@breathsofhope

🫁 Sharing my story with cystic fibrosis 🌹 She/her | 16 | Chicago |#CFadvocacy 📷 Instagram: @hopeineverybreath

 Chicago, IL
Joined June 2020
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4Media
So excited to be virtually meeting with members of congress today to advocate for the development of new antibiotics under the PASTEUR Act with the Cystic Fibrosis Foundation on Teen Advocacy Day! #CFAdvocacy
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How are your celebrating ROSE UP Day? Follow along on Instagram as members of the CF community share how they are participating in #ROSEUPCF.
A white graphic reads, "ROSE UP, Friday, September 17. Follow along on Instagram as members of the CF community ROSE UP. 10 a.m. ET: Megan Riordan | @hopeineverybreath 11 a.m. ET: Hunter Vigneron | @huntervigneron 12 p.m. ET: Jen Chamberlain | @thecandcdiaries 1 p.m. ET: LIVE with Bryan Takayama, Caleigh Haber-Takayama, and Somer Love | @fight2breathe 2 p.m. ET: Crystal Bridgewater | @bottleofcrys_al 3 p.m. ET: LIVE with Fizzy Marie and Marissa Benchea | @thefizzbit 4 p.m. ET: Sicily Russo | @sicily_pop 5 p.m. ET: LIVE with Chad Riedy and KC White | @cjriedy 7 p.m. ET: Grand Finale: ROSE UP Live Celebration on the CF Foundation Facebook or https://on.cff.org/ROSEUP"

ALT A white graphic reads, "ROSE UP, Friday, September 17. Follow along on Instagram as members of the CF community ROSE UP. 10 a.m. ET: Megan Riordan | @hopeineverybreath 11 a.m. ET: Hunter Vigneron | @huntervigneron 12 p.m. ET: Jen Chamberlain | @thecandcdiaries 1 p.m. ET: LIVE with Bryan Takayama, Caleigh Haber-Takayama, and Somer Love | @fight2breathe 2 p.m. ET: Crystal Bridgewater | @bottleofcrys_al 3 p.m. ET: LIVE with Fizzy Marie and Marissa Benchea | @thefizzbit 4 p.m. ET: Sicily Russo | @sicily_pop 5 p.m. ET: LIVE with Chad Riedy and KC White | @cjriedy 7 p.m. ET: Grand Finale: ROSE UP Live Celebration on the CF Foundation Facebook or https://on.cff.org/ROSEUP"

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Happy ROSE UP day!!! #ROSEUPCF
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Today I wanted to thank this year’s #ROSEUP corporate sponsors: @AbbVie, our national peer to peer silver sponsor, @VertexPharma, our ROSE UP premier sponsor, @Walgreens, and our ROSE UP bouquet sponsor, @NestleNHSc. Together, we can move one step closer to a cure for CF!
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Please support the development of new antibiotics by cosponsoring the PASTEUR ACT. Your vote will save the lives of so many, especially people fighting cf. #CFAdvocacy @SenatorDurbin @SenDuckworth @RepMikeQuigley @CFF_Chicago @CF_Foundation #PASTEURAct #cysticfibrosis
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Pleased to reintroduce the PASTEUR Act with @USRepMikeDoyle, @SenatorBennet, and @SenToddYoung today.   Investing in pandemic preparedness is critical, and this legislation brings together the public and private sectors to address antimicrobial resistance.
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We applaud @SenatorBennet, @SenToddYoung, @USRepMikeDoyle and @RepDrewFerguson who reintroduced the PASTEUR Act today in Congress. This bill will strengthen the antibiotics pipeline, making it easier for novel antibiotics to reach patients. #CFadvocacy cff.org/About-Us/Media-Cente…

CF Foundation Affirms Support of the Introduction of the PASTEUR Act

Proposed legislation has the potential to revitalize the global marketplace for novel antibiotics, bringing urgently needed medicines for drug-resistant infections to patients.

cff.org
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.@SenatorDurbin The shortage of effective antibiotics to combat antibiotic resistance is a top global public health concern that can no longer be ignored. Just ask Megan, a CF fighter in Chicago, who is advocating for a sustainable antibiotics pipeline. #CFadvocacy
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While antibiotic-resistant infections are a hallmark of life with #cysticfibrosis, they are a threat to all of us. Globally, 700,000 people die each year from drug-resistant infections. 35,000 of those are Americans. We must address this issue.
Did you know? 3 out of 7 of the most common infections in people with CF are also serious threats to the general population according to the CDC.

ALT Did you know? 3 out of 7 of the most common infections in people with CF are also serious threats to the general population according to the CDC.

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We need congress to consider expanding paid leave during the pandemic to people with Cystic Fibrosis. Families shouldn’t have to choose between their health and their pay check. @RepMikeQuigley @SenDuckworth @SenatorDurbin #CFadvocacy @CFF_Chicago @CF_Foundation
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