Stage IV prostate cancer at 52. No symptoms. PSA 4,056 → undetectable. NICE Patient Expert. Founder, Smart As Daddy. If you think you’re too young — so did I.
Joined March 2026
- Tweets443
- Following81
- Followers40
- Likes482
Pinned Tweet
£25 million a year to screen the highest-risk men. £4.5 billion to treat the men diagnosed too late. The NSC looked at those numbers and said no. That’s not a clinical decision. That’s a policy failure.
Eight days of life-extending cancer medication left in the cupboard.
Prescription approved. No delivery. I'm not the one who forgot.
A system that requires patients to advocate for their own care rewards health literacy and penalises everyone else.
If you were told you had "low-volume" mHSPC on a CT scan, this @LUMC_Leiden paper matters. On PSMA PET/CT, total tumour volume predicts survival independently — and the proposed new threshold (≥150 mL or any visceral spread) would flip some men into the higher-risk group.
doi.org/10.1007/s00330-026-1…
Prostate cancer runs in my close family. I was 52, told I was too young. My PSA was 4,056 by the time anyone tested me. The open call to submit evidence on this closes 30 September. I’m submitting on the family history question.
Wrote more on this on LinkedIn this morning, including the evidence the Committee says it’s already looking at:
linkedin.com/posts/pgwingrov…
UK Government accepted the National Screening Committee’s recommendation against national prostate cancer screening on 2 June 2026.
17 days earlier, Cochrane published the definitive review on that exact question.
Two dates. Cochrane’s own words. A short thread. 🧵
The UK NSC meeting on 26 March 2026, where the recommendation was confirmed, had 13 voting members.
No urologist. No prostate cancer clinician.
No prostate cancer patient. The evidence base was uneven. The clinical expertise weighing it was uneven too.
Full analysis, with Cochrane and gov.uk sourcing:
linkedin.com/posts/pgwingrov…
The Cochrane review is public. The certainty ratings are in it. The “insufficient evidence” clause is in the plain-language summary — not buried in an appendix.
Read it. Weigh it yourself.
Ask not what your country can do for you” was written with a speechwriter. That’s not inauthenticity. It’s wanting the ideas to hit home.
Full argument on LinkedIn ↓
linkedin.com/posts/pgwingrov…
We need 11,815 more signatures to reach 100,000 on the parliamentary petition for prostate cancer screening.
That’s close to the number of men the UK loses to this disease every year. One every 45 minutes.
If you haven’t signed yet, now’s the moment.
Sign here: petition.parliament.uk/petit…
Today is Cancer Survivors Day.
I’m not a survivor. I’m under lifelong treatment. Challenging the dragon every day. One of many, across all sorts of cancers.
And that’s a story that doesn’t get told enough.
There’s a version of cancer everyone expects. Chemo ends. You ring the bell. People clap. Life resumes. For a lot of people that’s true, and I’m glad it is. But there’s another room. And the person in it knows the bell is just one step.
Eighty-two years ago today, young men walked into the water at Normandy. Most of them were scared. You can see it in the photographs. They went anyway.
And not just on the 6th of June. Every single day after. Knowing what it might cost them. For many, it cost everything.
Here is something I keep thinking about.
My Grandfather was in the RAF. Stationed in Cape Town before they deployed to Egypt. That’s where he met my Gran. Once he was deployed, he wrote to her weekly. About everyday things, and about how he loved her. He sent handsome pictures. He was there facing a deadly task.
My Grandfather wasn’t at Normandy. But the weight of what those men were carrying, especially on the beaches on D-Day, we will never really understand. I know this — courage rarely feels like courage from the inside. It feels like fear, and then doing the thing regardless. That is the job. We will remember them.
Today the Government announced screening for Black men aged 45–74 and a small BRCA2 sub-group. Both welcome. Both overdue.
But I was 52. White. Family history. Not in the system. PSA 4,056. Stage IV.
Under today’s announcement I still wouldn’t have been caught earlier.
64,000 diagnoses. 47% late stage. 12,000 deaths.
A step forward. Not a programme.
Update: read the small print.
The government’s own press release confirms the expansion to all eligible Black men is subject to successful Stage 1 TRANSFORM trial outcomes. Rishi Sunak’s own response described it as “potentially” including all Black men.
A conditional promise tied to a trial still running is not a screening programme. Black men face 1 in 4 lifetime risk. They deserve certainty, not “potentially.”
So do the rest of the 64,000 men diagnosed every year.
