@dSavannahCreate

#spoonie FT sick since 12/2014 #ChronicFatigue #ChronicPain When brain & body behave: #blogger & #advocate #DogCatTurtleWrangler #wife #feminist she / her

Joined April 2012
  • Tweets20.9K
  • Following3.5K
  • Followers2.6K
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dSavannah = #disabled #MEep (#pwME) retweeted
Kelly@broadwaybabytoJun 20
I’ve got a friend who was non functional after a few hours with a GI bug. I gently pointed out their symptoms matched the ones I deal with every single day. Their response? “You’re used to it. It’s not the same”. That’s how disabled people are treated in a nutshell.
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Kelly@broadwaybabyto7 Jun 2025
I will be brutally honest, when I first read advocates saying that MAiD was eugenics and dangerous, I didn’t understand. Then I had it happen to me. I went to an ER with an acute but treatable condition and was asked “would you like death instead?”
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IDC/BCANDS 🇨🇦
@BCANDS1Jun 17
Replying to @picardonhealth @GlobeDebate
Palliative care is largely unavailable, mental health support years to get, if ever, disability supports and services nationally inadequate, health systems in peril, persons with disabilities living in isolation and desperation, all factors driving people towards MAiD, and he frames this as a "cause for celebration"
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Briana Mills, LMFT ♿️🏳️‍🌈🍉@theBrianaMillsMay 23
Say it with me: Disabled people deserve to live even if they can’t work.
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Jack | amatica health
@JackHadfield14May 23
People don’t realise how much you can lose and still have to live every hour. I’ve lost walking, my brain, normal vision, friends, food, music, love, career, hobbies, sunlight, sleep… I can’t even grieve it without getting sicker. Disease takes more than you realise you had.
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dSavannah = #disabled #MEep (#pwME) retweeted
Vlad Vexler
@VladVexlerMay 12
1 in 200 humans on earth are missing from their own lives due to ME. ME is a devastating physical illness that makes rubble of the lives of patients and families. Clinically, we’ve known it’s real for decades. Biologically, we had proof by the 1990s. But society still acts like it’s not real. This is a historic injustice. #MEAwarenessDay
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dSavannah = #disabled #MEep (#pwME) retweeted
Sarah O'Connell@SarahOC_MECFSMay 12
My family has 5 members with #MyalgicEncephalomyelitis over 3 generations; my mother, me, my sister & my two children. When my son developed #LongCovid & ME I was beyond heartbroken. He is now 11 & attends school part-time. Pls support #MEAwarenessDay #pwME #MEKills #MECFS
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dSavannah = #disabled #MEep (#pwME) retweeted
Whitney Dafoe
@DafoeWhitneyMay 12
We Need Your Help Imagine starving to death and being allergic to all food.  And everyday trying to decide between starvation and a deathly allergic reaction.  ME/CFS is like an allergy to energy expenditure.  Imagine everyday trying to decide between doing something that makes you feel alive or deathly sickness.  The more you do, the less alive you feel.  And the less you do, the less alive you feel.  And the more you do, the less you are physically capable of doing.  That is ME/CFS.  Everyday.  For decades.   But if you don’t have ME/CFS, and are not allergic to life itself, you could decide right now to help us.  And it won’t cost you anything but an extra work day, or one less toy or luxury, or some other small sacrifice in an otherwise life full of blessings and opportunity.  Which I would not want to take away for a second.  But a small sacrifice from you would go a long way towards helping people living in absolute hell.   Go here to donate to ME/CFS research:  whitneydafoe.com/donate Learn more about ME/CFS here: whitneydafoe.com/mecfs/whati… ================= ================= #mecfs #mecfsawarenessday #mecfsawarenessday2026 #chronicillness #pwME #spoonie
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dSavannah = #disabled #MEep (#pwME) retweeted
Carole Bruce@CaroleBruce17May 12
‘The withholding of lifesaving care is not a theoretical concern: it is a documented, devastating outcome of misapplying psychosomatic models to a serious, organic illness.’ BMJ opinion piece on treatment of #ME patients. Too many die Too many suffer for decades. #MEAwarenessDay
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dSavannah = #disabled #MEep (#pwME) retweeted
Ben H@benh_mecfsMay 12
#MEAwarenessDay 10 years 99.9% bedbound. 15 years since the illness began. 23 y/o to 38 y/o in the blink of an eye, but the extraordinary suffering has been felt in every second of those years. And there are thousands like me, or worse. #MECFS #ME #MEAwarenessDay
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Christoph Ströck
@cstroeckwMay 12
Today is ME/CFS Awareness Day. I am a very severe ME/CFS patient. I have not left my mattress in around 9 years, and I have been sick much longer. I cannot have visitors. I cannot watch TV. I can speak only very little with my caregivers. I can only read a few pages per day, sometimes less. I live mostly in darkness, in constant pain and physical discomfort. There has not been a single day in the last 10 years that was not “ME/CFS Awareness Day” for me. For millions of patients, this disease is not a campaign, a hashtag, or a yearly reminder. It is total life destruction, every single day. What we need is not symbolic awareness alone. We need serious research, clinical infrastructure, political recognition, urgency, and your help.
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dSavannah = #disabled #MEep (#pwME) retweeted
Lizzy H@hopefullizzyMay 5
Feeling a bit disconnected with M.E awareness week this year. It’ll be my 17th one, yet we still have no severeME services, and no specialist hospital beds in the UK, no treatments, and there is still a lot of stigma. I have even less energy to fight for the bigger stuff. #MECFS
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Carole Bruce@CaroleBruce17May 9
Two poems by James Strazza who died this week. He had been suffering with severe #ME since 2019. A rare and sensitive man. It’s incredibly sad that once again we are mourning one of our own. May those that have blocked research and psychologised ME feel the pain of their actions
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Lizzy H@hopefullizzyMay 12
Today is #worldMEday and part of #MEawarenessweek I’ve had this horrific disease since I was 14yrs old. A fit, health and active teenager, until I got a severe gastric flu, and never recovered. For the last 7yrs in various ways my health has been declining, until near death
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dSavannah = #disabled #MEep (#pwME) retweeted
Alice Wong 王美華@SFdirewolf15 Nov 2025
Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin. We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.

