@Unveiling_U

🦄 Pulling back the curtain to unveil the realities of life with rare and chronic illnesses

Joined November 2022
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🦄 New from Unveiling Unicorns Diabetes Awareness: Type 1 vs. Type 2, Explained Two very different conditions — one name. Read it here: unveilingunicorns.org/articl… #InvisibleIllness #ChronicIllness #DiabetesAwareness

Diabetes Awareness: Type 1 vs. Type 2, Explained - Unveiling Unicorns

November is National Diabetes Month. Here is what diabetes actually is, how type 1 and type 2 differ in causes and daily management, and why awareness matters for the chronic illness community.

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Type 1 is autoimmune — the body stops making insulin; type 2 involves insulin resistance or too little insulin. Both are serious invisible daily work, and neither is anyone's fault. Follow @Unveiling_U for daily resources for the chronic illness community. 💜
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One crumb can start a storm. 💚 Celiac disease: an autoimmune reaction where gluten triggers the immune system to attack the small intestine — not a fad. Share so the world takes celiac seriously. #UnveilingUnicorns #CeliacDisease (AI-assisted)
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🦄 New from Unveiling Unicorns How to Talk to Family About Your Diagnosis How to tell loved ones without draining yourself. Read it here: unveilingunicorns.org/articl… #ChronicIllness #RareDisease #InvisibleIllness

How to Talk to Family About Your Diagnosis - Unveiling Unicorns

Getting a rare or chronic diagnosis is hard enough without having to explain it. Here's a practical guide to telling family members — what to share, how to handle difficult reactions, and how to ask...

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Telling loved ones about your diagnosis can feel as hard as the diagnosis itself. This guide covers what to share, how to handle difficult reactions, and how to ask for the support you actually need. Follow @Unveiling_U for daily resources for the chronic illness community. 💜
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When your spine fights itself. 💙 Ankylosing spondylitis: inflammatory arthritis of the spine — morning pain, stiffness, deep fatigue, all invisible. Share with someone whose back pain runs deeper than it looks. #UnveilingUnicorns #AnkylosingSpondylitis (AI-assisted)
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🦄 New from Unveiling Unicorns Hashimoto's Thyroiditis The most common cause of hypothyroidism — what it is, how it's diagnosed, and life with it. Read it here: unveilingunicorns.org/articl… #InvisibleIllness #ChronicIllness #Hashimotos #ThyroidHealth

Hashimoto's Thyroiditis: The Immune System vs. Your Thyroid - Unveiling Unicorns

Hashimoto's thyroiditis is the most common cause of hypothyroidism in the United States — an autoimmune condition that slowly destroys the thyroid gland. Here's what it is, how it's diagnosed, and...

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Hashimoto's thyroiditis — the most common cause of hypothyroidism — slowly destroys the thyroid. This article covers what it is, how it's diagnosed, and what life with it looks like. Follow @Unveiling_U for daily resources for the chronic illness community. 💜
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🦄 New from Unveiling Unicorns EveryLife Foundation for Rare Diseases Your story can shape rare-disease policy. Here's how to start. Read it here: unveilingunicorns.org/resour… #RareDisease #InvisibleIllness #ChronicIllness #PatientAdvocacy

EveryLife Foundation for Rare Diseases - Unveiling Unicorns

Join Unveiling Unicorns in educating and empowering those affected by rare and chronic illnesses through community and support.

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EveryLife Foundation speeds rare-disease treatments through policy advocacy and patient engagement — including advocate training and Rare Disease Week on Capitol Hill. Follow @Unveiling_U for daily resources for the chronic illness community. 💜
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🦄 New from Unveiling Unicorns GARD — Genetic and Rare Diseases Information Center Searching for answers on a rare diagnosis? NIH's free GARD center is here to help. Read it here: unveilingunicorns.org/resour… #RareDisease #InvisibleIllness #ChronicIllness #GeneticDisease

GARD — Genetic and Rare Diseases Information Center - Unveiling Unicorns

Join Unveiling Unicorns in educating and empowering those affected by rare and chronic illnesses through community and support.

unveilingunicorns.org
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GARD is NIH's free Genetic and Rare Diseases Information Center. Ask their specialists your questions, browse thousands of condition pages, and find rare-disease specialists and clinical trials. Follow @Unveiling_U for daily resources for the chronic illness community. 💜
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🦄 New from Unveiling Unicorns Global Genes A nonprofit connecting the rare-disease community — toolkits, events, and advocacy skills. Read it here: unveilingunicorns.org/resour… #RareDisease #ChronicIllness #InvisibleIllness #RareCommunity
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Global Genes connects and empowers the rare-disease community worldwide — with patient toolkits, education on genetic testing and clinical trials, and the RARE Advocacy Summit. Follow @Unveiling_U for daily resources for the chronic illness community. 💜
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🦄 New from Unveiling Unicorns NORD — National Organization for Rare Disorders A trusted hub for the rare-disease community from @RareDiseases: support & advocacy. unveilingunicorns.org/resour… #InvisibleIllness #ChronicIllness #RareDisease #PatientSupport

NORD — National Organization for Rare Disorders - Unveiling Unicorns

Join Unveiling Unicorns in educating and empowering those affected by rare and chronic illnesses through community and support.

unveilingunicorns.org
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NORD's database has in-depth reports on hundreds of rare conditions. They also offer patient assistance, toolkits, and advocacy on policy. A great starting point after a rare diagnosis. Follow @Unveiling_U for daily resources for the chronic illness community. 💜
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🦄 New from Unveiling Unicorns Medical Records Request Letter Template Your medical records belong to you — here's a free template. Read it here: unveilingunicorns.org/resour… #InvisibleIllness #ChronicIllness #PatientAdvocacy #Healthcare

Medical Records Request Letter (Template) - Unveiling Unicorns

Join Unveiling Unicorns in educating and empowering those affected by rare and chronic illnesses through community and support.

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A free, fill-in template for requesting your medical records under HIPAA's right of access, plus your key rights in plain language: 30-day response times, format choices, and fee rules. Follow @Unveiling_U for daily resources for the chronic illness community. 💜
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🦄 New from Unveiling Unicorns SSDI/SSI Disability Application Checklist Applying for disability is daunting — this checklist walks you through every step. Read it here: unveilingunicorns.org/resour… #ChronicIllness #DisabilityRights #InvisibleIllness #SSDI

SSDI/SSI Disability Application Checklist - Unveiling Unicorns

Join Unveiling Unicorns in educating and empowering those affected by rare and chronic illnesses through community and support.

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Filing for SSDI/SSI means gathering records, tracking symptoms, and describing functional limits. This free checklist covers documents, filing tips, and what to do if denied. Follow @Unveiling_U for daily resources for the chronic illness community. 💜
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