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#painfreegynae fully informed consent

Joined June 2011
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Yes. Lies told to @hysteroscopy victims cause long-term damage. Yet data is never gathered on who's sobbing in the car park; feeling disbelief while travelling home; losing sleep due to flashbacks; frightened of future screening / treatment; too traumatised for future intimacy!
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Trust Failed retweeted
Thanks for posting this. I’m appalled this man’s ego knows no bounds. Rather than engage with the fact 10,000s of women have been harmed as a direct result of the cult of hysteroscopy without adequate anaesthetic, he seeks to name a meaningless ‘ratio’ after himself. Tone deaf.
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Trust Failed retweeted
Replying to @GillianMerron
@GillianMerron Please tell me that Prof Justin Clark will not be involved in the Revised Woman’s Health Strategy hysteroscopy improvements .
Prof TJ Clark is suggesting women having hysteroscopies 'pragmatically' need to trade off their acceptability of the procedure (i.e. their pain) with the hysteroscopist's procedural success (i.e. completion of the procedure). The CLARK Ratio = patient acceptability / failure
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Yes, I’m not worried for myself, but I am concerned for other women who are not getting the diagnoses they need and some of whom will be harmed or die avoidable deaths. But in the NHS, it’s prob seen as a cost effective result, with no-one to blame but the women themselves
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Trust Failed retweeted
Prof Justin Clark just dug himself a deeper hole. He mentioned his own flawed so called satisfaction survey as if this was evidence. A super selective survey from clinics + clinicians +patients when some hospitals only put in 1 cherry picked result.🤬
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If you feel able to do so, and if you believe that women deserve to be treated humanely and fairly in h/c settings, pls repost this and help it to reach more of the women who need to know in advance what they should discuss with their doctor before consenting to this procedure 🙏
It’s not often I praise the Daily Mail (well, tbh, almost never) but they have consistently reported on this scandal However, for Alison Wright to laud the RCOG for its guidance is disgraceful. The GTG advocates no routine use of LA and no sedation at all archive.ph/M5Lk2
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Replying to @rut85826
So sorry - but of course not in the least surprised - to hear about your sisters’ experiences. And I don’t blame you for waiting for a GA, having it in outpatients is akin to torture and imo should be banned until effective pain relief has been developed.
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Furthermore, those women who, like me, will never have another biopsy or hysteroscopy following previous traumatic experience, might consider a WID-easy test. No research AFAIK has bothered to take THAT into consideration
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Because women aren't WORTH anaesthetic? Because women are expected to endure 'the MOST painful ever period' during their hysteroscopy? Because careers are made by saving the NHS time & money by removing anaesthetic? Because medical misogyny is rife in gynae? @DrNighatArif
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Replying to @YvetteCooperMP
Can we find out how many lives are put at risk after fearing future treatment/screening following a barbaric, outpatient, no pain-relief #hysteroscopy? No one knows the long-term impact on people lives because nobody bothered to ask! @rebeccamallick @GillianMerron #WomensHealth
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Due hysteroscopy at Southmead, @NorthBristolNHS? Please know you've the right to ask for an anaesthetist. @NorthBristolNHS This patient had gas & air but it wasn't enough. #medicalmisogyny
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17000+ women have completed our #hysteroscopy survey: 73% are worried about future procedures 37% say it's damaged their trust in healthcare professionals 22% were distressed for longer than a few days following the procedure Ask about GA/sedation; you're entitled to it
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PAIN SURVEY FINDINGS Over 17000 women have now completed our #hysteroscopy pain survey. WITHHOLDING INFORMATION 81% said they were not aware of GA/sedation options 83% said the risk of pain was not discussed with them 81% weren't offered entonox
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Trust Failed retweeted
Replying to @YvetteCooperMP
@YvetteCooperMP Many SOS for health came and went but this is happening on your watch now.
Here’s Hysteroscopy risk of pain in graphics at the best selected clinics on selected patients using the BSGEs very own survey. This was then used as evidence but called research in RCOGs guidelines .@NHSGIRFT have set targets for 90% diagnostic to be done in outpatients.
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Trust Failed retweeted
Please be vigilant. Help them out as quickly as possible as if they get exhausted and perish that is a potential colony that will not get to exist next year. Time trapped is time not foraging and energy wasted! So now you know what these big autumn-flying #bumblebees are! 13/15
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But AFAIK there’s no regulation of the market rates that can be charged, and Mum‘s fees have gone up in four years by something like 30%.-40%. Yes inflation, yes employer cost increases. But at the moment it feels like no one has a grip on the proper cost of decent provision./
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Replying to @Hermione1963
Totally agree that women shouldn't be made to tolerate invasive gynae pain. Our campaign has been accused of scaremongering & causing women to cancel hysteroscopy appointments and potentially die from womb cancer. We're trying to empower women to access humane care.
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Replying to @FeryalClark
Procedures that men have like endoscopy and colonoscopy have pain options. You can have sedation, anesthesia, gas and air. Suspiciously hysteroscopy an agonising procedure has the patient taking their own painkillers. Things have got to change. Every day women are suffering.
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Here are the Renewed Women's Health Strategy's promises for pain-free hysteroscopy. Has anyone any news about the 'co-development with women with lived experience' to ensure 'women have informed consent and choice of pain relief'? @NHSGIRFT
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"The nurses were incredible but I came out thinking what the hell, that can't be a real thing." Awake womb ablation, Guy's 2023
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You are absolutely right, early intervention is vital. Such a shame then that there are many women who will not seek help, regardless of their symptoms, bc of the distress and trauma they have suffered from invasive tests shoddily performed by uncaring clinicians, in the past
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