Shift Pharmaceuticals retweeted
Cure SMA has sent out over 1,500 Adult/Teen Support Packages that help with certain tasks at home or at work. Listen how important this package was to Eleanor Bolton, a young adult living with #SMA.
Support Cure SMA today at curesma.org/donate.
youtu.be/lfDjchjxMQY
Shift Pharmaceuticals retweeted
Finding #treatments & #cures for #CMT will take much more than just hope. It will require both strategic planning and dedicated action. We’re pleased to share a preview of the CMT Research Foundation’s plan for #2021.
cmtrf.org/action-plan-to-end…
#charcotmarietooth #morethanhope
Shift Pharmaceuticals retweeted
“It means everything to us to have a family like the SMA community. Other families are always trying to extend their hand or give advice. It is an amazing thing. We love our SMA family.”
curesma.org/community-spotli…
Shift Pharmaceuticals retweeted
In episode 72, Kevin Schaefer and Michael Morale reflect on the craziness of 2020, and they highlight some of the key pieces of content SMA News Today created this year. Listen to this podcast episode here! buff.ly/2Kr7pJA
Shift Pharmaceuticals retweeted
"Given that I’ve had so many surgeries in such a short period of time, you can imagine how difficult it has been to maintain steady employment, let alone a full-time career. All of that is on hold due to my CMT."
Read Chelsea’s #CMT story now.
cmtrf.org/cmt-surgeries-chel…
Shift Pharmaceuticals retweeted
"I’ve realized that while there are days when SMA puts up a good fight, it has never held me back from accomplishing whatever it is I set my mind to.
SMA may have won a few battles, but it has never won the war."
Click here to keep reading this column: buff.ly/3qJUd30
Shift Pharmaceuticals retweeted
Do you use voice recognition software to help you communicate in writing? Do you have a favorite app to help you type? We'd love to hear from you in our SMA forums. buff.ly/3g8iACU
Shift Pharmaceuticals retweeted
Dr. Monani, a Cure SMA research grant recipient, recently shared how important our grant funding is to #SMA research. Visit curesma.org/donate and make a gift today that helps support our research programs. 🧡✨💜
youtu.be/gLDQ2C6uo84
Shift Pharmaceuticals retweeted
Read our newest blog post by our CEO, Susan Ruediger, to learn how the CMT Research Foundation is utilising new knowledge to gain traction in their mission to develop approved #therapeutics for #CMT disease. Turning hope into answers.
cmtrf.org/thank-you-for-more…
#charcotmarietooth
Shift Pharmaceuticals retweeted
We invite you to join us this Wednesday, November 11th, at 12:00 p.m. CT for “Supporting Siblings in SMA-Affected Families”. The webinar will feature a presentation from Al Freedman, Ph.D., Child & Family Psychologist.
Register now:
register.gotowebinar.com/reg…
ALT Summit of Strength Webinar. Image description: A laptop sits open with a cup of coffee and notepad next to it.
Shift Pharmaceuticals retweeted
New study looks at the effects of curcumin in #CMT1A patients. Our Chief Scientific Officer Dr. @KeithNFargo shares what it means for people with #CMT: cmtrf.org/curcumin-and-cmt/
#charcotmarietooth
Shift Pharmaceuticals retweeted
“SMA has shaped my life. Not in a bad way or a good way, but it is part of who I am. It has opened my eyes, and the eyes of my friends, to the inequality we all still face in this world.” - Sarah Boggess
#NDEAM
curesma.org/community-spotli…
Shift Pharmaceuticals retweeted
Rule of thumb - general health maintenance is essential for everyone, especially during cold and flu season 😷! To reduce health complications, we recommend individuals with #SMA, their caregivers, and close contacts are up to date on immunizations.
curesma.org/flu-immunization…
ALT Common Flu Signs and Symptoms | Flu signs and symptoms usually come on suddenly. People who are sick with flu often feel some or all these symptoms 1-4 days after exposure: Fever* or feeling feverish/chills; cough; sore throat; runny or stuffy nose; muscle or body aches; headaches; fatigue (tiredness); some people may experience vomiting and diarrhea, though this is more common in children than adults. *Not everyone with flu will have a fever. Source: Centers for Disease Control and Prevention
Shift Pharmaceuticals retweeted
Tonight’s the big night! 🥳 Our first-ever virtual gala, the 2020 Cure SMA Evening of Hope: A Virtual Masquerade pre-show begins at 7:15 PM CT.🧡
It’s not too late to register and bid on some fantastic silent auction items up for grabs!
curesma.ejoinme.org/virtualg…
Shift Pharmaceuticals retweeted
"An accessible society is one where people can pursue their lives and careers fully and freely without fear of losing the services on which their lives depend."
Check out the latest #NDEAM spotlight, a perspective column by Spencer Cook:
curesma.org/community-spotli…
Shift Pharmaceuticals retweeted
Excited to be working with the @CmtResearch Foundation on an exciting new collaborative #PrecisionMedicine project for #CMT! Honored to be supported by folks doing such great work in the field. 🐯 🧬🔬 #mizzou @MizzouResearch
The CMT Research Foundation is pleased to announce a new #research program to develop a #precisionmedicine approach for #CMT disease. The program will be led by Drs. Lorson and Garcia.
Read more here: bit.ly/3nUN9zu
#charcotmarietooth #genetic #geneticdisease
Shift Pharmaceuticals retweeted
The CMT Research Foundation is pleased to announce a new #research program to develop a #precisionmedicine approach for #CMT disease. The program will be led by Drs. Lorson and Garcia.
Read more here: bit.ly/3nUN9zu
#charcotmarietooth #genetic #geneticdisease
Shift Pharmaceuticals retweeted
Many adults living with #SMA pursue post-graduate degrees, entrepreneurship, corporate jobs, and government and nonprofit work. While they face challenges when finding jobs, they also have tremendous success and add great value to companies.
bit.ly/3nPWUip
ALT People affected by SMA are students, lawyers, teachers, entrepreneurs, graphic designers, and artists, among a myriad of other roles.
Shift Pharmaceuticals retweeted
Amazon Prime Day deals start tomorrow and you can make an impact in the #SMA community while you shop!
Simply visit smile.amazon.com/ch/36-33204… or shop with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile donates to Cure SMA!
ALT Prime Day is almost here! Click the post link to support the SMA community through Amazon Smile.