Improving the lives of children affected by rare, incurable neurological disorders.
Cleveland, OH
Joined May 2023
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A big thank-you to Pub Frato and owners Chris and Lynda Frate for their continued support of the B Brave Foundation! As one of our very first corporate sponsors, they have been part of the B Brave family for years. Help us thank them with a visit!
When a child needs complex care, siblings adjust too: changed plans, quiet worries, less one-on-one time. Support can be a ride to practice or an afternoon that is just theirs.
A nurse who explains the plan one more time. A social worker who finds the parking voucher. Caregiver Appreciation lets families and teams say thank you with a small gift.
Round-the-clock care takes a toll on the caregiver too. B Brave's Counseling and Self Care Fund offers up to $500 a year for counseling, therapy, or a gym membership. Learn more:
Clinicians: a referral to B Brave can help after a rare, incurable diagnosis, when costs build, or when a family feels isolated. Share their situation and we will follow up:
Gas to reach the hospital. Groceries during a long admission. B Brave's Urgent Need Fund helps with costs like these through gas, grocery, meal, and transportation cards, up to $100 a year.
A broad offer can leave the planning with the family. Try one specific offer: “Could I drop off dinner Thursday?” Ask first, accept no, and follow through. More ideas:
Lodging during a hospital stay is one cost a family may face. B Brave’s Children & Families Financial Assistance Fund considers needs like this, up to $2,500 annually depending on funding. Learn more:
After a child’s rare neurological diagnosis, a family may not know what help to ask for yet. A caring introduction can be a place to start. Refer a child to B Brave:
Every Comfort Cart eventually runs low, a book gets taken home, a game gets played out. Help us stock the next moment of relief for a family on an inpatient floor:
Rare disease families don't need help just once a year. Bridge Builders give monthly or annually so B Brave can respond the moment a family reaches out, not just at fundraiser time. Join here:
Most medical teams see rare, incurable neurological disorders rarely, if ever. A B Brave speaker can help your team have better conversations with the families you serve. Request one:
Named for Joey Scaparotti, the Joey Bear Grant gives bereaved families $500 in direct support for counseling, sibling care, or memorial costs. Details:
International Day of Charity is September 5. If you've been looking for a way to give, this is a good moment to become a Bridge Builder for a family facing a rare, incurable neurological disorder:
National Grief Awareness Day is August 30. Grief from losing a child doesn't end after the first days. Our Joey Bear Grant offers practical support in the weeks and months after:
Project Rare documents real families navigating rare, incurable neurological disorders. It helps change how healthcare understands and treats these families. Watch:
Nurses, therapists, and child life specialists carry rare disease families through hard days. Our Caregiver Appreciation Program recognizes them and connects families to that trusted care team:
If you're a clinician or social worker with a family navigating a rare, incurable neurological diagnosis, you can refer them directly to us. Start here:
