Rants @CreakyJoints Blog https://xitter.cf/t.co/ghdlGYZy4h Patient Advisory Board Member @Arthritis_ARC Staff @IfAiArthritis

Vancouver, British Columbia
Joined October 2014
Nine years ago I realized there was something seriously wrong with me. I was constantly tired, no matter how much coffee or water I drank or the healthy foods I ate. No matter how many hours of sleep I got or how many hours of work I reduced. Resting for too long would cause pain all over. I would slur my words, forget mid sentence what I was saying, I wasn’t drunk. I was always in pain, especially in my hands, wrists, elbows, shoulders, neck, hips, knees, ankles and feet. Someone sitting next to me on the bus was painful. Carrying my 2 year old son was painful. Strapping him into a car seat or his stroller was difficult because I just did not have the hand strength. I could barely handle grocery shopping or walking 6 minutes to the train station. I was exhausted and it hurt. I had some of the worst mental health of my life. In fact I constantly thought of suicide because the amount of pain I was in was so great and I did not know why. I also blamed myself for not being able to shake off the tiredness or the forgetfulness. I was constantly catching a cold that wouldn’t go away. What would normally take a week to get over would take 4-5 weeks to recover from. I could barely function or explain what was going on with me. I had just celebrated my 29th birthday. I couldn’t do my job anymore. I thought it was hormones from having a child but after two years those hormones should have gone away, not have gotten worse. I thought it was all in my head. I thought I was crazy. Then I made an appointment to ask my family physician for a rheumatoid arthritis blood test after a coworker suggested it to me. Due to my family history of arthritis, things started to click. What I was experiencing was not normal and it was not in my head. I was being broken down by a serious autoimmune disease. Nine years ago I was diagnosed with rheumatoid arthritis. February 2nd is Rheumatoid Arthritis Awareness Day. A day to observe this serious autoimmune disease. Today is important to me because maybe I would have gotten my diagnosis sooner if I had known about the symptoms and that someone my age could get a form of arthritis. I hope those that are experiencing similar symptoms to me will get the help they need. Rheumatoid arthritis is a serious disease and it needs to be taken seriously with early and effective treatment. This day important to me because I have witnessed and lived the serious problems that can arise from the disease. My aunt lived with RA many years prior to my diagnosis. I do not have any memories of her walking. She was in a wheelchair, in serious pain. I saw my family dismiss her as dramatic. She passed away the same week I was diagnosed with RA due to complications that come from living with RA. Heart disease is part of RA and one of the most common causes of death for RA patients. Since my diagnosis I have become an advocate for RA with a passion for research. I have had the opportunity to learn a lot about my disease, which is fascinating but also terrifying as RA is a very serious disease. Rheumatoid arthritis is serious because: RA is a systemic inflammatory or autoimmune disease that not only attacks our joints but our organs like the heart, lung, eyes, kidneys, skin and more. RA is more like MS and lupus than it is osteoarthritis, which it is commonly mistaken for. RA increases my risk for other serious or life-threatening illnesses. It is well-established that RA increases your risk for developing a variety of other health conditions such as cardiovascular disease, certain types of cancers, osteoporosis, lung disease, mental health conditions like anxiety and depression, and more. RA significantly impacts quality of life with debilitating chronic symptoms that have no cure. RA and RA medications make us moderately to severely immunosuppressed, or at high risk for infections. When you’re immunocompromised, any sort of infection — from the common cold to COVID-19 — instills fear. Even if an illness is relatively mild, you worry that it can make your underlying disease worse, especially if you temporarily pause your immunosuppressant medication. Please share to help me create awareness and support for the rheumatoid arthritis community today. These words are only a glimpse into the seriousness of RA. #RheumDay, #TheRealRD #RheumAwarenessDay #RheumatoidArthritisAwareness #RheumatoidArthritisAwarenessDay
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
Pre-board Podcast! Flight delayed this am - listened to the latest episode where @CuoghiE joins @realcc & @chroniceileen to discuss importance of vaccines in rheumatic care. Give a listen to these #ACR25 ALL-STARS talk benefits, flares & myths of vaccines. 💉
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
🩺 Empowering Patients Through Health Literacy • Poor literacy fuels fear & misinformation • Education builds trust & better outcomes • Meet patients where they are • Stories > stats: narratives change beliefs • Clinicians online can counter myths #ACR25 #ACRambassador
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
🎉 Its that time of the year again! #ACR25 in Chicago, Oct 24-29! Ready to dive into the latest research & advances in rheumatology? 🦴🔬 🤝📱 Follow me for updates, key sessions & exclusive insights! 🩺Let’s get research ready & elevate patient care together! 🚀#ACRAmbassador
