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My brother died suddenly the day after I finished my Master of Laws. He had autism, OCD and psychosis. I have used my learning to forensically research his death. He was on Clozapine which the pathologist surmised had risen to toxic levels & his beautiful heart stopped beating. We didn't know it could be fatal...nor did he or 6000 others that have died with a clozapine linked death. My mission now is to change this....
Kate Northcott Spall retweeted
Sorry for lack of engagement. I turned off social media as I had a final gift for my little brother - to give him justice and a legacy. We're nearly there...
His inquest is now over. His anti psychotic clozapine & failure to moniter it was found by the coroner to be a factor in his death.
It's impossible to write down the experience so I made this vid to attempt to vocalise the horrors of the process & explain the positive changes happening already due to his death and the good news coming in his name "Wim's Protocol" x
youtu.be/-bxPX1DxaMs
Sorry for lack of engagement. I turned off social media as I had a final gift for my little brother - to give him justice and a legacy. We're nearly there...
His inquest is now over. His anti psychotic clozapine & failure to moniter it was found by the coroner to be a factor in his death.
It's impossible to write down the experience so I made this vid to attempt to vocalise the horrors of the process & explain the positive changes happening already due to his death and the good news coming in his name "Wim's Protocol" x
youtu.be/-bxPX1DxaMs
A great start from @wesstreeting
The Trust Board meeting after the death of my brother under their care began with a "good patient story"
I believe every Board meeting should begin with case synopses of patients who have been harmed under their care.
I requested a mortality review. The Trust marked their own homework and described their management of my brothers medication - the one that killed him - as "excellent"
The "independent" serious incident review (again at my request) was the most poorly written piece of dross with the independent reviewer failing to talk to the family, carers, GP or look at his medical records to record the Trust acted reasonably. We're paying for this utter incompetence.
"First do no harm" should be front and centre
Sadly duty of candour, transparency and safety are compromised daily.
#patientsafety #CQC
'I never expected to be told that 1 in 5 health care providers had not received a rating and that some hospitals hadn't been inspected for a decade'
Health Secretary Wes Streeting told #BBCBreakfast the Care Quality Commission, the body responsible for regulating NHS and care services in England, is not fit for purpose
bbc.co.uk/news/articles/cjk3…
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Been busy working on my brothers mental health campaign and very positive updates to come… time for a north wales summer holiday… rain (of course) mixed with Hollywood royalty - life is never dull x
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thetimes.com/article/michael…
After all the efforts...it was journalists who found the body presumed to be Michael Mosley. So tragic.
Very lucky to walk past Chester Cathedral when the Duke of Westminster wedding flowers were delivered. Stunning.
Then watched an elderly couple beat the security protocol - walked straight through the police and wandered around the pews... they said it looked beautiful for the couple!!!
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It's my brother William's birthday today. He should be 42 and opening some retro computer games and new socks and aftershave from me.
Instead of buying his presents I applied to join the medicines regulator (MHRA) board meeting. The one I've been pursuing & pestering since his death attributed to clozapine toxicity. The one who has the power to keep our medicines safe. The one who told the Times "its the most monitored drug in the Uk."
It's taken 2 years but finally we have it writing - my aim to have a safety review of Clozapine is fulfilled - in time for his birthday. They also picked my question to answer. Happy Birthday my beautiful Wim x
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Christine McDonald was jailed for stealing a block of cheese, shampoo and bubble bath.
She was taken to HMP Styal where she begged for help 2 days into her sentence. No help came and she died of self inflicted wounds.
The Cheshire coroner concluded her death was due to neglect.
A bloody disgrace
Last week an inquest jury found that neglect contributed to the self-inflicted death of Christine McDonald at HMP Styal, just two days after her arrest.
Her daughter Cheri spoke to @AnnaYoussefITV about her mum and how her cries for help were ignored.
itv.com/news/granada/2024-05…
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Kate Northcott Spall retweeted
As @campaignkate family sadly knows, the priority of helping people with serious mental health issues doesn’t always get accompanied by monitoring their physical health too, especially of known side effects. The law of unintended consequences in action but it has to change.
Heartfelt thanks to @DrLadeSmith & team @rcpych for asking me to write this op-ed on my brother for #MentalHealthAwarenessWeek
Both hideous but cathartic to write. I’d be grateful if you read it - for Wim and for me and for those patients suffering now. I want to make you angry - and support me in shifting the paradigm in how we treat patients with serious mental illness.
