UK charity advocating for treatments for autism and research into underlying causes. We don't provide medical advice, tweets should not be construed as such.

UK
Joined April 2010
UK National Autistic Society declares #autism is genetic... despite admitting there's no single gene/genetic test for autism, and maternal rubella infection/valproate exposure can lead to autism. Please support the only UK autism charity to counter this nonsense: @TweetingAutism
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Thinking Autism retweeted
Insights from #Autism Tribune author and Fonagy Review participant: "Sadly, Fonagy has spun the old lies on the numbers and said nothing about the biological drivers of change. The review represents a massive, missed opportunity to start turning the tide." theautismtribune.substack.co…
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Thinking Autism retweeted
Latest from Brain Energy & Function substack: The Paradox of Stimulants for Hyperactivity and Attention Deficit - The Brain’s Search for Fuel #ADHD #autism brainenergyandfunction.subst…
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Thinking Autism retweeted
New book explores possible link between brain energy and #autism/#ADHD. Based on research, but written in plain English. The Exhausted Minds: How Brain Energy Shapes Autism and ADHD, and Why It Matters for Health, Education, Parenting and Beyond amazon.co.uk/dp/1036998606/
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Similar situation this side of the pond. The recently published Fonagy Review's claim that #autism prevalence in UK is "stable" relied on a small scale survey from nine years ago! More info here: theautismtribune.substack.co…
A new CDC study exposes how inadequate our autism data infrastructure is. The IACC Strategic Plan calls for better. It was adopted over a month ago. @HHSGov, it’s time to act. Advocates, raise your voices: these data shape the services and supports people need.
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HOW IS IT THAT CHILDREN CAN HAVE SEVERE OCD AND NOBODY EVEN LOOKS AT THEIR IMMUNE SYSTEM? I still meet families where this has never been investigated. Not once. Back in 2005, researchers examined 50 children with OCD. 42% had antibodies reacting with the basal ganglia, an area of the brain involved in movement, habits and behaviour. In the comparison groups, the figure was just 2–10%. A subsequent review of 7 studies found that people with OCD had almost 5 times the odds of having these antibodies compared with controls. I’ve spent years investigating the immune system’s role in childhood OCD, and I’ve seen remarkable changes when underlying immune dysfunction is identified and addressed. Yet I still meet children whose OCD has completely taken over their lives without anyone having investigated infections or immune dysfunction. So I want to ask parents something. Has anyone EVER investigated your child’s immune system? Or was it straight to anxiety, medication and therapy? I’d genuinely like to know how many families are still experiencing this. Please share this. There are parents who need to know that the immune system may be part of their child’s OCD. Studies and my blog below 👇 #OCDAwarenessWeek #OCD #PANS #PANDAS
Sometimes the compulsion happens entirely inside someone's head. OCD can latch onto the things a person cares about most, including their values, morality, faith, relationships, and identity. Someone might spend hours mentally reviewing an interaction, trying to determine whether they did something wrong or what it says about them. That's one reason “just stop worrying about it” doesn't capture what living with OCD is actually like. #ThatsOCD Have questions about OCD? Join IOCDF livestreams featuring experts, advocates, and members of the community 👉 iocdf.org/livestreams
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Thinking Autism retweeted
The Evolving Paradigm of Autism: Folate Receptor Autoimmunity deranging Epigenetic Programming in fetal and postnatal Brain Development pubmed.ncbi.nlm.nih.gov/4287… It still has some evolving to do. But the science is producing some interesting potential connections.
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Thinking Autism retweeted
Gut microbiota are linked to gastrointestinal symptoms and behavioral changes but not inflammation in autism spectrum disorder: a cross-sectional analysis nature.com/articles/s41390-0… Intriguing. The gut-brain axis holds but not based on inflammatory markers (ELISA measured markers).
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Thinking Autism retweeted
"a consistent transdiagnostic reduction in the DTI-ALPS index across a broad range of psychiatric disorders" sciencedirect.com/science/ar… A proxy marker for glymphatic system function (brain waste clearance) shows some interesting trends...
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Thinking Autism retweeted
"... information from the investigation indicates Harvey wandered from her residence" ktsm.com/local/las-cruces-ne… Another tragic story on autism and wandering/elopement. Another family forever grieving. Another reason to make this an autism research priority focused on prevention.
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Thinking Autism retweeted
Is ADHD on the rise in children and adults in the UK and Europe? eurekalert.org/news-releases… There's potential structural reasons (widening criteria, missed and mis-diagnosis, diagnosis tied to supports, etc). But there's also potentially a (part) real increase too. Sounds familiar..
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Thinking Autism retweeted
Why we need to talk about profound autism autismaustralia.org.au/blog/… Things are rapidly changing it seems when it comes to acceptance of 'profound autism'. Except here in England, where outdated ideas are still filling some autism societies. That'll change eventually.
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Thinking Autism retweeted
Private initiative makes ‘historic’ investment in autism research thetransmitter.org/spectrum/… ARIA plus the ARPA-H SPECTRA initiative means that US autism research is being jet propelled. And the focus on biology (not neurobabble) and including profound autism is very, very welcomed.
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Thinking Autism retweeted
A petition to the UK Parliament: "Educating students on severe autism, meltdown triggers, and non-verbal needs will build real understanding, end public stigma, and protect SEN families from hostility."⁠ petition.parliament.uk/petit… From a young woman who has a sister with autism.
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Thinking Autism retweeted
Brain Functional Mediation of Vitamin D and Development in Children With Autism sciencedirect.com/science/ar… Not only finding lower vitamin D levels (yet again!) but 'potential' MRI markers too (but carefully with that).
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Thinking Autism retweeted
Mum's warning after autistic toddler, 3, almost drowned in lake bbc.co.uk/news/articles/cv1j… Raising awareness of the potentially deadly triad: autism, wandering/elopement and water. Added also to 'lack of danger awareness' and autism for some, is a life-limiting diagnosis.
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10-year-old with autism found dead in pond in Hamilton Township fox19.com/video/2026/10/11/1… The deadly triad - autism, wandering/elopement and drowning - kills again. Another family destroyed forever. 'Search water first' is the message. And lots more study needed on prevention.
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Thinking Autism retweeted
New blog post from me: The Fonagy report revealed and implications for autism, ADHD and mental illness questioning-answers.blogspot… Also the day my little ole autism research blog tipped over 10 million views too. AI training must be having a field day on my musings down the years...
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Thinking Autism retweeted
If Prevalence Is Stable, Why Are the Numbers Exploding? The missing logic in the Fonagy Review theautismtribune.substack.co… From @jane_wills472 She was part of the lived experience steering group for the Fonagy review. Profound autism is mentioned in the report albeit fleetingly.
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