Today we gathered on the mall to share our stories, hold each other in love and remember those who came before us and those who are still fighting. It was a beautiful day that helps you remember what we are fighting for. Good night moon.

This is how I got out of bed this morning. It isn’t pretty, but I am so grateful to have today.

As we start National Nurse Appreciation Week, I have something to say. #NurseAppreciationWeek

It happened. Today, @US_FDA granted accelerated approval for Tofersen. This is a huge day for the entire ALS community and, in particular, the families who have SOD1-ALS. Today, they finally have some hope. fda.gov/drugs/news-events-hu…

I am so grateful to be a part of this amazing article about how ALS patients are using technology to help them communicate long after they lose their voice. I hope you will read it as the article is simply mind-blowing. washingtonpost.com/wellness/…

In case it was not clear from my tweet this morning, the IRB-approved study that @synapticure just announced today is a really big f'ing deal. Here's to a more proactive approach to presymptomatic individuals who carry a gene variant known to cause ALS. synapticure.com/blog/presymp…

Six years ago I was told to prepare to die. This is the improbable, inspiring, love-filled, hope-filled, true story about the extraordinary campaign that happened next. This is where you come in: please share this trailer with everyone so that we can bring hope to everyone.

This week @US_FDA will decide whether to approve AMX0035. Many of you have questions about what happens next if it is approved. The care team @synapticure broke things down into 5 easy to understand steps below, Read, learn and be empowered.

"Few diseases are as cruelly debilitating as amyotrophic lateral sclerosis (ALS)." Thank you, @WSJ, for speaking out about the need to provide real hope to ALS patients. We, too, hope that @US_FDA will do the right thing and approve AMX0035 ASAP. wsj.com/articles/the-fda-and…

We share our ALS journey—the hope, pain, laughter, love and tears—to make my generation of patients the last. So tonight I have an ask: Please share this video to let everyone know that ALS is fatal today but for the first time ever we can change that. #ThankYou

Thank you @BettyMcCollum04, @KenCalvert, @RepMikeQuigley and @JeffFortenberry for your incredible support for the fight to end ALS. Our veterans are 2x as likely as non-veterans to have ALS and the $40M in DOD research funding is critical to finding treatments now. #ALSchampions

ALS patients need access to therapies. Pass it on.

None of us knows what tomorrow will bring, but I know this: we will fight, we will make a difference and we will end ALS, together. #IAMALS cbsnews.com/video/race-to-a-…