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CML Advocates Network: Network of 128 chronic myeloid leukemia patient groups in 93 countries. #CML #Leukemia #CureCML #PatientAdvocacy
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Access to treatment can save a life. Access to monitoring can change its future. 🧡
As we continue #WCMLD26, we highlight a story shared by Beena Narayanan from India about “Anita” (name changed), whose CML journey shows why access to treatment alone is not enough.
After gaining access to treatment, Anita went more than two years without a PCR test because testing was unavailable locally, expensive, and she did not understand its importance. Through a patient support group, she learned why regular molecular monitoring matters. Testing later revealed a loss of response that otherwise might have gone unnoticed.
Her experience eventually inspired her to help other patients understand the importance of monitoring and advocate for better access to PCR testing in her community.
👉 Read the full story:
worldcmlday.org/2026/08/19/b…
💬 And share YOUR story! Your experience can inform, connect and empower others in the global CML community.
Every person with CML deserves access not only to treatment, but also to the monitoring, information and support needed to move forward. 🧡
#WCMLD26 #WorldCMLDay #CML #CMLAwareness #CMLMonitoring #PatientVoices #CMLCommunity #CMLAdvocatesNetwork
A journey that began in 1998 continues today. 🧡
For #WCMLD26, meet Nicoletta Re from Italy, who was diagnosed with CML in February 1998, at a time when treatment options were far more limited than they are today.
Nicoletta’s story, “On a Journey for Life,” takes us through fear, hope, a bone marrow transplant, clinical trials with new TKIs and, ultimately, a determination to turn her own experience into support for others. In 2009, she helped found the Italian CML Patients Association.
More than 28 years after her diagnosis, her message remains a powerful one: “Yes to life.”
👉 Read Nicoletta’s story:
worldcmlday.org/2026/08/04/n…
💬 And share YOUR story! Every CML journey is unique, and every voice can help another person feel seen, understood and connected.
#WCMLD26 #WorldCMLDay #CML #CMLAwareness #PatientStories #PatientVoices #CMLCommunity #CMLAdvocatesNetwork
Every CML journey carries a different story.
As we continue marking #WCMLD26, we turn the spotlight to Ama Fianu from Ghana and her experience of living with CML.
Ama’s journey highlights the importance of access to diagnosis, treatment, specialist care and ongoing monitoring—and reminds us why equity must remain at the heart of the global CML conversation.
👉 Discover Ama’s story:
worldcmlday.org/2026/07/23/a…
💬 What’s your CML story? Share your experience and add your voice to our global community.
On #WorldCMLDay, every story shared helps raise awareness and bring the realities of living with CML into focus. 🌍
#WCMLD26 #WorldCMLDay #CML #CMLAwareness #PatientVoices #CMLCommunity #CMLAdvocatesNetwork
#WCMLD26 – World CML Day! 🌍🧡
Every CML story reminds us that behind a diagnosis is a person whose life is so much more than their illness.
Today, we invite you to read Sweta Agrawal’s story from India, sharing the journey of a young boy living with CML in Nepal. His experience is a powerful reminder of the importance of compassionate, patient-centred care—and of allowing a child to simply be a child.
Today, he is nearly 15 years old, continuing his studies, spending time with his family and living a fulfilling life.
👉 Read Sweta’s story:
worldcmlday.org/2026/07/23/s…
💬 And share YOUR story!
Every experience adds another voice to our global CML community. By sharing our stories, we can raise awareness, inspire others and make the voices of people affected by CML heard around the world.
Today on World CML Day, let’s share, connect and raise our voices together. 🧡
#WCMLD26 #WorldCMLDay #CML #CMLAwareness #CMLCommunity #PatientStories #CMLAdvocatesNetwork
CML AdvocatesNetwork retweeted
Hoy es nuestro día¡¡¡ #WCMLD26¿Nos ayudas a compartirlo? #SinDejarAtrásANingúnPacienteLMC #CureCML #SeguimientoDeLaLMC #DefensaDeLosPacientes
@cmlnet
Today is #WCMLD26 – World CML Day! 🌍🧡
Behind every CML diagnosis is a person, a family and a story.
Today, we invite you to read Kaylie Channon’s moving story from Australia, about her daughter who was diagnosed with CML in 1993 at just four years old—and the remarkable journey that followed.
👉 Read Kaylie’s story: worldcmlday.org/2026/06/16/k…
💬 And share YOUR story. Your experience matters. By sharing our stories, we raise awareness, connect our global CML community and remind others that they are not alone.
Today, on World CML Day, let’s make the voices of people affected by CML heard around the world.
