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Global
Joined January 2013
We are deeply saddened by the passing of Jose Drabwell, a beloved leader, advocate, and friend to the Primary Immunodeficiency community. We extend our deepest condolences to Jose’s family and friends; her legacy will live on through the lives she changed around the world.
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🌟Page 48 of the report highlights the efforts of the patient organization @EscudoAmor from El Salvador during #WorldPIWeek 2024! The organization had a strong social media presence during the week. bit.ly/WPIWOutcomeReport
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🌟Page 36 of the report highlights the efforts of the Belgian patient organization @infobubbleid during #WorldPIWeek 2024! Information stands were set up in various hospitals with doctors and specialists present to answer questions. bit.ly/WPIWOutcomeReport
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🌟Page 44 of the report highlights the efforts of the Chinese patient organization #PIDCareChina during #WorldPIWeek 2024! A public education campaign and exhibition was organized at the China Pharmaceutical University. bit.ly/WPIWOutcomeReport
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🌟Page 49 of the report highlights the efforts of the Estonian patient organization PIDESTONIA during #WorldPIWeek 2024! PIDESTONIA set up awareness-raising displays in various libraries, and held presentations at higher education institutions. bit.ly/WPIWOutcomeReport
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🌟Page 86 of the report highlights the efforts of the Ukrainian patient organization RID – Rare Immune Diseases during #WorldPIWeek 2024! An educational event was organized to spread information and raise awareness about PIDs. bit.ly/WPIWOutcomeReport
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🌟Page 83 of the report highlights the efforts of the Turkish patient organization @AllerjiDernegi during #WorldPIWeek 2024! Tree planting activities were organized to raise awareness on PIDs. bit.ly/WPIWOutcomeReport
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🌟Page 30 of the report highlights the efforts of the Argentinian patient organization @aapidp during #WorldPIWeek 2024! A virtual Congress was organized covering vaccination and access to care. bit.ly/WPIWOutcomeReport
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🌟 Page 65 of the report highlights the efforts of the Japanese patient organization @PID_Tsubasa during #WorldPIWeek 2024! A family day was organized, as well as a social media campaign to encourage blood and plasma donations. bit.ly/WPIWOutcomeReport
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🌟 Page 91 of the report highlights the efforts of the Vietnamese patient organization for primary immunodeficiency (VIETPIPS) during #WorldPIWeek 2024! VIET PIPS actively participated in the World PI Week #PIctureAwareness Contest. bit.ly/WPIWOutcomeReport
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🌟 Page 55 of the report highlights the efforts of the primary immunodeficiency organization Lind Iceland during #WorldPIWeek 2024. They organized educational meetings for nurses, and published a comprehensive brochure on primary immunodeficiencies. bit.ly/WPIWOutcomeReport
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