Christian interested in disability, poverty, welfare, & justice. Author: Just Worship; Second Class Citizens. Chronically ill/ELCI: hEDS, PoTS & fibro/?SFN.

Joined January 2012
Stef Benstead retweeted
Telling an exhausted family carer to "take care of yourself" means very little if nobody is willing to take something off their plate.
18
87
7
600
7,049
I'm also intrigued by 'pay for healthcare services' being in the 'wellbeing-enhancing activities' list. Yes, it is W-E to be slightly healthier. But at that point we might as well put work, volunteering, training, caring (because it's 'giving to others') in this group too.
1
149
I think it might have been better to have had three groups: economic, health/practical, wellbeing. Economic - care, work, volunteer, train Health/practical - treatments, home help, aids, taxis, utilities etc Wellbeing - religion/community, pets, hobbies, nature, social, self-care
1
2
135
RF say that they chose the answer options for 'wellbeing-enhancing activities' based on NHS Five Steps to Mental Wellbeing. This lists: - connect with other people ('socialise); - be physically active ('exercise'); - learn new skills ('hobbies'); - give to others; - mindfulness
1
161
I'm not seeing a particularly close overlap between RF's five 'wellbeing-enhancing activities' and NHS Five Steps. So how were RF's five chosen? I'd like to see an option for family life/community/religion. What else do you think is missing from their list?
1
1
154
What do people use their PIP for? Based on the @resfoundation report (I haven't seen the survey questions and answer options), RF only gave respondents the following options: (Economically valuable activity) - childcare; - other care; - training/education; - work; - volunteering.
5
1
1
6
1,526
If I said that something helped me to live more independently, I could be talking about: - an assistance dog; - home help, so I don't have to live with my parents; - taxis, so I don't have to rely on family; - mobility aids, so I can actually get out of my house; - small aids.
1
193
When I think about what I need in order to socialise, then I need mobility aids, taxis, an assistance dog, small aids/braces. Ditto for hobbies. But these also come under 'live more independently'. Treating these as separate issues doesn't work for my kind of illness.
1
167
I'm going back to Chapter 1 of the @resfoundation report, #HardTruths, on #PIP I started with Ch2 yesterday because I was interested in the claim that some PIP recipients don't need this. Sadly, I feel that RF just didn't collect enough data to allow them to make this claim.
6
9
1
24
1,029
If - PIP was designed to give more support to people with 'mental' conditions, and less to people with 'physical' conditions, compared to DLA; - there's growing recognition of the disabling nature of many 'mental' conditions; - PIP has increased the awards for 'mental' conditions
1
4
71
Then where's the problem? PIP is doing what it was designed to do, in recognition that it needed to do this. And yet somehow we should also criticise PIP for being better than DLA at giving support to people whose needs were under-recognised by DLA.
1
6
71
Replying to @resfoundation
@resfoundation "We recommend retaining a points-based functional assessment as the gateway to receiving PIP, but improving what is included in the assessment." I also wonder if there's merit in a DLA+ approach (based on amount of care needed, plus some additional questions).
1
1
57
Improvements I'd like: - PIP DL activities expanded; - consideration for things like higher utilities, clothing, dietary costs; - a new level inserted above the current Enhanced rate; - a mechanism for considering how engaging in Activity A impacts on the ability to do Activity B
9
Replying to @resfoundation
@resfoundation explain that a condition-based assessment for PIP would not work. "Most people have several conditions, in combinations that are rarely shared, and where conditions alone are a poor guide to both how people are affected by their disability day-to-day" + extra costs
1
1
3
99
"Conditions are not a good proxy for disabled people’s needs or the additional costs they face." (Albeit where someone has a severe, static disability, e.g. severe visual impairment and no other illness or impairment, there may be some scope for a simplified assessment).
1
1
22
Replying to @resfoundation
@resfoundation rightly note some of the problems with a disability benefit assessment that attempts to directly assess individual people's extra costs: 1) It's very difficult to actually separate some disability-based from non-disability expenses; and
1
1
50
2) "Even if we were able to measure all aspects of the additional spending that arises because of people’s disabilities, the amount of this additional spending will depend on both their underlying needs and costs and their ability to meet those costs (i.e. their income)."
1
1
29
"Moving to a...disability benefit assessment that measure people’s actual spending would likely mean that the sort of large expenditures that could make a big difference to disabled people’s lives... would be underrepresented, while small everyday costs would be overrepresented."
1
3
30
Stef Benstead retweeted
Granted, my mobility needs = expensive aids, but the Mobility component has always considered this need. I'm struggling to see why an assessment of how much help I need from another person *isn't* an assessment that helps my independence. Genuinely interested to hear from others.
1
1
2
63