Dad of 3 https://xitter.cf/t.co/XVWU9umBwI worker. Proud to be a Trustee of Derian House Children’s Hospice 💚

lancashire
Joined February 2014
Think @PaddyMcGuinness got that wrong : there’s not 8,000 young carers in the UK - it’s more like 100,000 -120,000 kids doing an amazing job. #childreninneed
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Great care on ward 8 for Isaac tonight @LancsHospitals particularly from Ellie and Billy, unfortunately he’s staying in overnight but their warmth towards a complex little guy was brilliant
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It’s carers week #CarersWeek2023 #CarersWeek #carers. My twins are 12, and Ethan loves nothing more than making Isaac laugh. Ethan doesn’t see himself as a young carer, but having support that is accessible to him when hr might want support is crucial.
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Remember to put your name on the exam paper 😉😜
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Language matters. A consultant Paed has written this on my son Isaac’s EHCP form. Would anyone like to read that they weren’t the ‘normal’ sibling? We need better education of professionals and organisations. #disability #EHCP #SEND
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GAME DAY | Good luck to our under 16's as they take on England Community Lions. Come and get behind the team! 1200 KO @DalkeithRFC - Free entry for all.
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Absolutely fantastic What a great achievement and great memories Good luck Jake 🏴󠁧󠁢󠁳󠁣󠁴󠁿 A proud moment @TismeRick and family. Enjoy every moment 👊🏻 – at Wigan, England
Proud dad moment to see Jake get his first U16s international call up for @scotlandrl , he’s so proud of his Scottish half and heritage , throwback photo @McCormackSteve1 @AHendo09 @dannyaddy32 @lewistierney1 @danny_brough
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Proud dad moment to see Jake get his first U16s international call up for @scotlandrl , he’s so proud of his Scottish half and heritage , throwback photo @McCormackSteve1 @AHendo09 @dannyaddy32 @lewistierney1 @danny_brough
Squad Announcement | Coach Steve Beaty announces his Under 16 squad to take on @England_RL Community Lions. The boys kick off at 12noon @DalkeithRFC this Saturday, 6th August - Free entry.
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Will ICBs improve the experiences of children and families with disabilities - new blog : Integrated care boards : a rose by a different name or progress? qualitysafeguarding.com/blog… via @QSafeguarding #SEND #NHS @APPG_SEND @DCPcampaign
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Brilliant #FICare concept and idea , maximising the learning from and for us #NICU experienced families. Have a look @nursingSUni
Calling @theQCommunity members! We’ve posted a really important idea & need your vote please. #FICare makes SUCH a difference to both families and staff in #NICU #neonatal. Help us embed it across the country! Non-Q people can comment - & apply to join Q. q.health.org.uk/idea/2022/no…
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Race for Bag for Life.
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How to test the core values of a person that works in a hospital…. Do they apologise profusely to the domestics/do the funny walk in freshly mopped area 🧼 🧹 😆
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Imagine a stag-do organised by Dominic Cummings. ‘Right lads, what goes on tour…will be ruthlessly chronicled and drip-fed to news outlets.’
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We have had 2 nights of hospice respite since May 2 and next due any in April 22. As Parent carers, me working 45+ hours a week (and my wife on a huge £60 p/wk for full time care of Isaac) we’re somehow expected not to break under the strain - unrealistic. #disability #carers
Disabled children and families have a right to short breaks, respite, and other services to live a good life – just like anyone else. But this isn’t happening. aemail your local council to #CountDisabledChildrenIn. 📣 Bit.ly/DCPCountDisabledChild…
#COVID19 has left a large backlog in vital services for Disabled children, exacerbating already huge levels of unmet need. The result? 3/4 Disabled Children have seen their progress regress. Please support @DCPcampaign's campaign to #CountDisabledChildrenIn
OUR NEW CAMPAIGN LAUNCHED TODAY – TAKE ACTION 📣 ❗ #CountDisabledChildrenIn calls on local councils to invest in the services that disabled children and families deserve as they set their budgets for the next year. Email your council leader ➡️ Bit.ly/DCPCountDisabledChild…
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The pathway for short breaks assessment for a Child In Need should be a separate process than EHCP, the Local Authority need to explain why it does not.
The decision whether to issue an EHCP is based on whether special education provision is needed. It should not, therefore, drive the decision about whether social care such as short breaks is required.
Thousands of disabled people living in hospitals. Too many receiving poor care & restrictive practices. Families feel abandoned. A place in the community an opportunity to thrive with the right team Individuals are shut away dailymail.co.uk/news/article… via @MailOnline
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Great care from @LancsHospitals Ward 8 for Isaac on his stay with a chest infection this week, really impressive pre-admission info link up from PAU to A+E after we rang PAU for advice which saved time. The renovation work on the ward is great too, barely recognised ward 8C!
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Looking forward to speaking at this event tomorrow,bshare learning to prompt changes.
Join us and @DCPcampaign tomorrow at 1pm to hear about research on the devastating impact of #COVID-19 for #disabled children and families. See webinar details 👉bit.ly/3ATkzDD