
We're a user-led non-profit, working to ensure everyone can have a say in the services they use. #InclusiveInvolvementMatters #LivedExperience
A national organisation
Joined June 2012
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Shaping Our Lives retweeted
We proudly present our #VXLabs Consultation report with findings and recommendations following our consultation with #disabled, #Deaf and #Neurodivergent artists and partners across #England!
Read and share: vitalxposure.co.uk/vxlabs/#c…
#Access #Theatre #Intersectionality #Research
Shaping Our Lives retweeted
NEW BLOG: What’s needed to strengthen research-practice collaboration in social care?🤝
@HannahKendrick6, @AnnetteBoaz + @JulietteMalley outline approaches to research engagement + how these can be strengthened in #SocialCare.
READ NOW:👉lse.ac.uk/cpec/news/research…
@Solnetwork1
Shaping Our Lives retweeted
NSUN has today published a new report exploring experiences of menstruation within psychiatric inpatient settings by survivor researcher @hatporter.
Scroll for a summary of the report and its findings 🧵
nsun.org.uk/resource/menstru…
Shaping Our Lives retweeted
In our latest blog the team behind the “Amar Bari Amar Jibon” (My Home, My Life) research study @AmarBariUK, @OpenUniversity and @manik_gopinath, share insights and reflections on how to do effective #coproduction in a multicultural context.
coproductioncollective.co.uk…
Shaping Our Lives retweeted
An unstaffed station, is an inaccessible station.
We must not let de-staffing happen, they’re coming back for schedule 17 on the railway which will only end in scenarios like this being commonplace & accessibility will be long gone.
⚠️Mill Hill East station
Step-free access is not available due to unavailability of station staff.
➡ To re-plan journey: tfl.gov.uk/plan-a-journey
Shaping Our Lives retweeted
“Being involved in this project has given me a purpose beyond my caring responsibilities.”
Read this blog from Jude, Karen & Lindsey about their project to improve experiences of care through diversifying lived experience representation: sites.google.com/nihr.ac.uk/…
@ARC_NWL
Shaping Our Lives retweeted
Lyla is conducting a study on wellbeing and burnout among disability activists. She is interested in your views if you are a disability activist working or volunteering in disability rights or disability justice in England. You can access the survey here: lse.eu.qualtrics.com/jfe/for…
Shaping Our Lives retweeted
While much has been gained in the "lived experience movement", there are still people who are neither able or willing to participate, largely due to issues of access and power.
@cbuckler_ explores the complexities of claiming community in their new report:nsun.org.uk/resource/explori…
Shaping Our Lives retweeted
for a different way of thinking about our mental wellbeing check this out
Shaping Our Lives retweeted
@Solnetwork1 has an involvement opportunities board & an involvement jobs board for roles in this kind of area - both are great!
shapingourlives.org.uk/invol…
shapingourlives.org.uk/invol…
Shaping Our Lives retweeted
Are you looking to involve patients and the public in your research but aren’t sure how to start?
Take a look at the resources that could help you get started: learningforinvolvement.org.u…
Shaping Our Lives retweeted
Really excited that our new Lived Experience Research Fellow roles @MentalHealthPRU are now open for applications.
More details here:
ucl.ac.uk/work-at-ucl/search…
Please help spread the word!
Shaping Our Lives retweeted
This next session at #SocialWorkWeek2024 will be led by the international network PowerUs and discuss how we can meet the global aims for social work.
With @OpenUniversity @lunduniversity @uniofeastanglia @TISSpeak and @Solnetwork1
ow.ly/GYre50QVOcG
Shaping Our Lives retweeted
Imagine working 24 hours a day, 7 days a week, always on call never able to take a break. Family carers do this. Another great piece of journalism @Channel4News highlighting how families have to beg for a break for their disabled sons or daughters. Noone should fight for respite.
Shaping Our Lives retweeted
Patients & the public can drive change. Yet public involvement is often overlooked when it comes to disseminating & implementing results.
Our Evidence Collection makes the case for working with members of the public & includes practical tips for doing so: evidence.nihr.ac.uk/collecti…
Shaping Our Lives retweeted
We’re marking the anniversary of the launch of our #SharedCommitment to improve #PublicInvolvement in health and social care research.
We’re working with organisations like @HRA_latest on this initiative.
nihr.ac.uk/documents/shared-…
Shaping Our Lives retweeted
There’s never been a better time to get involved in health & care research! Do you want to find out how you can make a difference?
Our Public Information Pack answers your questions about what it's like to get involved: nihr.ac.uk/documents/public-…

ALT Do you have questions about public involvement in research? What will I be expected to do? What difference will I make? What training and support will I be offered? What can I contribute? How will I benefit from being involved Have I got the right experience to be involved? Our Public Information Pack is a great place to find out more!
Shaping Our Lives retweeted
Shocking new research shows that 29 per cent of disabled people refuse to use public transport because of the prejudice they face. Another example of exclusion and disabled people being left behind. express.co.uk/news/uk/187170…
Shaping Our Lives retweeted
A £6 billion government scheme that will enable 20,000 affordable homes to be built across England does not require housing providers to build a single accessible property, the company running the programme has admitted.
buff.ly/3OUVOkp
Shaping Our Lives retweeted
Stop charging advocates living with the disease for which your event caters the same as professionals. Nobody is paying for us to attend for 'professional development'. No one is covering our expenses. If you're talking about us, make it accessible to us with appropriate pricing.






















