#AYA RAI-Refractory Thyroid Cancer Survivor. Dog lady. Patient advocate. #aspec🎗🏳️🌈 @BU_HealthComm. @MasonCHHS. Tweets = own.
Virginia
Joined April 2009
- Tweets4.2K
- Following968
- Followers724
- Likes6.7K
Carly Flumer (she/her) retweeted
I will be joining virtually for the @S4PM Advancing Health Equity Through Participatory Medicine meeting.
This event explores the link between health equity, participatory medicine, and the role of trust in inclusive and human-centered health outcomes. participatorymedicine.org/co…
Recently diagnosed with the “C” word? Here are things to remember! @CancerSupportHQ #cancerawareness #healthliteracy cancersupportcommunity.org/b…
"The health industry is really good at telling people what to do and not so good at telling them why or listening." #healthliteracy @statnews @OffScripHealth @MatthewZachary
Please don’t assume that, because I work in healthcare, that I know all of the medical jargon you’re saying. #healthliteracymatters #thankscancer
You know it’s the most magical time of year when your doctor calls you and tells you that the medication that literally provides you life every day is out of stock everywhere in every dose. #thankscancer
To be brave is to be vulnerable, and to be vulnerable is to be brave. #thankscancer
#HappyThanksgiving! Starting my day off with listening to a hero in the male #cancer space, Trevor Maxwell, on the Health Design Podcast @JhcOffice. What an incredible story and #patientadvocate!
For my friends with #EDS (#EhlersDanosSyndrome), how do I best support someone who was recently diagnosed? @_OurOdyssey_ @RareDiseases
How do you get through the really, really dark times? Not asking for a friend…#thankscancer @ThanksCancer
Having had cancer (and the side effects that come along with it) is my #disability. ☹️
Having a healthy body and mind is a privilege I feel I will never get. #thankscancer @ThanksCancer
Honored to be a speaker at @ifopa’s annual family gathering and talk about one of my favorite topics in healthcare, #healthliteracy! #raredisease
When you’re too tired to have hobbies, so instead you sleep for hours on end. This is #refractory #thyca. #thyroidcancerawarenessmonth @ThanksCancer
Thankful for soul-searching conversations with friends and the ability to talk with a therapist during this #SuicidePreventionMonth. Depression and anxiety ARE a part of dealing w/ #thyca, & I don’t know if I’d be alive without support. #thyroidcancerawarenessmonth
Any doctor who says you have the “good cancer” is a liar. Side effects and QoL are REAL. #thyroidcancerawarenessmonth #medtwitter
When you can’t even reach your 5 year mark… #thankscancer
/LISTEN/ #Thyroid removal = prolonged decrease in Quality of Life via @docthyroid #podcast.
It takes 5 (!) years for #patients to get their #QoL back after #ThyroidCancer #thyroidectomy, longer than for other #cancers🏆💔
#ThyCa19 #ThyCa #PtExp #pinksocks
docthyroid.com/thyroid-cance…
