We are an independent non-profit whose mission is to advance human health through global clinical research data sharing. Active updating paused as of Feb 2025.
Cambridge, MA
Joined March 2017
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Please note that as of February 2025, Vivli will no longer be actively posting updates on this account. You can find the most current information and updates about Vivli initiatives at the following locations:
LinkedIn: ow.ly/K7tT50USu66
Bluesky: ow.ly/9lrJ50USu67
Are you ready to unlock your clinical research data’s full potential? Share it with the research community! Our Vivli Study Submission Guide will take you through the process step by step: vivli.org/Study-Submission-G…
#datasharing #NIHdata #GREI
Congratulations to Dr. Jie Zha on your public disclosure, “A machine learning-based model to predict POD24 in follicular lymphoma: a study by the Chinese workshop on follicular lymphoma.” doi.org/10.1186/s40364-024-0… @xmuchina
Please join Vivli and RDCA-DAP on February 20 for a webinar on "Data Platform Partnerships to Promote Rare Disease Data Sharing." Register today! ow.ly/i6bu50UO3hl
Interested in finding a generalist repository to share and preserve your research data? The Generalist Repository Comparison Chart provides guidance and is updated regularly with new information and specifications: zenodo.org/record/7946938
#datasharing #datareuse #DMSP
Congratulations to Dr. Anne-Marie Dingemans on your public disclosure, “Body Weight Gain Associated With Alectinib in Patients With ALK+ Non–Small Cell Lung Cancer: Pooled Analysis of Individual Patient Data From Four Prospective Clinical Trials.” doi.org/10.1200/JCO-24-01579
Congratulations to Dr. Shenghong Zhang on your public disclosure, “Serum Albumin and Its Trajectory Are Associated with Therapeutic Outcomes in Ulcerative Colitis.” We’re proud to facilitate your access to data #ClinicalResearch doi.org/10.1016/j.cgh.2024.1…
Please join Vivli and Real Life Sciences on February 20 to learn more about "How to Build a Data Sharing Program While Protecting Participant Privacy." Register today! rlsciences.zoom.us/webinar/r…
Are you interested in using trial data to improve clinical decision tools? This researcher used @Vivli's generalist repository to explore improved prediction of therapeutic and adverse outcomes of interventions used in the treatment of advanced cancers. youtu.be/50fjlvZ1ynI
Congratulations to Dr. Zhi Xiao on your public disclosure, “Prognostic value of the baseline systemic immune-inflammation index in HER2-positive metastatic breast cancer: exploratory analysis of two prospective trials.” doi.org/10.1245/s10434-024-1…
Congratulations to @Changyushen312 on your public disclosure, “ Development and validation of the DOAC Score: a novel bleeding risk prediction tool for patients with atrial fibrillation.” doi.org/10.1093/eurheartj/eh… @bethisraellahey
Please join Vivli and RDCA-DAP on February 20, for our the Rare and Orphan Disease Program 2025 Webinar Series on Data Platform Partnerships to promote Rare Disease Data Sharing. Register today! c-path-org.zoom.us/webinar/r…
Congratulations to Dr. Ulrich Mansmann on your public disclosure, “Addressing treatment switching bias in the ALTA-1L trial with g-methods: exploring the impact of model specification.” doi.org/10.1186/s12874-024-0… @LMU_Muenchen
Thinking about requesting to reuse data from Vivli? Get tips and tricks on how to complete your Data Request Form: youtu.be/Kt_ECYv2Mi8
Have you got tips for preparing a data request form? Let us know! #DataSharing #DataReuse
Please join us Thurs January 23 for our next webinar, “Navigating Clinical Trial Data Sharing Under the New Declaration of Helsinki: Practical Steps for Instituting an Ethical and Effective Program” Register today! us06web.zoom.us/webinar/regi… #clinicaltrials #datasharing #opendata
Exciting collaboration! The Carpentries + GREI are empowering researchers with data/software skills to simplify workflows, boost FAIR practices & support open science. Workshops & webinars coming soon! Learn more: medium.com/@blog-grei/bridgi… #OpenScience #FAIRdata
Why share clinical research data? Learn more about how #DataSharing and #DataReuse contribute to the goals of advancing science and improving human health: vivli.org/why-share-your-cli…
Wondering how the Vivli platform works for #DataSharing or #DataReuse? Browse the Training playlist on our YouTube channel and learn how it can help accelerate your research: youtube.com/playlist?list=PL…
Are you preparing a grant application for the next NIH funding round and wondering how to budget for data management and sharing? FASEB has a new video guide with everything you need to know:
youtu.be/RSSzn9SwNQA?si=IRuy…
#DataSharing #DataManagement #DMSP #NIHData
Did you know that the Vivli repository now has 7,000+ trials with data from nearly 5 million participants? Explore today how #DataSharing can accelerate your next research project: search.vivli.org
#DataReuse #NIHdata #DataSharing
