Ex KC Royal & SF Giant, Professor at Yeshiva University. Dealing with myeloma since 2009 via novel therapies. Founder of My Life Is Worth It, patient advocate

New York City
Joined June 2009
After a courageous and inspiring 10-year battle with Multiple Myeloma, Bob went peacefully early this morning with his wife and daughter by his side. He was 63 years old.
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Bob Tufts retweeted
Arbel Yehoud was sexually assaulted by terrorists almost every single day during her 482 days of captivity with Palestinian Islamic Jihad. Romi Gonen was raped by four different men on separate occasions during her captivity in Gaza, including a “nurse” who was supposed to care for her wounds. Sasha Troufanov said that his PIJ captor repeatedly tried to force him to perform a sexual act on himself. He was filmed while showering. Alon Ohel was sexually abused by his captor while showering. Guy Gilboa Dalal said his Hamas captor sexually assaulted him after a shower, holding a gun to his head and a knife to his throat. Amit Soussana was sexually assaulted by her captor while held hostage. Dafna Elyakim, 15, said her captor touched her constantly and told her she would stay in Gaza to marry him and have his children. Rom Braslavski revealed that PIJ terrorists sexually abused and humiliated him. Aviva Siegel told the UN that she saw a young girl in captivity crying after her captor followed her into the bathroom and forced her to perform oral sex. Ilana Gritzewsky woke up on October 7 in Gaza, half-naked, her breasts exposed and her pants pulled down, surrounded by seven terrorists. Agam Goldstein-Almog testified that she witnessed another hostage being forced at gunpoint to touch, and be touched by her captor. These are only the stories we know. Hundreds more will never be heard, because most of Hamas's rape victims were murdered. On October 7, countless bodies were found without underwear, with mutilated genitalia, or with broken pelvises. Several Nova survivors also testified that they heard terrorists gang-raping women and men during the massacre. How many more testimonies do you need to believe that Hamas and PIJ used rape as a weapon of war?
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Tonight @BioNJ_Org will be honoring Dad with The Heart of BioNJ Award at their annual dinner & innovation celebration. Thankful for their recognition of Dad’s tireless efforts for rare disease patient advocacy & medical innovation, & his strong commitment to BioNJ.
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For those of you who would like to know funeral and shiva arrangements for BT:
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For those who cannot attend the funeral today, especially friends from the myeloma/rare disease community: Link: webcast.dignitymemorial.com/… Memorial ID: 24067 Password: 82CKB Event Date: Oct 10th, 2019 Event Time: 11:50am EST
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An update for Bob's followers:
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This is Bob's family with an update for his followers - Since Aug 23 Bob has been hospitalized for a stem cell transplant which has caused severe rare complications involving life support, dialysis, & surgery. In critical condition, more surgery tmrw.
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Day 23 of #BobTuftsStemCellTransplant. Still tired, but all my metrics are in order for the process. #Science and #Innovation carry the day.
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It #NationalReadABookDay and here is one I am quite proud of.
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Bob Tufts retweeted
New @SABRbioproject: Bob Tufts, @Royals pitcher in 1980s and one of the few @PUTigerBaseball alums to make the major leagues: sabr.org/bioproj/person/cb4a… #SABR @tuftsb
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Day 22 of #BobTuftsStemCellTransplant Waiting for the stem cells to take and reproduce. I hear the Jeopardy theme song playing every once in awhile.
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Sad but true! Myeloma has 19 drugs approved for treatment. The myeloma patient community is so fortunate to have such a productive, caring, and talented care team!
There are about 7,000 rare diseases that exist, and 95 percent of those have no approved current treatment. Learn how #GeneTherapy and #CellTherapy may be able to help, and how these methods differ from traditional drugs. bit.ly/34uNjUy
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Day 21 of #BobTuftsStemCellTransplant. A great sleep last night, good preparation for the coming side effects and pressures of the stem cell transplant.
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2 people followed me // automatically checked by fllwrs.com
There's still time! Register for the #2019GGSummit and get ready to chart your course in #raredisease! globalgenes.org/event/patien…
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Day 20 of #BobTuftsStemCellTransplant. Finally able to rest in the 2 -3 hour windows between care. Actually dreaam1
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Honor those who took risks, were ahead of their times My Labor Day choice is easy: Marvin Miler
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Superb clarification by @DrMRosenblatt of the roles of #government vs #biopharma companies in creating new #medicines
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