SHEPHERD Foundation (@ShepherdFound) header
SHEPHERD Foundation (@ShepherdFound) profile picture

SHEPHERD Foundation

@ShepherdFound

Our mission is to revolutionize the rare cancer system: To redefine, redesign, and redevelop the patient journey so that all patients may live. #RareIsntRare

 Alexandria, VA
rarecancertoolkit.com/action-center
Joined April 2016
  • Tweets479
  • Following936
  • Followers830
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Photo by SHEPHERD Foundation (@ShepherdFound)Photo by SHEPHERD Foundation (@ShepherdFound)Photo by SHEPHERD Foundation (@ShepherdFound)Photo by SHEPHERD Foundation (@ShepherdFound)Photo by SHEPHERD Foundation (@ShepherdFound)Photo by SHEPHERD Foundation (@ShepherdFound)Photo by SHEPHERD Foundation (@ShepherdFound)Photo by SHEPHERD Foundation (@ShepherdFound)Photo by SHEPHERD Foundation (@ShepherdFound)Photo by SHEPHERD Foundation (@ShepherdFound)
WHY WEAR RARE ISN'T RARE? Because there are 500,000 "rare cancer" diagnoses each year. Because 380 out of 400 cancers are considered "rare" Because ALL children's cancers are considered "rare" #RareIsntRare Learn more: rarecancertoolkit.com/rare-i… #RareCancer #Advocate #WearRare
Image from SHEPHERD Foundation (@ShepherdFound)
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Today at 12:30pm ET: Congressional Briefing on cancer testing technology - mailchi.mp/8a4511efcc6d/cong…
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Congressional Briefing Thursday - Cancer Patient Equity Act (CPEA) - mailchi.mp/4f911f86d5c7/cong…
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TOMORROW: Cancer Advocacy Conversation - mailchi.mp/a1fe8c6e4f48/canc…
Image from SHEPHERD Foundation (@ShepherdFound)
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Join us this Thursday evening: Cancer Advocacy Conversation - mailchi.mp/86fccb524e8c/canc…
Image from SHEPHERD Foundation (@ShepherdFound)
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TODAY at Noon EST - Cancer Advocacy Conversation - mailchi.mp/71c47c14fc4f/canc…
Image from SHEPHERD Foundation (@ShepherdFound)
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Cancer Advocacy Conversation - mailchi.mp/e2b8d5bdaad4/canc…
Image from SHEPHERD Foundation (@ShepherdFound)
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Watch the @CureFest Sunrise Panel on preclinical #DIPG #research and data collaboration here: curefest.vids.io/videos/119d… #RareIsntRare #RareRevolution #RareCancer #cancer
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"I can't wait for the day that we're not terrified of losing a loved one to #cancer & instead we're rejoicing because #bipartisan groups came together & decided together that they would prioritize rare cancers, #ChildhoodCancer, ALL #RareCancers. " @LisaWardspeakup #RareIsntRare
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The Honoring our PACT Act recognizes toxic exposure as a cost of war. This bipartisan bill ensures that present and future toxic-exposed veterans can get the care and benefits they've earned. Watch @jonstewart explain why this bill is needed. ⬇️
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WHY WEAR RARE ISN'T RARE? Because there are 500,000 "rare cancer" diagnoses each year. Because 380 out of 400 cancers are considered "rare" Because ALL children's cancers are considered "rare" #RareIsntRare Learn more: rarecancertoolkit.com/rare-i… #RareCancer #Advocate #WearRare
Image from SHEPHERD Foundation (@ShepherdFound)
"Creating an equitable health care system that provides equal access to potentially live-saving diagnostics is something we all should be fighting for." - @AlonzoBodden HR5377.com #RareIsntRare #RareCancer #cancer #HR5377 #HealthJustice #HealthEquity
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SHEPHERD Foundation retweeted
Dr. Catharine Young (@DrCatharineY) profile picture
Dr. Catharine Young
@DrCatharineY16 Oct 2021
So grateful for the opportunity to talk with #childhoodcancertalkradio about the newly introduced #HR5377 bill that lays the groundwork for the acceleration of precision medicine for all cancer patients. #rareisntrare toginet.com/podcasts/childho…
Image from Dr. Catharine Young (@DrCatharineY)
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"We need to kill the cancer and not the patient." - Kara Amey, Rare Cancer Patient and Advocate Learn more now: HR5377.com #RareIsntRare #RareCancer #cancer #patient #educate #advocate #legislate #MolecularDiagnostics
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Thank you @kateesackhoff for supporting the RARE≠RARE campaign and supporting rare cancer #patients & #advocates by letting the world know that, with more than 500k diagnoses in the U.S. each year #RareIsntRare! Help us change the narrative here: bit.ly/3oOzFIv
Image from SHEPHERD Foundation (@ShepherdFound)
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For the 2nd year in a row, the White House was illuminated in GOLD! A special thank you to #ShepherdFoundation and #TeamBeans who are using their influence to inspire hope in our community, so that children and families all over the world will know that they are never alone.
Image from Carson Leslie Foundation #cureMEdullo (@carsonleslie3)
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Today is #RareCancerDay. Did you know all #ChildhoodCancers are considered rare cancers? Join the @ShepherdFound #RareIsntRare campaign to change the system.rarecancertoolkit.com/action…
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Heartfelt thanks to all participants & guests of our 2nd annual #RareCancerDay Congressional Briefing. Amazing group advocating for #research #MolecularDiagnostics for #RareCancer & #cancer #patient #equity. JOIN THE FIGHT & support HR 5377! Learn how: rarecancertoolkit.com/action…
Image from SHEPHERD Foundation (@ShepherdFound)
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@GKButterfield @RepGusBilirakis @LisaWardspeakup @LevineChildrens @EmCollective @AlonzoBodden @corrie_painter
#Cancer #Warriors #Patient #advocates - Thank you for working so hard to #makeadifference for millions! @ShepherdFound @LisaWardspeakup If you want to help #patients support the Cancer Patient Equity Act - HR 5377! #RareCancerDay
Image from Liz Powell, Esq., MPH - G2G Consulting Founder (@G2Gconsulting)
Image from Liz Powell, Esq., MPH - G2G Consulting Founder (@G2Gconsulting)
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Disproportionate impact of #cancer on people of color must end! Equity in care needed now! Join @AlonzoBodden @weSPARKsupport @EmCollective @ACCCBuzz @Fight2CureKids @SGO_org @smashingwalnuts @ShepherdFound in supporting HR 5377 #PrecisionMedicine @TheBlackCaucus @HispanicCaucus
Image from Liz Powell, Esq., MPH - G2G Consulting Founder (@G2Gconsulting)
Image from Liz Powell, Esq., MPH - G2G Consulting Founder (@G2Gconsulting)
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