Clare Francis Research fellow at IGC Uni Edinburgh (Ponting Lab), funded by Action for ME.

Edinburgh
Joined April 2021
Thank you so much for writing this @CGATist If anyone wants to understand the dire situation people with ME/CFS (including myself) are faced with, do please read this very moving piece.
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Excited to be presenting on how we are tackling the question: "Do ME blood factors change the behaviour of cells?"
1/2 🔬 Webinar: Updates from the Genetics Centre of Excellence (GCoE) 📆24 October ⏰2 – 3pm The webinar is free to attend - full details & registration on our website 👇 actionforme.org.uk/news/gene… Slides & recordings will be shared after! #pwME #MECFS #MyalgicE #MEResearch
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Replying to @PSPforMECFS
@PSPForMECFS has just launched a researcher toolkit for #MECFS. ➡️ shorturl.at/5qxYT Here researchers can find funding opportunities, guides to embedding PPI, researcher application support & more.
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Thank you so much @sjmnotes for writing about our project in your excellent blog. We really enjoyed discussing this work with you and will do everything we can to make it a success!
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With your help, #DecodeME has built the world’s largest data set on ME/CFS. We are now welcoming data access applications from researchers who wish to use this in studies into ME/CFS and other diseases. Find out more ➡️ shorturl.at/wDEKQ
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We still urgently need 30 more healthy volunteers to carry out the study as planned. Please share with anyone eligible/who can spread the word in Sheffield! Volunteers get a £25 shopping voucher. Thanks to all who signed up & shared so far, every sample makes a huge difference!
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A huge thank you to everyone who spread the word and signed up! We now have enough potential healthy volunteers and we are working our way through the sign-ups we have not yet contacted.
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We believe we now have enough healthy participants and are stopping new invitations. Thank you so much to everyone who spread the word and who took the time to sign up! Our small team is working through all of the sign ups so far. We are really grateful for all your support!
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Female healthy participants needed for ME/CFS study in Sheffield! Can you take part in our study as a healthy participant? Or if you're an ME/CFS patient, can you share this flyer with a friend (not blood related)? Find out more at: forms.gle/MWPVwXZzivpc8wui9 #MEResearch #MECFS
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A huge congratulations to Audrey Ryback who has been offered the very first Clare Francis Research Fellowship funded by @actionforme supervised by @CGATist 👏#MECFS
We are thrilled to announce that the very first Clare Francis Research Fellowship has been awarded to Audrey Ryback. ow.ly/iCxf50PR13c
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I'm honored and delighted to be the first Clare Francis Research Fellow funded by @actionforme! We'll do everything we can to make this project a success and contribute to better understanding the biology of ME/CFS.
We are thrilled to announce that the very first Clare Francis Research Fellowship has been awarded to Audrey Ryback. ow.ly/iCxf50PR13c
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I've asked friends & family to put up DecodeME posters in public places: the local library, GP and a pharmacy. So far 6 posters have gone up- hoping to encourage others to do the same. Let's reach people who aren't on social media! @DecodeMEstudy @actionforme #pwME #LongCovid
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We’re pleased to introduce AIRRSHIP, a tool for simulating human B cell receptor repertoire sequences biorxiv.org/content/10.1101/…. AIRRSHIP is Python-based (run at command line or import as module), no dependencies, very easy to install. Docs @ airrship.readthedocs.io/
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Applications now open for @wellcometrust Hosts, Pathogens and Global Health 4-year PhD programme @EdinburghUni @wt_hpgh Fully-funded and open to all students from the UK and overseas. Apply by 11 January 2022 for entry in October 2022. All details ow.ly/Dxjw50Gqwa9
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As a reminder, we are looking for postdocs to join the ME/CFS team. Join our R01 funded project with Ron Davis & Mark Davis on Determining Immunological Basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome web.stanford.edu/group/stein…
Pls RT: Developed #MEcfs after Long Covid? Sign up for the world's largest genetic study into ME/CFS. We're now also including up to 5k people who developed the illness after #LongCovid. Register your interest and you'll be first to know when we launch: decodeme.org.uk/
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Wenn schon @NICEComms nicht den Mut hat, den fehlgeleiteten BPS-Weg bei #MECFS zu beenden, dann sollten zumindest diejenigen, die den Betroffenen wirklich helfen wollen, klar sagen: #MECFS ist keine psychische Erkrankung. #GET und #CBT fügen Schaden zu.
NICE pauses publication of updated guideline on diagnosis and management of ME/CFS. Read more here: bit.ly/2W2aGES
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So disappointed that NICE decided to pause publishing their revised guidelines for #MECFS. They've reviewed the evidence: Graded exercise doesn't work & CBT is not an adequate "treatment"!
It's a false premise expecting the NICE guidelines to be accepted by all and only then can it be published. You follow the evidence. The evidence is very, very clear to remove treatments that are at best useless, and at worst, capable of great harm. #MECFS #PwME @NICEComms
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