A web3 collective at the intersection of science and art. Learn about #DeSci in UltraRare The Podcast: https://xitter.cf/t.co/afeMRvityM
Joined October 2021
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Out now: our new and updated DeSci Landscape!!
Many new projects have been added since our last update.
We aggregate data from the DeSci Wiki, so if your project is missing or needs to be updated, make sure to comment in the doc linked below.
Here's the link to the DeSci Wiki: docs.google.com/document/d/1…
UltraRare Bio retweeted
🌐 We're excited to announce the FIRST #DeSci JOB BOARD! 🌐
Whether you're looking to build your team or participate more in the growing space, our platform is here to condense these opportunities and make it an easy process.
Check it out now on desci.world/jobs
Today is the last day to submit your idea to the ARPA-H Dash. The newest ARPA agency hopes to improve health outcomes and are looking for ideas!
📢 Our #ARPA-HDash is underway! 🏆 🏃♀️ Submit your idea TODAY through the online portal!
polyplexus.com/healthdash
ALT ARPA-H Dash tournament bracket abstract image
UltraRare Bio retweeted
The future of scientific discovery will obviously be increasingly ai-driven, automated and decentralized. molecule.to/blog/the-scienti…
Important milestone for the promise of base editing approaches!👇
Today we report in @ScienceMagazine a one-time base editing treatment for Spinal Muscular Atrophy (SMA), the leading genetic cause of infant mortality worldwide, affecting ~1 in 10,000 births. science.org/doi/10.1126/scie…
PDF: drive.google.com/file/d/1H1k…
1/17
UltraRare Bio retweeted
Thank you for your continued support of #RareDisease, Katie! We need more allies in the media like you 🫶
The journey to a rare disease diagnosis can be long and difficult but these four rare disease warriors are on a mission to change that. 💪
Watch my @sxsw @ChanZuckerberg conversation with @DavidFajgenbaum, @bsw5020, and @TaniaSimoncelli.
bit.ly/3Kld1BE
#ad
Great article about putting patients first when it comes to drug development. There are a few companies out there who are doing this.
Exciting times for the patient communities who have put so much into finding their cures. open.substack.com/pub/perlar…
by @PerlaraPBC / @eperlste
UltraRare Bio retweeted
The map of #DeSci by @UltraRareBio shared by @isss111 in her recent talk about BioDAOs and building for science in web3 at @DeHouseDAO. 🪩
Congrats to @vita_dao on the raise! 🙌
Check out that molecular art by @danielyse_ 👀
Let's go, #DeSci!
🤩 We are excited to announce that we've closed a $4.1m fundraising round🌱 from strategic members including:
• @pfizer Ventures
• @ShineCapitalNYC
• @L1Digital_
• @beakerdao
• @SpaceshipDAO
• @balajis
• @bettslacroix
and many more
🧵
forbes.com/sites/johncumbers…
The article also features the DeSci Landscape and DeSci wiki, plus quotes from the amazing @LauraMinquini @Shamburgularara @aloktayi of @VibeBio and more!
New Episode Alert 📣
Learn from mom, scientist and rare disease advocate Dr. @MadeleineOudin! We talk about her path to academia, her research studying cancer and neuroscience and more!
Link: youtu.be/MBlCAMOVhTA
Also available wherever you listen to podcasts.
Perlara 'walks the walk' of decentralized science, sharing their cure roadmaps with the public so that other rare disease families can learn from this important work! Check out all ten of the roadmaps in the link below 👇
cc @PerlaraPBC @eperlste
How beautiful to see 10 cure roadmaps on its way to modeling the disease and finding a treatment. More 1-to-N coming through. Thanks @PerlaraPBC @eperlste open.substack.com/pub/perlar…
UltraRare Bio retweeted
A few great DeSci resources include:
-@ethereum's DeSci overview
-@science_b0's community
-The Desci Landscape Map by @JocelynnPearl & @danielyse_ at @UltraRareBio
xitter.cf/UltraRareBio/status/15…
What other DeSci resources do you think are awesome and should be added to the list?
It's here! Your brand new DeSci Landscape!
Updated 10/14/2022 by @danielyse_ and @JocelynnPearl + input from the community.
And once again we're seeing an amazing expansion of DAOs, projects, and categories.
Let's check out who's here 👀
Amazing to hear stories like Susannah's! make sure to check out the @n_lorem foundation - they are truly miracle workers!
Susannah, a nano-rare child, receives personalized medicine with the hopes to halt her neurodegenerative disorder. Her experimental medicine was created by n-Lorem to address her unique genetic mutation; the ultimate in personalized medicine. NYT exclusive linktr.ee/nlorem
UltraRare Bio retweeted
You can learn more about the story of @PerlaraPBC in this conversation we did for UltraRare the Podcast
cc @UltraRareBio @eperlste #DeSci
podcasts.apple.com/us/podcas…
I founded @PerlaraPBC in 2014 as the first biotech PBC.
9 years + 2 pivots later the business is not only profitable but growing and the first patient in a Phase 3 pivotal study sponsored by our first joint venture and family-led biotech @epalrestat will be dosed next week. 🧵👇
Kicking off our ART NIGHT 🎨🖌️
Mark your calendars for November 17th at 5pm PT / 8pm ET for a @Web3WomenInSci SciArt Happy Hour with @UltraRareBio!!
Join us for a night of science-inspired painting 🎨, drawing, drinks 🍸, and catching up before the holidays pick up!
discord.com/invite/P7kPtqRfJ…
Talking about animal friendships and animal forms, and why everything becomes a crab: popsci.com/story/animals/why…
