@StopSMA

A treatment for the otherwise untreatable disease, SMA, is not far flung theory; It is almost a reality. Our mission is to close the gap.

 Raymond, MS
stopsma.org/
Joined September 2009
  • Tweets1.2K
  • Following16
  • Followers661
My nephew Walter (SMA type 2) and Evie (SMA type 2); Walter has been on Spinraza since he was 3 weeks old. fb.me/1klUEhTFx
We are thrilled about all the wonderful things happening with Spinal Muscular Atrophy! fb.me/3oMrgAg1T
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It's safe to say Stephen Clark's Christmas gift came early this year - and we couldn't be happier for him!... fb.me/5AvIVyCAJ
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Today, the SMA community achieved a goal that would not have been possible without the support and dedication of... fb.me/2PJuqGpi0
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Big News!!! First ever FDA approved treatment for SMA! I don't even know how to thank everybody who worked on... fb.me/1EwxNVWxq
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We want to thank our local theater group, Campanile Productions, for the opportunity they gave Evie to play Beth,... fb.me/1BWPbGKcl
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fb.me/10cTjmA3G
Exciting news with SMA research! fb.me/58w9XNVVx
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Stop SMA has been blessed with some wonderful talent at Laugh Away SMA over the years. Tonight we would like to... fb.me/8urqpsk3P
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Wishing you and yours a very Merry Christmas! Christmas is for giving And for showing that we care, For honoring... fb.me/4ZCLZQoUk
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As a rare disease, SMA needs people that are not affected by the disease directly in their family to be champions... fb.me/1XrOxRD08
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In honor of Back to the Future, let's go back in time and reminisce about the incredible night we had with Tom... fb.me/6T8bM4y0P
Stop SMA is thrilled to be able to give Cooper (SMA type 2) independence and mobility through our Chase Me... fb.me/6TTXF91Hd
I posted a new photo to Facebook fb.me/35ZCBO5nk
fb.me/1OFdlyEeu
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Henry and Dave having a good time with the kids Saturday night! Thank you to everyone that joined in on the fun... fb.me/3QXq0Sroo
From 1:00-6:00 TODAY. Go get some chicken and tell them SMA sent ya! 🐓 fb.me/2gxRsCP9S
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Dave has arrived! He's happy to be here and ready to have a great time tonight. Come on out and enjoy a few... fb.me/2a79gCaLp
TONIGHT! Dave Coulier and Henry Cho at the Muse Center in Pearl, MS. Tickets available at door. Show starts at... fb.me/49AKNXHGB
TONIGHT! Dave Coulier and Henry Cho at the Muse Center in Pearl, MS. Tickets available at door. Show starts at... fb.me/25v5P91BA
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