“William was a hidden treasure that never had the chance for the world to see him shine. His life was so small, so restricted, bartering with staff for a couple of hours leave. ”
“His treatment plan was that of an NHS plastic cup full of high dose anti psychotics, benzodiazepines, and anti-epileptics and seclusion from society”
rcpsych.ac.uk/news-and-featu…
Heartfelt thanks to @DrLadeSmith & team @rcpych for asking me to write this op-ed on my brother for #MentalHealthAwarenessWeek
Both hideous but cathartic to write. I’d be grateful if you read it - for Wim and for me and for those patients suffering now. I want to make you angry - and support me in shifting the paradigm in how we treat patients with serious mental illness.
“William was a hidden treasure that never had the chance for the world to see him shine. His life was so small, so restricted, bartering with staff for a couple of hours leave. ”
“His treatment plan was that of an NHS plastic cup full of high dose anti psychotics, benzodiazepines, and anti-epileptics and seclusion from society”
rcpsych.ac.uk/news-and-featu…
“From the moment he became ill, he was ostracized from society… A life with so much potential unrealised” – Read @campaignkate’s powerful blog about her late brother William’s experience of schizophrenia #MentalHealthAwarenessWeek ⬇️
rcpsych.ac.uk/news-and-featu…
Some goals after my brothers death:
*Fight the prejudice of serious psychiatric illness
*Overhaul and make safe the monitoring protocols for anti-psychotic clozapine "The William Protocol"
*More attention to physical health
*Less Seclusion - More Inclusion for psychiatric patients
My interview below on @Channel4News
#MentalHealthAwarenessWeek
Calls for better monitoring of antipsychotic drug linked to hundreds of deaths
channel4.com/news/calls-for-…
I've received some harrowing stories from families affected by clozapine monitoring failures.
Thank you for sharing yr very personal and difficult stories. I'll be responding to all of you as soon as possible. Please be reassured whilst it's too late for my brother - I'll be fighting hard to keep your loved ones safe, and won't stop until they are x
Thanks so much to Victoria Macdonald @Channel4News for highlighting Wim and Sean's @NicholaCrawfor8 deaths from clozapine and our clozapine safety campaign. We are determined changes and learning from their untimely deaths will ensure a better, safer treatment protocol. x
Thanks so much to Victoria Macdonald @Channel4News for highlighting Wim and Sean's @NicholaCrawfor8 deaths from clozapine and our clozapine safety campaign. We are determined changes and learning from their untimely deaths will ensure a better, safer treatment protocol. x
Calls for better monitoring of antipsychotic drug linked to hundreds of deaths
channel4.com/news/calls-for-…
Wim’s story is on @Channel4News tonight - we’ve made massive strides in the campaign but much work still to do x
Monday 19th February will go down as a seismic day in the Northcott family. The day we saw "The William Protocol" in print @thetimes I told my sister this means Wim will always be with us...his legacy will live on and it's the first time I've felt real peace since he died...we know this is only the beginning but now we have a commitment to change the lives of psychiatric patients like Wim - and our beautiful little brother will always be remembered as a force for good - his life and death mattered x
Cringing inside out...what's our Lizzie going to do with a "bigger bazooka"...I'm as lost as Lizzie here
Tonight I came across a man in distress - he'd left prison, had mental health problems and was homeless. His name was William - but he "didn't like the name" I told him it was a beautiful name. He asked why I would help him and talk to him as "everyone looks down on me". Because I cared and would like to listen and make sure he was safe. He's been on a cycle of prison and homeless and back to prison and "nobody really cares." Please don't ignore the William's in our community - they need us and need to know they matter. He is safe tonight. #thewilliamprotocol
There is prejudice and discrimination of severe mental illness. I've seen it with my brother. The hardest part of my campaign is peoples perceptions. I had to push hard to get a platform.
The hard truth is depression and anxiety are socially acceptable (as they should be) but schizophrenia & psychosis are not.
The narrative is grim from many - GB news get a special mention here - uneducated, prejudiced rhetoric that made me cry.
For context, Wim loved rabbits, stroking hair and was obsessed with his loved ones being safe...We were proud of him. I want to be part of the change and tackle this discrimination head on.
Discriminatory attitudes regarding severe mental illness remain in the UK, distracting us from a disturbing reality—the UK's mental health services are in crisis.
On the cover, our Editorial—Severe mental illness in the UK: a crisis of compassion buff.ly/3UGJB6w
Monday 19th February will go down as a seismic day in the Northcott family. The day we saw "The William Protocol" in print @thetimes I told my sister this means Wim will always be with us...his legacy will live on and it's the first time I've felt real peace since he died...we know this is only the beginning but now we have a commitment to change the lives of psychiatric patients like Wim - and our beautiful little brother will always be remembered as a force for good - his life and death mattered x

















