@NIH-funded network that fosters collaborative research in partnership with individuals and advocacy groups to improve the diagnosis and treatment of #MECFS.

Joined April 2022
ME/CFS Research Network retweeted
Don’t miss our profile on Lucinda Bateman, MD. She speaks on ME/CFS, PEM, the @BatemanHorne Center in Salt Lake City, Utah, the need for federal investment and more. This is #NotJustFatigue #mecfs #pwme #millionsmissing #myalgice
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ME/CFS Research Network retweeted
Join us for a webinar with panelists from DecodeME and ActionForME to discuss their Catalyst Award-winning study on Sequence ME and Long Covid and how it could impact the search for biomarkers and subtypes. ow.ly/mOKJ50YZ86t #MEAwarenessHour
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ME/CFS Research Network retweeted
🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. 👉 Sign up today: omf.ngo/studyme/ #UnitedForME #MECFSresearch #POTS #pwME #pwLC
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ME/CFS Research Network retweeted
Join us TOMORROW for our genetic results webinar! Register here: shorturl.at/fnB67 There are limited spots to join on Zoom (registering does not guarantee a spot). Don’t worry though, we will be recording it and we will also be sharing it live on Facebook at the time.
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ME/CFS Research Network retweeted
🎥 The recording of "Investigating Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in #MECFS & #LongCOVID," w/panelists from @Selin Lab, @HiFiBio, & patient reps @Rivkatweets & Dr. Megan L. Fitzgerald, is online now. Watch here: youtu.be/2DQZp48fyek
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ME/CFS Research Network retweeted
🤝 Accelerate Research: OMF StudyME is a free global participant registry bridging the gap between individuals living with #MECFS, #LongCOVID and related diseases, and the researchers working tirelessly to uncover effective treatments. 👉Sign up today: omf.ngo/studyme/.
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ME/CFS Research Network retweeted
ME/CFS may be one of the most common diseases you've never heard of. Raise awareness, spread knowledge, and support those living with it. Tag us to expand your reach! Watch Mito video: loom.ly/POsbmOc
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ME/CFS Research Network retweeted
ICYMI: The next Solve ME - @BatemanHorne webinar "Severe #MECFS Research: Removing Barriers to Access" takes place on Tues. Jan. 21st. Sign up today! us02web.zoom.us/webinar/regi… #MEAwareness #MEAwarenessHour
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ME/CFS Research Network retweeted
Caring for a pw #MECFS, #LongCOVID, or a similar condition? The journey can be challenging, but you’re not alone. BHC and @PlzSolveCFS created a Caregiving Resource Guide to offer practical advice, emotional support, and essential resources for caregivers. bit.ly/3Yvek6W
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ME/CFS Research Network retweeted
🌐Many with #MECFS and #LongCOVID also experience #orthostaticintolerance. Symptoms may include dizziness, lightheadedness, and fatigue. Monitoring and managing symptoms can improve quality of life. 👇batemanhornecenter.org/wp-co… @OpenMedF #NationalHealthEducationWeek #pots
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ME/CFS Research Network retweeted
📣 OMF’s StudyME Registry Hits 7,000 Participants! 🎉 Have you signed up? Join StudyME 👉 omf.ngo/studyme/. Join us today, and let's make a difference together! 💙 #OMF #StudyME #TogetherWeCan
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ME/CFS Research Network retweeted
Over 4k have joined OMF's StudyME! StudyME is a platform to connect individuals interested in participating in research studies of #MECFS, #LongCOVID, & related diseases w/ researchers conducting them. Join from anywhere in the world in less than 5 min 👉 omf.ngo/studyME
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ME/CFS Research Network retweeted
Funding announcement: ICanCME 2023 ME Stars of Tomorrow #Scholarship Program: mailchi.mp/de70b9160260/ican… Deadline to apply is August 30th, 2023. #MECFS #MyalgicE #pwME #MedTwitter #MedStudentTwitter
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ME/CFS Research Network retweeted
Reminder! May 1 @12pm ET, @NIH #MECFS Advocacy Call. Register today! ow.ly/M4I350NZn3t
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ME/CFS Research Network retweeted
👀In part 1 of 3, Dr. Bateman covers: - Case presentations - Tools to measure/track the severity of pain and fatigue - Tools to efficiently measure/track impaired function #LongCOVID #chronicpain #fatigue #MERC #medicaleducation #MedEdMatters
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