ALT Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin. We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.

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dSavannah = #disabled #MEep (#pwME) retweeted
Julia Marie@julia_doubleday15 Nov 2025
In disbelief reading this. As I’ve adjusted to my very-disabled body over the past 2 years, @SFdirewolf has been a guiding light, an inspiration. Disabled ppl have to defend so ferociously their right just to exist. She did so with eloquence, rage, righteousness, joy. RIP 💔
Alice Wong 王美華@SFdirewolf15 Nov 2025
Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin. We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.

ALT Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin. We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.

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Brian Fog@useless_priest13 Nov 2025
Imagine that you have a pretty heavy new and chronic illness that has changed every aspect of your life. Now imagine that you have to piece together how it works based solely on the commentary of strangers online. #MEAwareness
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Kelly@broadwaybabyto6 Nov 2025
When you become disabled there’s a few things you notice right away: Ableism is everywhere. People will abandon you. Even those you were certain would stick by you. Just because something is illegal or against human rights code doesn’t mean it’s not happening ALL the time
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Lizzy H@hopefullizzy6 Oct 2025
In 3weeks I’ll be 31. I have never lived away from home, never had a relationship, never been out to work. I’ve not been on holiday with friends, or finished my education, or put down a deposit. I haven’t been out alone in 16years. I have #SevereME I will never stop trying.
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Paula Knight@Paula_JKnight25 Aug 2025
Today I'm supposed to be doing some gardening, picking the apples off the tree, taking apples to neighbours, and making an apple crumble for tea. Instead, I've been bedridden for 7 years. Thanks ME and its decades of deniers! #pwME #MyalgicEncephalomyelitis
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