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
Invisible ≠ Imaginary. “You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen In this piece, Eileen shares what it’s really like to live with an illness that others can’t see — and how we can all do better. 👉 Read the full story: creakyjoints.org/living-with… #InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness
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Find #Rheumatologists Who Create Content The information goes beyond our short appointments we wait months for. Following rheumatologists who make content is a great way to get more out of your rheumatology care and understanding. 👉 Read the list - chroniceileen.com/2025/10/16…
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
📝 Thrilled to share our latest Publication! 🦴📖 Our article titled “Newer Therapies in Osteoporosis” has been published in the Journal of the Association of Physicians of India (JAPI), a prestigious API journal. #Osteoporosis #BoneHealth 🔗Article Link japi.org/article/japi-73-8-6…
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
“Some people might criticize u for taking #medication or accuse you of complaining about your #illness..Impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues”: buff.ly/UceEfGV via @creakyjoints @chroniceileen #RA
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
JIA risk may be higher if there's a family history of Rheumatoid Arthritis, Psoriasis, Ankylosing Spondylitis, and Inflammatory Bowel Disease. Find out your family history. #JuvenileIdiopathicArthritis #JIA #JIAAwarenessMonth #uveitis #chronicillness #chronicpain #GRASP #tRi
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
“#JointPain can make it difficult to simply walk around or go up and down stairs, let alone do daily chores or exercise. #Arthritis is a leading cause of #disability, making many people..no longer able to #work": buff.ly/4eckbnV via @creakyjoints @chronicEileen #NEisVoid
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism..I found myself belonging to one of the largest groups frequently subjected to #prejudice.": buff.ly/LBERnjR from @creakyjoints @chroniceileen #ChronicIllness #awareness
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
“#RA makes me feel envy of those who can hold down a #FullTimeJob. I never thought I would miss #working so much. RA makes me feel envy of those who have the #support they need because their #disease has empathy": buff.ly/b70Ss3t from @creakyjoints @chronicEileen #spoonie
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
@Arthritis_ARC senior scientist @LLi_1 highlights importance of authentic patient & public engagement in #research + offers tools to help scientists build meaningful, genuine partnerships in new research note. 🔗 ow.ly/LrFn50WgwWk #ArthritisResearch
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💊 From fears around side effects to the stigma of medications, we tackle the tough questions with Dr. Hazelwood as he shares insights on risks and benefits, and why treatment can change lives. 💥Available on all major podcast platforms, just look up “Arthritis Life Podcast!”
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
Lupus doesn’t look the same in men. They’re more likely to face organ damage, pleurisy, seizures, and forms like discoid or drug-induced lupus, often linked to heart medications. Our refreshed Men and Lupus page is launching soon. #LupusAwareness #MensHealth #ChronicIllness
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
"I’ve lost self-confidence, a lot of sleep, and sometimes, all hope. Coping with these emotions and finding a way out of the darkness has been one of the hardest parts of this journey." creakyjoints.org/about-arthr… via @chroniceileen & @CreakyJoints #ChronicIllness #ChronicallyIll
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
✨ New this week in Arthritis Care & Research No increased risk of thyroid cancer in patients with newly diagnosed RA doi.org/10.1002/acr.25582 NSAID use may lead to underestimation of active sacroiliitis on MRI doi.org/10.1002/acr.25581 Relationship between air quality and rheumatoid arthritis disease activity doi.org/10.1002/acr.25583
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
📣 New Research Results: As AI becomes embedded in daily life, @Arthritis_ARC researchers looked at accuracy of ChatGPT results on #JuvenileIdiopathicArthritis and found 52-84% of responses aligned with @ACRheum guidelines. Learn More: ow.ly/wlFp50Wc4IL @ptdenislav @LLi_1
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
🙌Thank you for attending the #EULAR2025 Congress! We hope you had a memorable experience! 📺Access the On-demand Congress Platform until 31 December 2025 👉 pulse.ly/3rz6rucm36 ✈️We Look forward to seeing you at #EULAR2026 in London! #EULAR #EULAR2025 #Rheumatology
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Eileen Davidson - Rheumatoid Arthritis Advocate retweeted
Risk of developing systemic autoimmune rheumatic diseases related to long-term exposure to fine particulate matter was investigated in adults in Quebec. Results showed a 1% increase in SARD risk per decile increment in PM2.5. NH4+ had the most effect A&R doi.org/10.1002/art.43276
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