Physician;Parkinson's patient, educator and speaker; passionate advocate for PD research;inspiring those with PD to face the challenge and live well despite PD.
Joined November 2011
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Soania Mathur, MD retweeted
The FNIH values our partnerships with amazing people like Parkinson’s advocate Dr. @SoaniaMathur, who shares her insights and lived experiences to support our Accelerating Medicines Partnership® for Parkinson’s Disease and Related Disorders. brainandlife.org/articles/mo…
@PdAvengers
Soania Mathur, MD retweeted
Here's a free ebook on 'What Parkinson's Feels Like'. It's a collaboration with Parkinson's Europe & many people from around globe including: @plantsbloke @DaveClarkTV @RichelleFlan @SoaniaMathur @Florenc44206536 @Giffordtweet and many others parkinsonseurope.org/2024/11…
Soania Mathur, MD retweeted
“Parkinson's like an unwelcome guest who's still in my house when I return & have to look after them. They try holding me back as I do my best to face the challenges that are inevitable.”
Illustration inspired by : Richelle Flanagan, diagnosed @ 46.
Soania Mathur MD, DX @ 28
Soania Mathur, MD retweeted
“... By working together, we aim to leverage genetic insights and biomarker-driven development to accelerate the availability of effective treatments for people living with Parkinson’s disease.”
Carole Ho, MD
Chief Medical Officer of Denali Therapeutics
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Parkinson’s disease affects nearly one million people in the U.S. and 8.5 million worldwide. Early and accurate diagnosis is challenging due to similarities with other neurological disorders, and available treatments can only manage symptoms, not offer a cure.
Today the FNIH is proud to announce the launch of the Accelerating Medicines Partnership® in Parkinson’s Disease and Related Disorders (AMP® PDRD). This public-private partnership aims to identify and validate biomarkers that will differentiate Parkinson’s disease from related disorders, leading to earlier diagnoses, more timely interventions, and better treatment options.
Read the full press release here: fnih.org/press-release/the-f…
@NIH @NIH_NINDS @NIHAging @US_FDA @ASAP_Research @C2NDiagnostics @CurePSP @GSK @GSKUS @sanofi @SanofiUS @MichaelJFoxOrg
#ParkinsonsDisease #Parkinsons #NeurologicalDisorders #FNIH #BridgestoBreakthroughs #AcceleratingMedicinesPartnership #PublicPrivatePartnership #AMP
Privileged to have been part of a panel at the @WHO launch of the toolkit for their Intersectional Global Action Plan on epilepsy and other #neurological disorders. Great resource for policy makers and others! who.int/news/item/08-07-2024…
#Parkinsons is a 24 hour disease, there is no real reprieve from the symptoms. Managing those nocturnal and sleep symptoms is impt for quality of life. Thought I would share my personal experience unshakeablemd.com/post/can-t…
Soania Mathur, MD retweeted
This is a very special and beautiful moment
#Parkinson
Soania Mathur, MD retweeted
“You know, as a mom, it is so hard, you know, not being able to do all the things that I want to be able to do for my children.” A heart felt discussion between @SoaniaMathur, @omotolathomas8, @katshill1966 and myself on living with PD this #MothersDay
michaeljfox.org/podcast/real…
Soania Mathur, MD retweeted
We are thrilled to share this news! For Love and Life: No Ordinary Campaign, the inspiring documentary about the founding of I AM ALS, will begin streaming on @primevideo on May 28th!! #ForLoveAndLife @primemovies @amazonmgmstudios
Hope is his superpower, progress is his legacy. Celebrate Brian Wallach in #ForLoveAndLife: No Ordinary Campaign, streaming May 28.
