We bring together compelling evidence from autistic people and world-leading research; and use it to create action that improves autistic people’s lives.

Cambridge (UK)
Joined January 2013
WE NEED YOU! Today, we are launching our most ambitious community survey yet, and we need to hear from as many of you as possible to have the biggest impact. The Government has data about how many people ask for autism and ADHD assessments, but it doesn't have good evidence about why. This missing data means the Government doesn't understand the rise in demand for assessment. Our survey will bring the reality of your lived experience directly to the Government. If you, your child or someone you support has been on a ADHD or Autism waitlist at any point over the last 14 years, we want to hear from you. You’ve waited long enough. Let’s make sure your experience is finally heard. 🔗 Take part here:autismaction.qualtrics.com/j… Help us reach as many people as possible by sharing this post! #AutismAction #Autism #ADHD #Neurodiversity
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Join our Community Network to help shape our work, influence government policy and change the system. It takes just 2 minutes to join: autismaction.org.uk/communit… #Autism #Autistic #AutismAction
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Join our Community Network to help shape our work, influence government policy and change the system. It takes just 2 minutes to join: autismaction.org.uk/communit… #Autism #Autistic #AutismAction
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Today has seen the publication of the Independent review into prevalence and support for mental health conditions, ADHD and autism, also known as the Fonagy Review. Alongside this the Government has published their response and we have also seen lots of headlines in the media. We have looked at one aspect of the report: have they answered the central question ‘What is the prevalence of autism’? #autism #adhd #AutismAction
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Join our Community Network to help shape our work, influence government policy and change the system. It takes just 2 minutes to join: autismaction.org.uk/communit… #Autism #Autistic #AutismAction
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Our survey on ADHD and autism assessments is closing soon and we want to hear from as many people as possible. If someone you know has been on a ADHD or autism waitlist at any point over the last 14 years, we want to hear from them. 🔗 Take part here: autismaction.qualtrics.com/j… #AutismAction #Autism #ADHD #Neurodiversity
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Join our Community Network to help shape our work, influence government policy and change the system. It takes just 2 minutes to join: autismaction.org.uk/communit… #Autism #Autistic #AutismAction
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The Department of Health and Social Care is seeking views on your experience with mental health care. Participants will be invited to join two or three meetings between October 2026 and March 2027, with a choice of online, face-to-face, group or one-to-one sessions. They will receive an £80 voucher for each meeting attended. Apply to take part by 28 September: thepsc.co.uk/page/mental-hea… Note, this work is not run by Autism Action. If you have any questions, please email the organisers at [email protected]
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Our survey on ADHD and autism assessments is closing soon and we want to hear from as many families as possible. If your child has been on a ADHD or autism waitlist at any point over the last 14 years, we want to hear from you. 🔗 Take part here: autismaction.qualtrics.com/j… #ADHD #Autism #AutismAction
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If you know someone who has been on a ADHD or autism waiting list at any point over the last 14 years, help us reach them by sharing this post or the link to our survey: autismaction.qualtrics.com/.… #AutismAction #Autism #ADHD #Neurodiversity
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Join our Community Network to help shape our work, influence government policy and change the system. It takes just 2 minutes to join: autismaction.org.uk/communit…
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A big thank you to Nick & Guy who, earlier this month, put 36 years of friendship to the test to raise funds for Autism Action. Together, these legends ran a full marathon through Bordeaux’s summer heat and so far they’ve raised an incredible £816! Ready to run, walk, swim, or move for a good cause? Head over to our fundraising page to get started! autismaction.org.uk/support-… #ThankYouThursday
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Join our Community Network to help shape our work, influence government policy and change the system. Join here: autismaction.org.uk/communit…
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Join our Community Network to help shape our work, influence government policy and change the system. Join here: autismaction.org.uk/communit… #Autism
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We still need you! Take our community survey about ADHD and autism assessments: autismaction.qualtrics.com/j… If you, your child or someone you support has been an ADHD or Autism waiting list at any point over the last 14 years, we want to hear from you! #Autism #ADHD #AuDHD
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Join our Community Network to help shape our work, influence government policy and change the system. Join here: autismaction.org.uk/communit…
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We’ve launched a survey to research autism and ADHD assessment waitlists so we can let the government know the real reasons for the rise in assessment requests. Over the last decade, hundreds of thousands of people have entered the assessment process and the Government doesn’t have good evidence about why. That’s a problem, because it leads to assumptions and prevents good decisions about support. We need you, the people who know exactly why you’ve requested an assessment, to provide the answers. With your input, we can tell the Government exactly why so many people request ADHD and autism assessments. 🔗 Take part here: autismaction.qualtrics.com/j… #AutismAction #Autism #ADHD #Neurodiversity
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Join our Community Network to help shape our work, influence government policy and change the system. Join here: autismaction.org.uk/communit…
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How long has your wait been for ADHD or autism assessment? Share more about your wait time experience in our survey: autismaction.qualtrics.com/j…
30%Less than 12 months
10%1-3 years
30%3-5 years
30%5 years+
10 votes • Final results
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We’ve launched a research survey into ADHD and autism assessments. The goal is to bring the reality of your lived experience directly to the Government, who don’t currently understand the rise in demand for assessment. If you, your child or someone you support has been on a ADHD or Autism waitlist at any point over the last 14 years, we want to hear from you. 🔗 Take part here: autismaction.qualtrics.com/j… #AutismAction #Autism #ADHD #Neurodiversity
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