@boldlygrowing

I am an Autistic woman working in the autism field. All views are my own, not those of Macquarie Uni or Aspect. I mainly tweet while at conferences.

 Sydney, New South Wales
boldlygrowing.com
Joined July 2014
  • Tweets978
  • Following626
  • Followers537
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A bit surreal & exciting to have my first paper as first author out just before attending my first INSAR. Thanks @liz_pellicano & co-authors for your insights & support - ‘We have so much to offer’: Community members’ perspectives on #autism research” doi.org/10.1177/136236132412…

‘We have so much to offer’: Community members’ perspectives on autism research - Tori Haar,...

Autism research is on the cusp of significant change. There are mounting calls from Autistic self-advocates, researchers, and other scientists for a paradigm sh...

journals.sagepub.com
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Pleased to share a new preprint reporting community involvement in autism research. In Jan 2021, @journalautism introduced mandatory reporting of community involvement. Our team of autistic and non-autistic researchers evaluated the impact of this policy. osf.io/g89w4
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This sounds like it will be an amazing issue
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I was dx'd too long ago to qualify for this study on #latediagnosis and #mentalhealth clinicians, but a worthwhile study for those who meet the criteria & are interested in it. In the twitter thread it's confirmed there are two #ActuallyAutistic people on the project's team.
Adi Raber@AdiRaber9 Jan 2023
No More “Hidden” Autistic Adults… Are you an Autistic adult living in Australia? Were you diagnosed as an adult from 2013 onwards? Do you want to help improve how mental health clinicians identify and diagnose autism in adults? Consider participating in our study!
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RT @AIRPNetwork
AIR-P Network@AIRPNetwork1 Dec 2022
Missed our webinar with @DrMBotha about the #MinorityStressModel and how it impacts health outcomes in the #autistic community? No worries, we have the recording here for you!: bit.ly/aucdwebinars
RT @rl_grove
Rachel Grove@rl_grove19 Oct 2022
Join us for the launch of our autistic-led research priorities for girls, women and gender diverse people in Australia. For more information and to register please visit: tinyurl.com/56mkvtna @tess_moodie @UTSResearch @UTSSocialImpact
Online Webinar Research priorities for autistic girls, women and gender diverse people in Australia Friday 11th November 11.30 – 12.30pm (AEDT / Sydney time) Join us for the launch of our autistic-led research agenda for autistic girls, women and gender diverse people* in Australia. This has been developed by autistic people, for autistic people. It will highlight the research areas that are important for the autistic community. * this includes cis women and girls, transgender, non-binary, gender diverse people and anyone who was socialised or identifies as a woman or girl This will be a free accessible online event, with captions and Auslan interpretation. Register here: https://tinyurl.com/56mkvtna Please register by 7th November 2022

ALT Online Webinar Research priorities for autistic girls, women and gender diverse people in Australia Friday 11th November 11.30 – 12.30pm (AEDT / Sydney time) Join us for the launch of our autistic-led research agenda for autistic girls, women and gender diverse people* in Australia. This has been developed by autistic people, for autistic people. It will highlight the research areas that are important for the autistic community. * this includes cis women and girls, transgender, non-binary, gender diverse people and anyone who was socialised or identifies as a woman or girl This will be a free accessible online event, with captions and Auslan interpretation. Register here: https://tinyurl.com/56mkvtna Please register by 7th November 2022

RT @CydaAu
CYDA@CydaAu17 Oct 2022
CYDA is looking for a Policy Officer to join our team! We are based in Melbourne, but we are accepting applications from other locations, and we offer the option to work from home. People with disability are highly encouraged to apply! More info here: ow.ly/ppJT50LbjRW
[ID: Text next to a graphic of a bullhorn reads: "Now hiring! CYDA is looking for a policy officer. Full-time, fixed-term until June 2023 with possibility of extention." CYDA logo and website (cyda.org.au) sit at the bottom.]

ALT [ID: Text next to a graphic of a bullhorn reads: "Now hiring! CYDA is looking for a policy officer. Full-time, fixed-term until June 2023 with possibility of extention." CYDA logo and website (cyda.org.au) sit at the bottom.]

