Hello friends, I’m reaching out on behalf of some friends. Their baby girl, 3 years old has been diagnosed with BPAN. I admit I do not know much about this disease but from a little research it appears to be extremely rare. I would love to connect this couple with someone who has information on BPAN who might be able to possibly help at least point them in the right direction. She is the most precious little girl and she is in need of some serious help. If any of my followers, especially the trusted Doctors that have stood up with so much integrity these past few years have any idea where I could send this couple for some help regarding BPAN please contact me, it could be life changing for this child and family. 🙏 @ChildrensHD