here: cmtausa.org/our-research/for…
ECMTF retweeted
Do you feel like your sleep is impacted by your #CMT? Whether it is or not, please complete the Sleep disturbance Short Form 8a survey to inform researchers.
@ecmtf @AssoCMTFrance @Federacion_ASEM @ACMT_Rete @CMTUnitedKdom @CMTNeuropathy @cmtausa
#Didyouknow?
COULD IT BE CMT?
CMT can be spotted from early childhood. Find out more about the symptoms and how to recognize them with Dr Matilde Laura.
👉🏻 cmt-awareness.com/whats-the-…
#CMTDisease #CharcotMarieTooth
#News
YOUR MENTAL HEALTH MATTERS TOO
According to biology pHD Marta Figueiro, managing depression and fatigue participates in improving the quality of life of CMT patients.
To know more: charcot-marie-toothnews.com/…
#CMTDisease #CharcotMarieTooth
"I always want to remain active and ready for a treatment when it will come, whether through running, swimming, spinning, Pilates or weight training."
Cynthia Lawrence, Disney Princess and Athlete testifies on her life with CMT.
👉🏻 cmtausa.org/get-involved/my-…
#CMTDisease
#Didyouknow?
There are currently no curative or disease-modifying treatments for CMT. Patient management is conservative, with physiotherapy, occupational therapy, technical aids, orthoses, pain treatments and rarely orthopaedic surgery.
🖱 ecmtf.org
#CMTDisease
#News
Researchers at Washington University School of Medicine of St. Louis are working toward a treatment for neurogenerative diseases.
Great news, research is the key to the future!
To read the whole article: medicine.wustl.edu/news/new-…
#CMTDisease #CharcotMarieTooth
💬 "I only received the diagnosis when I was 36 years old. This means that the on road there were always new anomalies paving the way".
Heike, from Germany, has a message for you!
Watch this video to know more about the daily life of a CMT patient!
cmt-awareness.com/heike-loos…
#Didyouknow?
👉🏻 Here are two of the main forms of CMT caused by different mutations in the genes:
🧬 Demyelinating (CMT1) – affects the myelin sheath insulating and nourishing the nerve’s axon.
🧬 Axonal (CMT2) – directly affects the axon
ecmtf.org
#CMTDisease
#News
🔙 Time to do a little throwback!
In October, during a meeting of orthopaedic surgeons, actors mimicked people with CMT to make the doctors react.
👉🏻 You can find here a video clip about this happening
cmt-awareness.com/happening-…
#CMTDisease
"At first glance, it just turned into an invisible disability and it is also difficult to simply be taken seriously"
Heike, from Germany, has a message for you!
Watch this video to know more : youtube.com/watch?v=Ze9llgy_…
#CMTDisease
#Didyouknow 🧬
Charcot-Marie-Tooth disease is an inherited, genetic condition affecting the nerves in feet, legs, hands and arms.
👉 Like, share, spread the message 📡!
🖱 ecmtf.org
#Didyouknow 🧬
Charcot-Marie-Tooth disease is an inherited, genetic condition affecting the nerves in feet, legs, hands and arms.
👉 Like, share, spread the message 📡!
🖱 ecmtf.org
#CMTDisease #CharcotMarieTooth
ECMTF retweeted
The Lower Extremity Functional scale asks about the difficulty you encounter in achieving the simplest of tasks such as getting out of a car. Complete it today.
@ecmtf @AssoCMTFrance @Federacion_ASEM @ACMT_Rete @CMTUnitedKdom @CMTNeuropathy @cmtausa
ECMTF retweeted
Cramps are a regular occurrence for people living with #charcotmarietooth. When cramps occur, ensure to record them so their frequency and intensity are known. It only takes 1 minute.
@ecmtf @AssoCMTFrance @Federacion_ASEM @ACMT_Rete @CMTUnitedKdom @CMTNeuropathy @cmtausa
ECMTF retweeted
Completing a survey is a good way to reflect on how you're doing. Why not sit down with a cuppa, complete the QuickDASH Outcome Measure for 7 mn & rate your ability to do activities
@ecmtf @AssoCMTFrance @Federacion_ASEM @ACMT_Rete @CMTUnitedKdom @CMTNeuropathy @cmtausa
ECMTF retweeted
Help us make the scientific community aware that fatigue is one of the symptoms impacting the life of a patient with CMT. Complete the Brief Fatigue Inventory
@ecmtf @AssoCMTFrance @Federacion_ASEM @ACMT_Rete @CMTUnitedKdom @CMTNeuropathy @cmtausa
#News
The European CMT Federation welcomes the Czech Republic CMT Association as an Associate Member of the European CMT Federation community.🎉
👉🏻 c-m-t.cz./.
#CMTDisease #CharcotMarieTooth"

















