Join #MEAction for a very modified movement class, specifically designed for people with ME. Led by Shannon Williams-Bramburger of Nourish Therapeutic Yoga, Friday 6 Nov, 7-7.30 pm GMT
tinyurl.com/4svxwpxs
4th PRIME online workshop Wed 28th Oct 2-5pm GMT will cover:
why neurology has become such an important area of research in ME/CFS
how findings are shaping future studies
& their potential to improve dx & identify therapeutic targets
Register in advance.
tinyurl.com/mr345t7s
Severe ME FB group - for those who identify with having severe ME to discuss and share ideas.
tinyurl.com/se3ndbcy
Dr Vanessa Velasco talks about Neutrophil Behavior in ME/CFS [23 mins] +Transcript +Chapters
tinyurl.com/5ferxmp7
Debra developed ME aged 40 & for 12 years she has been looking for holistic ways to treat herself for both ME & perimenopausal sxs. 38% of women with ME say menopause worsens their sxs & she knows what helps her may not help others. Much research is needed
tinyurl.com/2zfv8eey
Latest ME research from Prof Karl Morten and colleagues.
Saturday 7 Nov 2– 4:30 PM
In-person in Oxford and online via Teams. Register in advance.
tinyurl.com/2j49az35
Dr Jarred Younger gives a 10-month update on his attempts to get dextro-naltrexone developed for clinical use. [11 mins] +Transcript
tinyurl.com/3jerzpbz
Age UK's Benefits Calculator will provide an estimate of what benefits you cd be entitled to. The calculator is free to use & confidential. If you run out of time, you can save your calculation & come back to it later & pick up right where you left off.
tinyurl.com/2ksfz5y8
Elisabeth Klaar responds to recent Norwegian study on BPS approaches in order to stimulate discussion amongst therapists. "With tongue in cheek, I took a 'holistic' approach to issue & explored legal, ethical, social angles & even chucked in......."
tinyurl.com/44jmvw3p
September's PRIME symposium showcased current developments across ME research (e.g. MECFS Genetics, Rosetta Stone & DISCOVERME) & hosted discussion between researchers, industry partners and people with lived experience.
18 videos to watch
tinyurl.com/3f6bdfvr
MERUK invites ppl to take part in survey abt Orthostatic Intolerance in ME/CFS.
They "are collecting anon quotes from individs with confirmed or suspected ME/CFS on various core sxs to b used at our discretion online, in print & 4 internal org education"
tinyurl.com/3j58t6vb
The DWP has published guidance explaining how banks can be required to flag accounts where there is a possibility of fraud or error. However, banks cannot supply full statements or details of how you spend your money under this measure.
tinyurl.com/3bk792rt
MERUK gives an overview of Orthostatic intolerance (OI) in ME/CFS: what it is; lived experience; research; & management. “Be aware that people with ME/CFS may experience orthostatic intolerance, including postural orthostatic tachycardia syndrome (POTS).”
tinyurl.com/y37afz6b
Beth Dobbin ran for GB at Tokyo Olympics 5yrs ago. At 32, she spends more than 22hrs a day in bed. She is so determined to raise awareness of ME that's decimated her life, she is speaking out, despite knowing it cd trigger a brutal deterioration in health
tinyurl.com/bdzbs8at
The ME Association have updated their information booklet, ‘What Causes ME/CFS?', written my Dr Charles Shepherd.
tinyurl.com/2xyn783b
They have also published separately the infographic poster from the booklet for download.
tinyurl.com/5xkpad9w
Disabled people can now report media coverage that scapegoats and stigmatises them and contributes to the hostile environment many of them face in their daily lives, thanks to a new campaign.
tinyurl.com/3xbas9t6
OT Abby says that when illness or fatigue reduces your ability to do, you can still participate in world thru being moved by it. Beauty becomes meaningful form of connection, identity & presence, one that doesn’t rely on action, productivity, performance
tinyurl.com/3wfjuj54
OMF explains Multi-omics is a style of research that combines multiple layers of biological data, inc genomics, proteomics & metabolomics, to build a complete picture of what is happening inside body. An example: OMF's MOSAIC project
tinyurl.com/43d8jxdz
The WG's Wellbeing of Wales 2026 report presents a picture of mixed & gradual progress.
There are encouraging signs in several areas. But also significant challenges. Healthy life expectancy continues to fall. Health inequalities are widening.
tinyurl.com/y8hxynvc
The Department for Work & Pensions is secretly introducing changes to how it checks quality of disability assessments, risking claimant safety and increasing the chance of dodgy reports slipping through the net, according to the Disability News Service.
tinyurl.com/5uy68z98




