@WilhelmFound

For children with undiagnosed diseases - The #Undiagnosed . Works for World Congresses to start Programs (UDP) around the world to cooperate in Network UDNI

wilhelmfoundation.org
Joined January 2013
  • Tweets183
  • Following652
  • Followers714
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fb.me/2qJqQjnGb @WilhelmFound @swanusa @SWAN_UK @NIHClinicalCntr @ORDR @Orphanet @BEDISABILIABILI @FondazioneSR @Telethonitalia
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Wilhelm Foundation retweeted
Pathways@PathwaysOrg9 Feb 2017
RT @BHParenting: Searching for #ValentinesDay ideas, activities, or traditions, for all ages bit.ly/2l3jTG3 xitter.cf/BHParenting/status/829…
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15 days until @rarediseaseday 2017 #rarediseaseday Get involved via rarediseaseday.org xitter.cf/rarediseaseday/status/…
Rare Disease Day@rarediseaseday9 Feb 2017
'We love to play, we enjoy every single day.' #Research provides hope for Adam and Lea, who live with a #raredisease ow.ly/wqtI308QsMS
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Fantastic to see the @WilhelmFound at @rarediseasesint meeting last Friday in Geneva! #rdiGeneva xitter.cf/WilhelmFound/status/83…
Wilhelm Foundation@WilhelmFound11 Feb 2017
Replying to @WilhelmFound
@WilhelmFound participated in a great United Nations meeting in Geneva #rdiGeneva yesterday with @RDI @eurordis
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Wilhelm Foundation retweeted
Wilhelm Foundation@WilhelmFound11 Feb 2017
@WilhelmFound participated in a great United Nations meeting in Geneva #rdiGeneva yesterday with @RDI @eurordis
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Wilhelm Foundation retweeted
Mayo Clinic
@MayoClinic28 Apr 2016
New surgery for #scoliosis keeps teen agile and active mayocl.in/1VLQpev mayocl.in/1VLQpez
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Wilhelm Foundation retweeted
Stephen C. Ekker, Ph.D.
@scekker20 Feb 2016
Time for Dr Collins to visit the UDNI! xitter.cf/nihdirector/status/701…
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Wilhelm Foundation retweeted
Stephen C. Ekker, Ph.D.
@scekker20 Feb 2016
Finishing up the third undiagnosed disease international science conference. Honor working with world-changing physicians and scientists.
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Domenica Taruscio@DTaruscio22 Mar 2016
Quality of #raredisease Registries:Evaluation & Characteriz Results of @EPIRARE ISS project ncbi.nlm.nih.gov/pubmed/2699…
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Wilhelm Foundation retweeted
Domenica Taruscio@DTaruscio19 Mar 2016
Undiagnosed Diseases Network Intl: White paper for global actions ncbi.nlm.nih.gov/pubmed/2659… udninternational.org
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Wilhelm Foundation retweeted
orphanwriter@orphanwriter1 Mar 2016
For #undiagnosed: NIH UDN now has online application portal undiagnosed.hms.harvard.edu/ #abcDRBchat
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Wilhelm Foundation retweeted
orphanwriter@orphanwriter9 Mar 2016
From @NIH: Top 5 reasons to study #rarediseases & #undiagnosed 1.usa.gov/1K5buuX
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Domenica Taruscio@DTaruscio8 Mar 2016
E-RARE Strategic Workshop.Need for more coordination &independent evalution of RD activities #raredisease @istsupsan
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Wilhelm Foundation retweeted
Domenica Taruscio@DTaruscio5 Mar 2016
ISS:malattie rare,nasce una rete internazionale Usa-Italia per i pazienti senza diagnosi. RT tinyurl.com/z6vj9ec
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Wilhelm Foundation retweeted
Utah Rare@utahrare27 Feb 2016
Gina Szajnuk with @utahrare and @rareandundiagno kicked off the 2nd annual Utah Rare Symposium #RareDiseaseDay
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March 3 is World Birth Defects Day 1 in 33 babies are born with #BirthDefect #WorldBDDay bit.ly/1QV36T3
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Wilhelm Foundation retweeted
PMNCH@PMNCH3 Mar 2016
Spread the word – every child born w/a birth defect has the right to have a full & happy life #EWECisME #WorldBDday
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Wilhelm Foundation retweeted
Paula 🌼@paulamhv2 Mar 2016
Gracias! @Pontifex_es xitter.cf/dtaruscio/status/70396…
Domenica Taruscio@DTaruscio28 Feb 2016
Today Pope Francis sent a special blessing for rare patients & their families during the Angelus.RT #RareDiseaseDay
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Wilhelm Foundation retweeted
UDN@UDNconnect2 Dec 2015
Patients can apply to the UDN by visiting undiagnosed.hms.harvard.edu/…
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Wilhelm Foundation retweeted
Udninternational@UDNIss20 Feb 2016
3th Conference Undiagnosed Diseases Network International in Vienna: exciting & fruitful udninternational.org – at Vienna, Austria
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