Author, #ChronicIllness #Rheum #Disability Advocate, Photographer, Writer & @HealthCentral #RA site Power Advocate. Is your woke accessible? She/her
Toronto, Canada
Joined April 2010
- Tweets39K
- Following3.5K
- Followers5.4K
- Likes10.8K
Pinned Tweet
Should things end on this platform, which kinda seems inevitable, you can find me in other places, too.
Narratives in the @JMIRS1 "include a diversity of voices and perspectives, and to ensure that patients play an active role in the journal." Read the Narratives Board's (of which I'm a proud member) new impact paper to learn more.
sciencedirect.com/science/ar…
For the first time ever, I saw the Leafs play live and in person! Thank you so much to @TorontoStar
for the surprise subscriber gift of watching the game from the Star box. Still buzzing from the magic of it. #hockey
Lene Andersen retweeted
🧠 Words matter — especially when it comes to #migraine disease.
Using accurate, person-first language helps validate lived experiences and reduce stigma.
Let’s move away from outdated or misleading terms and shift toward language that reflects the reality of this complex neurological disease.
Save this for future reference! 💙
#MigraineLanguageMatters
When #RheumatoiArthritis takes your life on a detour, staying focused on the future is hard. But it’s never too late to take back control. I share tips on how to get back on track in my new @HealthCentral column.
pulse.ly/bnhxctdg1l
In this very funny talk, Stella Young breaks down society's habit of turning disabled people into "inspiration porn." It changed how I see myself and my disability. #DisabilityPrideMonth
pulse.ly/uyg3nparqx
Looking for a sincere way to talk to disabled people and about #disability in general? In this column for @HealthCentral , I share advice on words and topics.
pulse.ly/3e7fqx6qje
Your rheumatologist is vital to your treatment journey, but they can’t do everything. I write about who else you’ll need in my new @HealthCentral column. Who do you rely on?
#RheumatoidArthritis #ChronicPain
pulse.ly/8w6cue5ysi
Treats aren't just for kids! In this @HealthCentral column, I make a case for treats to keep you going through the tough parts of #ChronicIllness. pulse.ly/zfwuzakix9
The unpredictability of a chronic condition can make you feel out of control. In my new @HealthCentral column, I share my story of living with #RheumatoidArthritis and #anxiety.
pulse.ly/q6gdlhfyhl
The data paints a bleak picture of the current state of the #healthcare system for women. To understand how it got here, it’s vital to understand the foundation that has shaped and perpetuated the sex bias.
pulse.ly/1lmdgh2egw
New guidelines call for higher SPF, but people with skin conditions need soothing formulas. Discover 12 products that do it all in @healthcentral 's fourth annual Sensitive Skin Awards. #SkinCare
pulse.ly/ivzh0wddhu
Although we appear to have moved on from the days of duct-taping disabled women to mammogram machines, people who live with #disability are still largely a forgotten population for #BreastCancer screening. #HealthCare
pulse.ly/apiwz6ddnv
Do you overheat in the summer? A wearable neck fan might help you feel better. #RheumatoidArthritis
pulse.ly/v7sjgy4mos
To track (your #RheumatoidArthritis symptoms) or not to track? I don't and in my new column for @healthcentral I share why and how I stay on top of things without it.
pulse.ly/kpywafbzl3
Carrying extra belly fat not only ups your risk for #RheumatoidArthrititis, it can also interfere with treatment. But losing weight can make a big difference. Learn more on @healthcentral
pulse.ly/kjhimdnssm
"Remission is this mysterious and coveted thing that gets causally mentioned when we are first diagnosed, but what is it?" @jgchayko shares the tools that got her there. #RheumatoidArthritis
pulse.ly/rkptkmnmlz
How do you know if it's #disability discrimination? Try my handy trick. Learn more in this post on The Seated View.
pulse.ly/fiwowqwn8d
If you're not sure something is discriminatory to people with a #disability, here's a handy test, as well as examples I've experienced (and people are still experiencing) #NAAW2025
pulse.ly/nljeuivdei