#WCMLD26 #WorldCMLDay #CML #CMLAwareness #CMLCommunity #PatientStories #CMLAdvocatesNetwork
CML AdvocatesNetwork retweeted
CML AdvocatesNetwork retweeted
At the CML Patient Support Group Meeting held at Mahatma Gandhi Hospital, Jaipur we celebrated 25 years of CML and 25 years of treatment. And who better to tell this story than the patients and their families, their treating physicians
CML AdvocatesNetwork retweeted
🌍 Today is World CML Day – 22/9. 🧬
Every person with CML should have access not only to treatment, but also to regular, reliable molecular monitoring and understandable results. 💙
✨ Monitoring today. Better tomorrows.
#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #WorldCMLDay
A meaningful day for the CML community in Spain 🇪🇸
We’re pleased to celebrate the XI National Congress of AELEMIC, bringing together more than 100 patients and carers from across Spain, alongside leading haematologists and specialists.
The congress provided an important space to discuss the needs and quality of life of people living with CML, exchange knowledge and strengthen connections across the community.
It also marked the launch of a new documentary for World CML Day and an ambitious Spanish-language Quality of Life survey, helping to give greater visibility to patients’ experiences and priorities.
Congratulations to our Spanish member organisation AELEMIC for bringing the community together and continuing to advocate for better quality of life for people living with CML. 💙
👉 Learn more about AELEMIC: aelemic.org
#CML #ChronicMyeloidLeukemia #WorldCMLDay #CMLCommunity #QualityOfLife #PatientAdvocacy #AELEMIC #CMLAN
💬 3 questions for better CML conversations:
1️⃣ Are my results on the International Scale?
2️⃣ Are they in the expected range?
3️⃣ Could they ever support dose reduction or TFR?
Ask. Understand. Participate.
worldcmlday.org/get-involved…
#WCMLD26 #LeavingNoCMLPatientBehind #CureCML
🌍 Where you live should not determine how well your CML can be monitored. Progress in treatment must be matched by equitable access to quality molecular monitoring. ⏳ One week to #WCMLD26.
worldcmlday.org/get-involved…
#LeavingNoCMLPatientBehind #CureCML #HealthEquity
🔬 Could your PCR results influence future treatment options? For some patients, a deep and sustained molecular response may lead to discussions about dose reduction or TFR. ⚠️ Always discuss this with your CML specialist.
🔗 worldcmlday.org/get-involved…
#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #CMLMonitoring
🎙️ Bridging the Quality of Life Gap in Chronic Myeloid Leukemia
Living with CML is about more than managing the disease. Quality of life matters too.
In this EMJ podcast, experts discuss the challenges people living with CML may face beyond clinical outcomes, and why understanding and addressing these experiences is essential to truly patient-centred care.
🎧 Listen to the podcast and explore the conversation around quality of life, patient needs, and improving care in CML.
👉 Listen to the podcast: emjreviews.com/hematology/po…
#CML #ChronicMyeloidLeukemia #QualityOfLife #PatientCentredCare #CMLAN #Leukemia #PatientAdvocacy
📄 You have your PCR result — but do you know what it means? 💬 Ask: “Are my results in the expected range?” Understanding your response helps you take an active role in your CML care.
🔗 worldcmlday.org/get-involved…
#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #KnowYourResults
🌍 More languages now available for the 2025 ELN CML Recommendations!
CML Advocates Network has expanded access to the 2025 ELN Recommendations for the Management of CML, with Portuguese, Chinese and Arabic translations now available on our website, alongside the Quick Patient Guide.
Making trusted, up-to-date CML information available in more languages helps more patients understand the latest recommendations and take an active role in conversations about their care.
👉 Explore the 2025 ELN resources and share them with your CML community: cmladvocates.net/new-eln-rec…
#CML #CMLAdvocatesNetwork #ELN2025 #CMLGuidelines #PatientEducation #PatientAdvocacy
📊 Do you understand your PCR results? Patients should not just receive their results — they should be supported to understand what they mean and use them in conversations about their care. 💬
🔗 worldcmlday.org/get-involved…
#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #KnowYourResults
🧬 Why does regular PCR testing matter in CML? It helps show how treatment is working over time and can flag an unfavourable response early. ⏱️ The right test, at the right time, matters.
#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #PCRTesting
🧪 Good CML treatment needs good CML monitoring. Regular, reliable testing helps patients and healthcare teams understand how treatment is working. 💙 Access to treatment matters — and access to monitoring matters too.
🔗worldcmlday.org/get-involved…
#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #CMLMonitoring