Charity founded in memory of Traice Lawlor(24) who died in 07. Our aim is to empower, educate & raise awareness of Cystic Fibrosis

Ireland
Joined July 2009
Tracie Lawlor Trust retweeted
Final construction date for new National Children’s Hospital may be delayed again buff.ly/Z2Llgtd
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Tracie Lawlor Trust retweeted
Please Read & Share - My Analysis of #Disability & #Caring in #GE24 - Especially In Light Of Taoiseach’s Interaction With #CharlotteFallon - Opinion: This election exposed disability services for what they are — the scandal of our age (via @thejournal_ie) jrnl.ie/6560940
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Replying to @caulmick
Letter 2015 signed by leading clinicians in neonatal care. “Co location with a physically linked maternity hospital is in our expert opinion, non negotiable.” Children’s lives will be put at risk transporting them around the city. @DonnellyStephen @SimonHarrisTD @CHI_Ireland @CeoHardiman @BernardGloster
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Tracie Lawlor Trust retweeted
The contentious €2.3 billion National Children’s Hospital is in the wrong location, a leading paediatrician said yesterday. Dr Suzanne Crowe said the facility, being built at the St. James’s Hospital campus, should have been co-located on a greenfield site with the national maternity hospital. #NCH #HowIrelandWorks irishmirror.ie/news/irish-ne…
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Tracie Lawlor Trust retweeted
My Response to #Budget2025 - Whilst I Acknowledge The Small Meagre Increases to #Carers & #Disability Allowances & Tax Reliefs - They Do NOT Reflect Crisis of Poverty & Unmet Need in Ireland - #Disability Allowance & #Carers Allowance Should Be Non-Means Tested Universal Payments
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Tracie Lawlor Trust retweeted
As We Approach #Budget2025 & Final Countdown to General Election - I’m Appealing Directly to Taoiseach ⁦@SimonHarrisTD⁩ to Please Name The Date for Full Ratification of #UNCRPD - You Can Do It Taoiseach - Is Féidir Leat -A Fundamental Human Rights Approach for #Disability✊
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The ECFS has published 4 papers, updating standards for the care of people with CF. Covering everything related to living with and caring for people CF they are a great source of information for all CF teams. More information on: ecfs.eu/ecfs-standards-care/…
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Tracie Lawlor Trust retweeted
Golden Farewell! 🥇🥇 Kellie Harrington takes gold in Paris after her Tokyo 2020 triumph. As the only Irish woman athlete to win two golds, she retires at the pinnacle of Olympia. You’re a true inspiration, Kellie. Enjoy your well-deserved moment! #Paris2024 🎨 @muvergraphics
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Very upsetting watching the documentary #FightToFly on @Channel4 Here we see one story where the presenter has to drag himself along the floor of a brand new aircraft because their is no transport seat onboard to allow him the dignity of the bathroom. #discrimination
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Anyone get the invite to this event held today?
Ministers @rodericogorman and @AnneRabbitte host pre-Estimates forum for disability services. Full Press Release Here: tinyurl.com/y44a357v
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Tracie Lawlor Trust retweeted
👇There Are Tens of Thousands of #Disabled Irish Children & Young Adults Suffering Life Limiting Outcomes on Chronic Waiting Lists - Now Is The Time For Accountability - Exactly Who - What Managers in ⁦@HSELive⁩ & ⁦@CHI_Ireland⁩ ⁦@roinnslainte⁩ Are Responsible?
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Tracie Lawlor Trust retweeted
Tess Finch-Lees: We’re drowning in a wave of Covid, but hospitals aren’t even insisting on masks buff.ly/4clXc9B
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The headline doesn’t do the story justice! What are the design flaws you say? Consultant discovers that in the worlds most expensive hospital some of the consultant rooms have no wheelchair accessibility. That’s right no access for children wheelchair users in a €2.2bn national children’s hospital. Seriously!!!!!!! 😩 @DonnellyStephen @IrishWheelchair @HSELive
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"Respite is not a luxury, it is a necessity and it gives family carers a chance to rest and give us a well-earned break... It is also the difference between parents coping with caring 24/7 and preventing carer burnout." Moira Skelly speaking at The State of Caring 2024 launch.
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Finally for this mornings session, we have Elizabeth Sheppard from Manchester, U.K. presenting on An evaluation of weight loss in patients undergoing eradication therapy for Pseudomonas Aeruginosa. #ECFS
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The annual cost of medical negligence has exploded from €74million in 2010 to almost €360million in 2022 The human & financial cost of the clinical negligence claims system reveals a system that is not fit for purpose & has not been for some time extra.ie/2024/02/26/news/iri…
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Tracie Lawlor Trust retweeted
THE manager who was on call at University Hospital Limerick when tragic teenager Aoife Johnston went there look for care is on leave from her job as a key advisor to Health Minister Stephen Donnelly. Former rugby International Fiona Steed began working at the Department of Health five months after the 16-year-old died of meningitis. -Valerie Hanley #HowIrelandWorks #RipAoifeJohnston #UHL
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