WAMES acts as a voice for people with ME/CFS, PVFS their carers, families and professionals. Website: https://xitter.cf/t.co/sL34tzYWHX Facebook and Instagram: WAMESMECFS

Wales
Joined April 2012
4th PRIME online workshop Wed 28th Oct 2-5pm GMT will cover: why neurology has become such an important area of research in ME/CFS how findings are shaping future studies & their potential to improve dx & identify therapeutic targets Register in advance. tinyurl.com/mr345t7s
1
4
55
Severe ME FB group - for those who identify with having severe ME to discuss and share ideas. tinyurl.com/se3ndbcy
1
24
Debra developed ME aged 40 & for 12 years she has been looking for holistic ways to treat herself for both ME & perimenopausal sxs. 38% of women with ME say menopause worsens their sxs & she knows what helps her may not help others. Much research is needed tinyurl.com/2zfv8eey
1
4
192
Dr Jarred Younger gives a 10-month update on his attempts to get dextro-naltrexone developed for clinical use. [11 mins] +Transcript tinyurl.com/3jerzpbz
3
7
196
Age UK's Benefits Calculator will provide an estimate of what benefits you cd be entitled to. The calculator is free to use & confidential. If you run out of time, you can save your calculation & come back to it later & pick up right where you left off. tinyurl.com/2ksfz5y8
1
39
Elisabeth Klaar responds to recent Norwegian study on BPS approaches in order to stimulate discussion amongst therapists. "With tongue in cheek, I took a 'holistic' approach to issue & explored legal, ethical, social angles & even chucked in......." tinyurl.com/44jmvw3p
2
36
September's PRIME symposium showcased current developments across ME research (e.g. MECFS Genetics, Rosetta Stone & DISCOVERME) & hosted discussion between researchers, industry partners and people with lived experience. 18 videos to watch tinyurl.com/3f6bdfvr
1
28
MERUK invites ppl to take part in survey abt Orthostatic Intolerance in ME/CFS. They "are collecting anon quotes from individs with confirmed or suspected ME/CFS on various core sxs to b used at our discretion online, in print & 4 internal org education" tinyurl.com/3j58t6vb
2
5
76
The DWP has published guidance explaining how banks can be required to flag accounts where there is a possibility of fraud or error.  However, banks cannot supply full statements or details of how you spend your money under this measure. tinyurl.com/3bk792rt
1
31
MERUK gives an overview of Orthostatic intolerance (OI)  in ME/CFS: what it is; lived experience; research; & management. “Be aware that people with ME/CFS may experience orthostatic intolerance, including postural orthostatic tachycardia syndrome (POTS).” tinyurl.com/y37afz6b
1
28
Beth Dobbin ran for GB at Tokyo Olympics 5yrs ago. At 32, she spends more than 22hrs a day in bed. She is so determined to raise awareness of ME that's decimated her life, she is speaking out, despite knowing it cd trigger a brutal deterioration in health tinyurl.com/bdzbs8at
6
17
203
The ME Association have updated their information booklet, ‘What Causes ME/CFS?', written my Dr Charles Shepherd. tinyurl.com/2xyn783b They have also published separately the infographic poster from the booklet for download. tinyurl.com/5xkpad9w
1
41
OT Abby says that when illness or fatigue reduces your ability to do, you can still participate in world thru being moved by it. Beauty becomes meaningful form of connection, identity & presence, one that doesn’t rely on action, productivity, performance tinyurl.com/3wfjuj54
1
34
OMF explains Multi-omics is a style of research that combines multiple layers of biological data, inc genomics, proteomics & metabolomics, to build a complete picture of what is happening inside body. An example: OMF's MOSAIC project tinyurl.com/43d8jxdz
1
28
The WG's Wellbeing of Wales 2026 report presents a picture of mixed & gradual progress. There are encouraging signs in several areas. But also significant challenges. Healthy life expectancy continues to fall. Health inequalities are widening. tinyurl.com/y8hxynvc
1
22
The Department for Work & Pensions is secretly introducing changes to how it checks quality of disability assessments, risking claimant safety and increasing the chance of dodgy reports slipping through the net, according to the Disability News Service. tinyurl.com/5uy68z98
1
20