Loved speaking with other women with #parkinsons as we navigate life and advocate for advances to meet the unmet needs of women in our #PD community michaeljfox.org/podcast/real… & collaborating with pioneering med professionals like @DrISubramanian movementdisorders.onlinelibr…
Soania Mathur, MD retweeted
What an amazing conference! Together, we can achieve so much progress. Thank you, Soania, for your wisdom and support. I’m so optimistic that our children will not live with Parkinson’s. @SoaniaMathur
Had the privilege & pleasure of speaking with Dr. Brian Goldman and Jennifer Warren for the podcast White Coat Black Art about living with the impact of #YOPD #Parkinsons @cbcwhitecoat @NightShiftMD cbc.ca/listen/live-radio/1-7…
Privileged to have the opportunity to speak with @MichaelOkun about #Parkinsons treatments coming down the pipeline. He has the amazing ability to translate complex scientific concepts to easily understandable information. Such a pleasure to get a yearly update!
Do you know all the emerging therapies to watch for in 2024 and beyond targeting Parkinson's disease? Once a year @SoaniaMathur picks my brain for an hour on the @DavisPhinneyFND webinar. The full interactive interview is up on their @YouTube channel, and we pasted a teaser video below. Do you know what CRISPR stands for? Will we see a rebirth of regenerative medicine? Do you know what symptoms the patch will help with or what brain receptors are 'hot in Parkinson's research'? Should you be thinking about which DBS device to get or is that the wrong question? This is our 'three-peat,' as we take on all the questions associated with emerging Parkinson's disease therapies.
The full interview and discussion just went live.
youtu.be/rlQon13pdis #Parkinsons
Soania Mathur, MD retweeted
April is #ParkinsonAwarenessMonth
Spent day @ParkinsonCanada w/ #researchers #trainees #PeopleLivingWithParkinsons to help increase #PatientEngagement in #Research
@Neuronologist1
Dr. @SoaniaMathur
Dr. Kaylena Ehgoetz Martens
Dr. @jude_bek
@Dr_KarenLee
#Parkinson #Parkinsons – at Toronto, Ontario
Soania Mathur, MD retweeted
Very interesting and productive workshop today
@ParkinsonCanada discussing patient engagement with people with Parkinsons, caregivers, and researchers. Lots of good ideas to take forward to help improve the impact of #Parkinsons research @SoaniaMathur @Neuronologist1 @RonBeleno
Soania Mathur, MD retweeted
PD Avengers continue to call for change for #Parkinsons - @CureParkinsonsT are proud supporters - thank you @Giffordtweet @SoaniaMathur @TimHagueSr brilliant leadership as ever.
SPARK THE NIGHT | World Parkinson's Day 24-Hour Live Stream APRIL 10th 5PM (PST) youtube.com/live/0yrU7mDswU0… via @YouTube
Soania Mathur, MD retweeted
Our advocate-led paper was just published in the Journal of Parkinson's Disease: Perspectives of People At-Risk on Parkinson's Prevention Research. @JohnPomaRVA @SoaniaMathur @GraceCrottyMD @virginia_gao @sacastillot @KB_Schroeder content.iospress.com/article…
Soania Mathur, MD retweeted
SO looking forward to this webinar & panel discussion with leading experts in PD research - Prof Caroline Tanner; Prof Elena Moro and Prof Aideen Sullivan with @SoaniaMathur as moderator, and myself & Annelien Oosterbaan. Register cureparkinsons.org.uk/2024/0…
Ahead of #InternationalWomensDay we’re hosting a free webinar about women with Parkinson’s to address the sex and gender gaps in research! Join our female-led panel of Parkinson’s experts on Tuesday 5 March at 8pm: buff.ly/49uK93Z
#ParkinsonsTogether #CureParkinsons
Soania Mathur, MD retweeted
Check out the swag shop with Steven Williams and Paqui Ruiz designs from the Spark Art Contest! Sponsored by @AbbottNews worldparkinsonsday.com/swag/
Help Support Spark the Night 2024 on April 11th and get the #sparkart Merch!
Soania Mathur, MD retweeted
Partner in Parkinson's Bernard Coley speaks frankly about the past transgressions against the black community and others which has caused mistrust in the medical community. #BlackHistoryMonth youtube.com/watch?v=GEpGxARd…
