CCLG:CYPCA is the UK's only membership organisation open to all TYA cancer care professionals. Current chair of this committee is Liz Purnell
UK
Joined January 2016
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Happy international nurses day to all the nurses that support and care for TYAs.
#InternationalNursesDay2025
Chair of the TYA Committee at CCLG:CYPCA retweeted
Ensuring #TYAC in the UK have equal access to early phase clinical trials is crucial but there are MANY challenges and barriers that they face 👉 an interview with @CR_UK & @ECMC_UK news.cancerresearchuk.org/20… #TYACAM @POG_LRC @UofGCancerSci @TeenageCancer @cclguk @TYACChair
Today is the last day of TYACAM 2025. I just wanted to give a big shout out to all of the TYA teams across the UK who do incredible work everyday. Thank you all for everything you go for TYAs.
#TYACAM
Heading back from an amazing event with TYAs from Newcastle and Sheffield. Too many people to thank in the limited word count on X, so please check out my LinkedIn page. #TYACAM linkedin.com/posts/liz-purne…
We're proud to announce two new research projects into bone cancer, co-funded with @BCRT! 🌟🔬 Led by Dr Olivier Pardo @imperialcollege and Prof @RobinPlevin, these projects aim to find new ways to improve survival for osteosarcoma patients. Find out more: bit.ly/4jGWW84
As you are probably aware tomorrow is the 45th London Marathon. A massive thank you to all runners who are raising money for charities across the UK who support TYAs impacted by cancer.
#TYACAM
So many charities support TYAs who have/had cancer, here is one of them.
#TYACAM
At the #EllaDawsonFoundation, our services are uniquely tailored to the needs of each young person we support. We are proud to provide #individualisedcare that helps each person reconnect with themselves throughout their cancer journey and beyond.
#lifeaftercancer
"I can't tell you enough how important your voice is during this Government consultation"
Nia shares the importance of using your voice to make sure the cancer plan for England meets all the needs of children and young people with cancer.
Have your say: ow.ly/EN7v50VFxO0
Today is National Administrative Professionals Day, so a big shout out and thank you to all TYA MDT Co-ordinators and Admin people who are a massive part of each TYA team.
#TYACAM
⏲️ There's just over a week left to have your say and contribute to our new national cancer plan.
Your views and ideas will help us improve cancer care and meet our goal of reducing lives lost to the biggest killers.
To participate, visit: gov.uk/government/calls-for-…
ALT National cancer plan. Have your say. A graphic featuring text and icons including speech bubbles with the words diagnosis, treatment and living with cancer.
Unfortunately getting a diagnosis quickly is a common occurrence for TYA patients, often having to go back to the GP several times.
#TYACAM
Toniie Rubio was diagnosed with thyroid cancer in 2023 at the age of 24. For #TYACAM, she shares the challenges she faced in getting a diagnosis and explains why it's so important to keep advocating for yourself when you're worried about your health 💛🗣️
bit.ly/3EaBjOB
Getting TYA feedback is so important. An example from the team in Scotland
#TYACAM
This month is Teenage & Young Adult Cancer Awareness Month. I asked some of the young people I work with what they want other people to know about what it’s like being a young person with cancer. They chose to share:
#awarenessmonth @TeenageCancer
@eleanor__p was diagnosed with Hodgkin lymphoma in 2011 aged 15. In Contact magazine, she explains how she found support from other young people with cancer and how she’s hoping to help those who are newly diagnosed 💛 #TYACAM
bit.ly/4j8XKCY
Eilidh Mackay was diagnosed with leukaemia when she was 14, and while undergoing treatment, she was also diagnosed with thyroid cancer.
Supported by CCLG’s Living beyond cancer resources, she shares her story to raise awareness this #TYACAM 💛
bit.ly/41UE8fJ
Great to see this research project in osteosarcoma
#TYACAM
We are proud to announce a new co-funded research project with @cclguk 🧪
The study, led by Dr Pardo @imperialcollege, will replicate osteosarcoma cells travelling through the bloodstream to understand how this aggressive bone cancer spreads.
Visit: ow.ly/3vx250VACeu
ALT A 3D illustration of cancer cells migrating to other tissues and organs, creating metastasis. At the bottom third of the image is the Bone Cancer Research Trust logo to the left and CCLG's logo to the right.
Take a look at this event 👇👇
#TYACAM
How can we improve care for teenagers and young adults with cancer? Join us for our latest webinar with Professor Dan Stark as we discuss what’s needed to make young people's cancer care better 💛
Register now to secure your free spot: bit.ly/3Yhg6JN
#TYACAM
It’s not just patient care that TYA teams do. They also support families and loved ones
#TYACAM
Today was our annual remembering service, which is held for families and loved ones of young people who are no longer with us.
A massive thank you to @WPCancerCharity who help fund this day. Collaborative work in practice @YLvsCancer @TeenageCancer @SheffieldHosp
Did you know that #TYACAM is an international awareness collaboration?
'I wanted to be normal really, I just wanted to be like everyone else.'
It's Teenage and Young Adult Cancer Awareness Month, and 15 year old Emily talks about how her blood cancer diagnosis affected her and some of the challenges she felt ❤️ #TYACAM #TeenageCancer