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I wish it wasn't but this thread by @DrMBotha is too true, and too common a misconception of #actuallyautistic experience, not to share.
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Every so often I think I should use #linkedin more then I go on there for like 2 mins & instantly get multiple predatory DMs asking me to sign up the little start up I work for to buying $5k+ of signage or wellness programs or asking me to apply for jobs unrelated to my expertise
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RT @liz_pellicano
Liz Pellicano@liz_pellicano5 Sep 2022
How can autistic adults thrive? This should be one of the questions at the heart of autism research. Excited to have examined it with an amazing team of autistic and non-autistic co-authors. You can read it here (should be free to access): rdcu.be/cUZkz
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RT @rl_grove
Rachel Grove@rl_grove2 Sep 2022
Only one week left for our survey. We would love to hear from more autistic young people in Australia about what research should focus on. Please RT!
RT @drgeorgethecrip
George Taleporos@drgeorgethecrip3 Aug 2022
Very excited to be interviewing @billshortenmp next week about the #NDIS. If you could ask him one question, what would it be? Here is my last interview for context: youtube.com/watch?v=YohKWJP4… @criprights @EveryAustralian @Adv4Inclusion @PWDAustralia @SummerFoundtn @kurtfearnley

Election 2022 and the NDIS: Interview with Bill Shorten, MP

Dr George Taleporos speaks to Shadow Minister for the NDIS, Bill Sh...

youtube.com
I'm Tori, the others would like me if I was better at sport
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RT @NLRThornton - #autismresearch study on #Autistic adults attitudes towards recreational drugs including their potential for use as clinical treatments for #mentalhealth conditions. Only a short survey but an important area. Caregivers can also complete the survey (1/2)
Nicollette Thornton@NLRThornton29 Jul 2022
Seeking Adults on the Autism Spectrum for participation in a survey. For more info or to participate: bit.ly/3BGVRuz
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Note: this is not connected with Macquarie Uni or any other org I'm associated with. I just went to high school with one of the investigators a long time ago & saw them sharing it. (2/2)
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Anyone know of any charities/orgs in Brisbane who might be able to help a single mother who had all her kid's toys stolen?
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and a bunch of other household stuff - but it's her kids things she's most concerned about
RT @AutismMq
Autism MQ@AutismMq30 Jun 2022
🚨 We are excited to launch a new study 🚨which aims to better understand the #Autistic & #autism communities’ views on autism research today. Expressions of interest are open for those living in #Australia & the #UnitedKingdom. For more info, visit: limesurvey.mq.edu.au/index.p… 1/2
Image description Title: AUTISM RESEARCH TODAY Main text: Are you an Autistic adult? Are you a parent or guardian of an Autistic person? Do you work with Autistic people (e.g. as an educator, clinician, or in allied health)? Are you an autism researcher? If you answered "YES" to ANY of these questions, then we would love to know what YOU think about autism research today. Expressions of interest are now open for those living in Australia or the United Kingdom. To find out more about participating in this co-produced study: Visit: https://limesurvey.mq.edu.au/index.php/588634?lang=en OR Email: autism.research.mq@gmail.com Image description: At the bottom of the page, there are logos of the five universities associated with the study: Macquarie University, UCL, Arizona State University, University of Portsmouth and University of Stirling.

ALT Image description Title: AUTISM RESEARCH TODAY Main text: Are you an Autistic adult? Are you a parent or guardian of an Autistic person? Do you work with Autistic people (e.g. as an educator, clinician, or in allied health)? Are you an autism researcher? If you answered "YES" to ANY of these questions, then we would love to know what YOU think about autism research today. Expressions of interest are now open for those living in Australia or the United Kingdom. To find out more about participating in this co-produced study: Visit: https://limesurvey.mq.edu.au/index.php/588634?lang=en OR Email: [email protected] Image description: At the bottom of the page, there are logos of the five universities associated with the study: Macquarie University, UCL, Arizona State University, University of Portsmouth and University of Stirling.

Thrilled to have these Guides out in the big wide world! Please take a look!
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A big thanks to the @guardian for publishing this little nugget from me upcoming memoir situation. And thanks to all y’all who are saying the nice things about it. Glad it resonates. #TenStepsToNanette theguardian.com/stage/2022/m…

Hannah Gadsby on her autism diagnosis: ‘I’ve always been plagued by a sense that I was a little out...

Even as a child, the comedian knew her brain was atypical. But it was only in her late 20s that her anxiety, depression and meltdowns finally made sense

theguardian.com
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