@alaceywill

Zombified by a severe neuro-immune disorder called myalgic encephalomyelitis.

 Massachusetts, USA
Joined August 2017
  • Tweets26.4K
  • Following2.4K
  • Followers1.5K
2.4KMedia
💯‼️
Alexandria Ocasio-Cortez
@AOC25 Jun 2022
Replying to @AOC
The President & Dem leaders can no longer get away with familiar tactics of “committees” and “studies” to avoid tackling our crises head-on anymore: - Restrain judicial review - Open clinics on federal lands - Court expansion - Expand Fed access/awareness of pill abortions - etc
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ME Amanda☮️ retweeted
irontree@IrontreeMedia5 Oct 2022
Mysterious things are happening in 'Toby and the Silver Blood Witches', an award-winning, heartfelt story from Sally Doherty. It's an ideal adventure for any 9-12 year old who loves tales filled with action, mystery and wonder. #kidlit | #booktrailer by irontree.co.uk
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ME Amanda☮️ retweeted
#MEAction Network@MEActNet19 Sep 2022
The #LongCovid & #MECFS community will protest at the White House TODAY at 12 pm ET to tell @POTUS that #CovidIsNotOver & to call on him to declare a #NationalEmergency. Activists are planning acts of civil disobedience to send a message. Livestreamed here. #MillionsMissing
People sitting around a table making protest signs. The person pictured has on a mask

ALT People sitting around a table making protest signs. The person pictured has on a mask

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I would love to understand the pain I have where my arms and legs connect to my body. It’s excruciating. Feels like they’re being ripped from my body or something is gnawing at the joints. Would also like to know what I can do about it. Any ideas?
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ME Amanda☮️ retweeted
Christina@christina4hope13 Aug 2022
got an important question: For which viruses did you get tested In conjunction with ME/CFS, fibromyalgia , CCI?. I have a few and want to get more tests done. They cost money so I want to get the right ones done. thank you. Hugs to all who are fighting chronic viruses in body.
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🤣😂🤣
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ME Amanda☮️ retweeted
Tom Kindlon@TomKindlon11 Aug 2022
#Birmingham, #Alabama, USA Men ages 39-65 needed for research study involving #fibromyalgia +/or #chronicfatiguesyndrome Participants earn up to $750 for the completion of this study residency.peds.uab.edu/repor… Jarred Younger study #MyalgicE #Fibro #MEcfs #CFS #CFSME #FM #FMS
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What test would show enough blood not getting to head when upright? I am supposed to have MRI ti check for hypoperfusion etc but I will be lying down and the concussed feeling is much worse when I try to sit or stand. #mecfs
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ME Amanda☮️ retweeted
Billy Hanlon@bhanlon1510 Aug 2022
"Physical therapists have a lot to learn about post-viral fatigue in the wake of a “tsunami” of long COVID patients" scienceline.org/2022/08/phys…

Physical therapists have a lot to learn about post-viral fatigue in the wake of a 'tsunami' of long...

Some practitioners say that a better understanding of chronic fatigue rehabilitation is essential in order to help long COVID patients.

scienceline.org
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Lovely #pwME, I need your help again! My book has made it to the finals of the #WriteBlendAwards. It features a young carer whose mum has #MECFS. Please vote for Toby and the Silver Blood Witches if you can! It would be amazing if a book about Severe ME won 🤞🤞 #SevereMEDay
Write Blend@WriteBlendbooks8 Aug 2022
Replying to @WriteBlendbooks
Middle Grade Finalists Autumn Moonbeam Dance Magic @FinlaysonPalmer Extraordinary Adventures of Alice Tonks @Emilie_London Small! @MissDePlume Toby and the Silver Blood Witches @Sally_writes
11%Alice Tonks
31%Autumn Moonbeam
21%Small!
37%Toby Silver Blood Witches
527 votes • Final results
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Hey #pwME I'm making a mini doc on severe ME/CFS to raise money for OMF. I need pic's of a few brave bedbound folks to be featured in the vid. Could anyone help? DM if so, thanks. 👍🙏
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ME Amanda☮️ retweeted
Christina@christina4hope27 Jul 2022
looking for lyme Doctor in Munich Germany. If anyone knows of one please DM. I am desperate.If possible one on the heakth service
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ME Amanda☮️ retweeted
Nerdist
@nerdist26 Jul 2022
Stephen King's The Talisman could be a huge part of #StrangerThings 5 trib.al/FMeJrkD
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Any #pwME have experience with candesartan for migraine? Feeling even more woozy and lightheaded than usual.
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Universe, we need a win here!!!💫✨
The New York Times
@nytimes24 Jul 2022
Beto O'Rourke is raising more money than Greg Abbott in the race for Texas governor, and polls show a single-digit contest between them. Suddenly, improbably, perhaps unwisely, Texas Democrats are again daring to think that maybe this could be the year. nyti.ms/3J5OG0C
Beto O'Rourke stands on a stage and points while surrounded by supporters at a campaign rally. Headline reads, "After Recent Turmoil, the Race for Texas Governor Is Tightening." Photo by Montinique Monroe.

ALT Beto O'Rourke stands on a stage and points while surrounded by supporters at a campaign rally. Headline reads, "After Recent Turmoil, the Race for Texas Governor Is Tightening." Photo by Montinique Monroe.

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ME Amanda☮️ retweeted
John K@j_b_kennedy22 Jul 2022
As someone affected by #longcovid it still shocks me that #ME sufferers have been going through this experience for decades & still managing against all odds to keep going. If LC has done one thing, it’s opened my eyes to the strength & enduring determination of these people ❤️
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I've never had a party trick or a talent. Lying on the floor a lot with #ME I've mastered the ancient art of remote control and mobile phone balancing on the carpet. Just broke my record - 1 hour and 12 minutes. It's the simple things in life. #MyalgicEncephalomyelitis #pwME
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ME Amanda☮️ retweeted
Tom Kindlon@TomKindlon22 Jul 2022
🧵 USA: CDC: School-Based Active Surveillance (SBAS) of ME/CFS Among Schoolchildren, comments invited until 20th Sept 2022 federalregister.gov/document… #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #CFIDS #PwME #YPwME #YPwMEs #YPwC #YPwCs #CFSME Looks promising 1/

Proposed Data Collection Submitted for Public Comment and Recommendations

The Centers for Disease Control and Prevention (CDC), as part of its continuing effort to reduce public burden and maximize the utility of government information, invites the general public and other...

federalregister.gov
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ME Amanda☮️ retweeted
Amy Boylan@amyboylanwrites21 Jul 2022
Allergic people in the USA: anyone able to get hold of #nizatidine?I understand there’s a supply squeeze. Can’t tolerate famotidine. Any thoughts on alternatives, please? I’m on ketotifen, so not sure if #Cromolyn is possible? TY 🙏 #H2Blockers #MCAS #LongCovid
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