Trent Regional Cleft Network supporting & treating those with cleft lip+/-palate in S.Yorkshire, Nottinghamshire,Derbyshire,Lincolshire and Leicestershire 2005

Nottingham, England
Joined June 2015
Replying to @KWongRiffMD
@KWongRiffMD @anneklassen Great visual abstract summary of original Cleft-Q work #CFSGBI2019 ncbi.nlm.nih.gov/pmc/article…
3
6
Interesting data from ⁦@CleftCollective⁩ on Intelligability In Context at 3 years old with cleft palate 24% have difficulty being being understood by strangers. Similar to incidence VPI? #cfsgbi2019
1
4
12
Lovely animation by Suhaym Mubeen and the GOSH team to help patients understand the alveolar bone graft process: youtu.be/YZanCoBSkac @CFSGBI #CFSGBI2019
1
4
1
12
@claire_cunniffe Gives an update on CLAPA at #CFSGBI2019 in year of CLAPA's 40th birthday. 40 years of making a difference to patients and families. #Awesome
2
3
Got a research question that could utilise the Cleft Collective Cohort Data - see more about accessing data bristol.ac.uk/dental/cleft-c… #cfsgbi2019 @CleftCollective
2
3
The Intelligibility in Context Scale is free, available in over 60 languages and has been validated in English, German, Vietnamese, Cantonese, Jamaican, Fijian, Slovenian etc. csu.edu.au/research/multilin… #CFSGBI2019
Replying to @Jneildwy
Here is the Intelligability in Context Scale Questionaire #CFSGBI2019
3
34
6
52
Excited to be working with @kennyardouin @CLAPACOMMUNITY on the CLAPA Adult Services Project. Looking forward to sharing detailed results in the near future with cleft teams @CFSGBI #CFSGBI2019
1
4
10
Great first day at #CFSGBI2019 yesterday, lots of interesting research projects happening and it was a pleasure to be able to report back on the @CLAPACOMMUNITY Adult Research Project we’ve been working in with @NicolaMarie. Looking forward to learning more today! 🤓🙋🏼‍♂️👨🏼‍🎓
5
11
I'm an advocate of patient-first language "person with a cleft" rather than "cleft patient" @CFSGBI #CFSGBI2019
Great keynote of hugely impressive work changing the field completely #CFSGBI2019 by Mr Martin Snead founder of the award winning National Stickler Syndrome Diagnostic Service in Cambridge -Clinical and molecular genetics of Stickler syndrome jmg.bmj.com/content/36/5/353
4
12
Fascinating keynote from Martin Snead @CFSGBI on the importance of early diagnosis of Stickler's Syndrome #cfsgbi2019
1
1
Martin Snead summarises clinical flags to consider diagnosis of Sticklers Syndrome and when to refer for @CFSGBI. Really useful, great keynote. #CFSGBI2019
1
4
Dr Wang shows normative nasal emission and nasalance in non-cleft adenoidal regression using nasal emission system. An interesting tool that needs further examination. #CFSGBI2019 glottal.com/product.html #CFSGBI2019
1
1
Replying to @TomasBONeill
@TomasBONeill that was the kind of candour about training that is needed to move the conversation on. Well done. 👍🏼 Super results 3.5% fistula rate, a great future indicator for your patients. Supports concept of geography of destiny 😄#CFSGBI2019 keylimepodcast.libsyn.com/ed…
1
4
Another presentation by the @cleftcollective team about the genetics of face shape #cfsgbi2019 @stergiakouli #bigdata
3
5
When discussing facial phenotype this is an important concept -50 variables indentify facial difference ? #CFSGBI2019 The Code for Facial Identity in the Primate Brain cell.com/cell/fulltext/S0092…
1
1
Sarah Lewis from @CleftCollective talking now on prenatal alcohol exposure and facial morphology #cfsgbi2019
3
5