Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement. Opinions my own.
TO
Joined September 2011
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📢I wrote a letter to folks who aren't convinced about #PatientEngagement in research to challenge some of their thoughts. I hope it gets people thinking bmj.com/content/388/bmj.r133 - 🙏 @bmj_latest for publishing. #PPI #ConsumerInvolvement
Dr. Dawn Richards, PhD retweeted
Partnering with patients and the public in the clinical trials ecosystem: a decade of lessons learned and shared - a new communication article by @TO_dpr et al. bit.ly/4iNfLJz
Dr. Dawn Richards, PhD retweeted
🌎How are research teams engaging patients as partners in different parts of the world?
☑️Check out case studies from Brazil and Australia in this session recording from the #PxP25conference in September: youtube.com/watch?v=LBW8AnKt…
Dr. Dawn Richards, PhD retweeted
🚂How do you get research to the people who can learn or use something from it?
Get some ideas here: youtube.com/watch?v=gwdedwRm…
Dr. Dawn Richards, PhD retweeted
3/ Check out our latest newsletter here for an update on the PxP funding model: mailchi.mp/pxphub/pxp-next-s…
#PPI #ConsumerInvolvement #PatientEngagement
Dr. Dawn Richards, PhD retweeted
1/ We’re undertaking an informal scan of the current status of patient engagement across the globe. This will help us shape the next phase of PxP and determine new goals.
💭Thoughts can be shared directly with our team by emailing: [email protected]
ALT How has patient engagement changed in your region over the last 3-12 months?
Dr. Dawn Richards, PhD retweeted
In case you missed it, our #Canadian #Conference videos are up!
We could use some help getting them shared around too. We’re still exhausted and recovering from the conference itself. So any help would be massively appreciated. 💙
Hey everyone. Our #conference videos are up on YouTube. 💙
Please #subscribe to our channel to help us drive traffic and engagement and watch and like our #ICanCME2025 videos.
youtube.com/@icancmeresearch…
Dr. Dawn Richards, PhD retweeted
A couple of Canadian journalists (myself included) have started a fundraiser for local Tumbler Ridge journalist Trent Ernst. Since the shooting, he's stopped writing. We're hoping to get him some short-term support for these hard times.
Donate here: gofundme.com/f/support-trent…
Heartbreaking to read these reflections from Tumbler Ridge local newsman Trent Ernst. All strength to him as the town he reports in & on daily enters the global spotlight. You can support his hyperlocal journalism (which is so vital and so lacking) here: tumblerridgelines.com/suppor…
Dr. Dawn Richards, PhD retweeted
How are patients are changing the research system from within?
youtube.com/watch?v=Wf5vJ9sd…
Dr. Dawn Richards, PhD retweeted
Learn more about evidence-based advocacy and using justice-informed, trauma-informed approaches to patient engagement in health research.
🎥Check out this webinar recording from the #PxP25conference: youtube.com/watch?v=-xoHZmA8…
Dr. Dawn Richards, PhD retweeted
💭How do you navigate owning your lived experience as one aspect of your identity?
youtube.com/watch?v=F39Ulqbe…
Dr. Dawn Richards, PhD retweeted
At #PxP25, we hosted three unique sessions that weren’t recorded for our YouTube channel to create a safe space for open dialogue. Check out the anonymized illustrations from these sessions here, along with other artwork from this year’s conference:
pxphub.org/pxp-2025-artworks…
Dr. Dawn Richards, PhD retweeted
📚Read an anonymised summary of attendee discussions here: pxphub.org/journeys-of-impac…
Dr. Dawn Richards, PhD retweeted
Do you feel like an "accidental advocate"? During #PxP25, speakers and attendees spoke about how their personal health journeys led them to advocacy and research in a way they had never imagined.
🎥Session about different pathways of patient partners: youtu.be/2Rht0OAVSR8
Dr. Dawn Richards, PhD retweeted
How can you lay the groundwork for successful patient partnership?
#PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role.
🎥 Watch back: youtube.com/watch?v=EnJ6y6c0…
📣 Interested in #PPIE, #PPI, #PatientEngagement, #CoProduction in research (or whatever your term is for it) and the concept of power dynamics? Join me and Therese Lane on Nov 25 at 12 pm eastern for a conversation on this- tinyurl.com/4brnknxj - everyone is welcome! 1/2
We'll be talking about the 4 power themes in this paper researchinvolvement.biomedce…, and sharing some anonymous real examples - including how more equitably share power on research teams that include patient/public members. #PPIE #PPI #PatientEngagement #CoProduction 2/2
Dr. Dawn Richards, PhD retweeted
Pain Toolkit In Conversation 14th November 2025 youtu.be/fDCjxe8hZKs?si=HeVW… via @YouTube
Pain Toolkit In Conversation 14th November 2025
With ...
Susan Schellinck, OT
Mary Wing
David Flusk Dr.
Mark Kargela PT
Facilitators
Keith Meldrum
Pete Moore
