
States should enact #RightToTry measures to protect the fundamental right of people to try to save their own lives. Designed by the @GoldwaterInst
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Now is the time! Congress has introduced the Right to Try for Individualized Treatments Act.
The bill would help patients with rare diseases access personalized gene therapies when no approved treatment exists—offering hope to families facing impossible odds.
🤖 Made with AI
“All of a sudden I was no longer dying. All of a sudden I was no longer sick. I mean, it was literally night and day within a week. I was an entirely different person," Maya says...
youtu.be/gv20qrSSla0
🚨 The Right to Try for Individualized Treatments has now passed in TEN STATES!
When Kendra Riley's daughters were diagnosed with a rare, fatal disease, she had to raise hundreds of thousands to travel to Italy for treatment that saved her daughter Keira’s life.
Patients now have hope in TEN STATES—and we’re just getting started.
Read about the Right to Try for Individualized Treatments here: righttotry.org
🔥 A WORTHY CAUSE. 🔥
The Right to Try for Individualized Treatments is gaining momentum, and the movement is on fire. Patients deserve this legislation, and access to the treatments they need shouldn’t be out of reach.
Let’s keep pushing forward! 💪
It’s #RareDiseaseDay ❤️🩹
30 million Americans suffer from rare diseases every year.
You can support, learn about the Right to Try for Individualized Treatments, and watch our interview with @Elijahjstacy here: youtu.be/GeAkA-qLEvM
Keira needed help, but hope was an ocean away.
Patients desperate for a chance at life are often forced to travel to another country to access treatment that could save their life.
Read about Right to Try for individualized treatments here: goldwaterinstitute.org/keira…
Matt Bellina was a U.S. Navy pilot with a young family and a bright future - until a terminal ALS diagnosis left him with little hope.
But then Matt started an investigational treatment under the federal #RightToTry law, and he started to get better.
The Rileys had to move to Italy to save their baby daughter Keira's life after she was diagnosed with a rare disease.
#RightToTry 2.0 ensures outdated federal regulations don't keep individualized treatments - like the gene therapy that saved Keira - out of reach.
Keira Needed Help, But Hope Was An Ocean Away
Why we need #RightToTry 2.0
Baby Keira needed cutting-edge gene therapy that could save her life, but FDA red tape meant it was out of reach.
We need #RightToTry for Individualized Treatments so lifesaving treatments are accessible to patients who need them the most: righttotry.org/people/




