Huge thanks to @HiltonGardenInn (midtown east) taking care of my mom and I after my unexpected 18-day emergency hospital stay at @sloan_kettering! Only wish we could stay till my appointments Monday... I’d pay or use points but yikes, no way around world pride prices? 😟

Saw primary oncologist today. Have eight more appts this week w/ everyone from neurosurgery to acupuncture. Showered this morning almost completely on my own and got lunch w/ friends. So tired now! Can’t decide what to do with this scraggly hospital beard now either!

Post-hospital video update. Be forewarned: there are tears! youtu.be/X0Gj1ldE7f8

@XanderpussRex @Jane_Says2

I’m so sick of being sick. I’m scared of my neuropathic pain. I’m worried about losing my manual strength and dexterity. And what the hell is this?

So this is my life now, I suppose.

Some of ya’ll been asking why I have such a hard time sleeping in the #hospital and all I can say is...

Vid 2/2: oh I needed sleep! had echocardiogram, going to sleep again w/ telemetry box attached! During the day there were no sudden surges, hope we have a night like that! Would love to get back to exercise and more PT! Come visit, will you? #hospital #sloankettering