Visit the new DMRF website: Virtual and in-person events are listed chronologically with additional information. It is also easier to toggle between DMRF events and individual fundraisers.
dystonia-foundation.org/
#dystonia #dmrf #dystoniafoundation
Sharing our lived experiences can be very powerful. Offer support to others in the dystonia community by holding space for their story.
#dystonia #dmrf #dystoniafoundation
Living with dystonia presents daily challenges. Don’t be afraid to take some time out to take care of yourself.
#dystonia #dmrf #dystoniafoundation
Visit the new online calendar on the DMRF website, with listings of support group meetings and featured events such as Dystonia Zoo Days and webinars.
dystonia-foundation.org/
#dystonia #dmrf #dystoniafoundation
Did you know that you don't have to live in a particular geographic area to join a virtual support group? If you see a meeting on the website calendar that you'd like to attend, reach out to the group leaders for more details.
dystonia-foundation.org/supp…
#dystonia #dmrf
Oct. 10 is #WorldMentalHealthDay. The theme is "Lived experiences heard: real voices, real change." Members of the dystonia community have a lived experience of a rare neurological disorder. Resources related to dystonia are on the DMRF website:
bit.ly/4zcS56x
#dystonia
Join us at the Connecticut Dystonia Zoo Day on Nov. 1. Zoo Day is a meaningful way to come together and remind each other that no one has to face dystonia alone.
Register by the Oct. 14 t-shirt deadline:
bit.ly/3qDcN1W
#dystonia #dmrf #dystoniafoundation
Stay in the know about what is happening with research, advocacy, education and other resources in the dystonia community with the DMRF monthly e-newsletter. The October e-news is now available: conta.cc/4dJATNy
#dystonia #dmrf #dystoniafoundation
Thank you to everyone who participated in the Boston Dystonia Zoo Day this weekend. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available here:
bit.ly/4y3s6NP
#dystonia #dmrf
Thank you to everyone who participated in the Rochester Dystonia Zoo Day. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available here: bit.ly/4y3s6NP
#dystonia #dmrf
Visit the Resource Library on the new DMRF website, with informative content searchable by topic, type of dystonia, articles, brochures/fact sheets, videos and webinars.
dystonia-foundation.org/
#dystonia #dmrf #dystoniafoundation
Dystonia Awareness Month may be over, but you can keep the spirit of Virtual YOU Day alive throughout the year by building community and offering support to others who have been impacted by dystonia.
#dystonia #dmrf #dystoniafoundation
The Boston Dystonia Zoo Day is today, Oct. 4, at the Franklin Park Zoo in Boston. Check in/registration starts at 9 am; program begins at 10 am. A special thank you to all our sponsors for supporting the work of the DMRF.
bit.ly/48slhd0
#dystonia #dmrf
Rochester's Dystonia Zoo Day is today, Oct. 3, at the Seneca Park-Longhouse Shelter followed by the Seneca Park Zoo. Check in starts at 11 am; program begins at 12 pm. A special thanks to our sponsors for supporting the work of the DMRF.
bit.ly/47ENgbv
#dystonia #dmrf
Boston Dystonia Zoo Day is Sun 10/4 and it’s not too late to register and join us at the Franklin Park Zoo.
Meet people who understand dystonia and build lasting friendships.
Check-in begins at 9 am, with the program starting at 10 am.
bit.ly/48slhd0
#dystonia #dmrf
It’s not too late to join us on Oct 3 for Dystonia Zoo Day at the Seneca Park Zoo in Rochester.
Zoo Day is a chance to meet others who understand dystonia and share experiences.
Check-in is 11 am, and the program starts at 12 pm.
bit.ly/47ENgbv
#dystonia #dmrf
As the DMRF recognizes Dystonia Awareness Month, our website has officially been relaunched. It's easier to find a doctor, support group options, community events and other information about dystonia diagnosis and treatment.
bit.ly/3QomM5G
#dystonia #dmrf
One day. One community. Countless opportunities to learn and connect.
You can still register for DMRF’s Virtual YOU Day on Sept. 30 at 6 pm CT | 7 pm ET and discover resources that support your emotional well-being.
Register free NOW: bit.ly/3RNQqEx
#dystonia #dmrf















