Many patients with #chronicpain are told that nothing is wrong when their tests appear normal.
In my latest post, I explain why this gap persists and how the latest #painscience research can explain symptoms that imaging cannot capture.
We need to listen more closely to patients.
Read more: bit.ly/4yHgocU
Recently, I joined Karen Jagoda on the Empowered Patient Podcast to discuss #chronicpain, #fibromyalgia, #Lymedisease prevention, and the importance of improving awareness and understanding of conditions that too often go overlooked.
Listen here: bit.ly/4j5ttYL
On the Empowered Patient Podcast, #Tonix CEO @SethLederman, M.D., discusses Tonix’s focus on chronic, debilitating, and underserved conditions: bit.ly/4hajbVI
#ChronicPain #Fibromyalgia #Lymedisease
About 60 million American adults live with chronic pain. For many, the journey to diagnosis can take years.
In my latest op-ed, I discuss why chronic pain deserves greater recognition and why healthcare must continue advancing earlier diagnosis and treatment.
Read here: bit.ly/4yH54Nt
#ChronicIllness #PatientCare #Healthcare #Tonix
Ted Lasso's BELIEVE sign was never really about soccer. It was about refusing to write people off.
In my latest op-ed, I discuss why being believed is still the hardest part of getting care for millions with #fibromyalgia and other chronic pain conditions: bit.ly/4ccA8fg
#ChronicPain
"Don't tell me I have #fibromyalgia."
That's what many patients say, and it's a response to years of dismissal, misdiagnosis or lack of clear answers.
Read more in my new op-ed: bit.ly/4qfY1IJ
JFK kept rocking chairs everywhere. They were prescribed, not decorative.
In my latest op-ed, I discuss the pain behind Camelot and why millions with #fibromyalgia still wait years for answers: bit.ly/3RZOkBr
#ChronicPain
It’s encouraging to see growing momentum for innovative approaches to #LymeDisease prevention. Thanks @BostonGlobe for highlighting advances across the field, including Tonix's investigational monoclonal antibody candidate.
A recent @BostonGlobe article on emerging approaches to #LymeDisease prevention included TNX-4800, our investigational #monoclonalantibody for the prevention of #Lymedisease in the U.S.
Read more: bit.ly/4eWHeFe
[Subscription required]
A “difficult” patient may have spent years fighting to be heard.
Here I discuss how assumptions in #healthcare can impact people living with chronic conditions including #fibromyalgia, and why listening must remain central to diagnosis and #patientcare: bit.ly/4gfzxwc
Patients living with chronic conditions often spend years searching for answers, especially when symptoms cannot be captured through standard tests.
In my latest op-ed, I discuss why moving beyond dismissive responses is critical to helping patients reach diagnosis and treatment sooner.
Read here: bit.ly/4aJHINF
#ChronicIllness #PatientCare #Healthcare
Thank you @NPR @WBUR @OnPointRadio, and Meghna Chakrabarti for the thoughtful discussion on #Lymedisease.
A lot of progress has been made to understand the disease thanks to pioneers including Dr. Alan Steere who joined the conversation, and more innovation is needed. Listen here: bit.ly/3SsA83E
Many chronic illnesses cannot be confirmed through a single scan, blood test, or biomarker.
In my latest op-ed, I discuss how labels like “catastrophizing” and “doctor shopping” can shape care before meaningful evaluation even begins, particularly for patients living with fibromyalgia and other chronic conditions.
Read more here: bit.ly/3RXHOuI
#Fibromyalgia #ChronicPain #Healthcare
It's exciting to see how far #CD40L innovation has progressed since I discovered and characterized CD40L more than 35 years ago at @Columbia (bit.ly/4dZJwmt)
Congratulations to the investigators whose Phase 3 data for dapirolizumab in treating systemic lupus erythematosus (#SLE) was recently published in @TheLancet. (bit.ly/4ulFhHX)
Dapirolizumab is a second-generation anti-CD40L monoclonal antibody developed under a license to my Columbia technology. Seeing this pathway advance from my academic discovery to late-stage clinical development is deeply encouraging for patients. I’m grateful to Dr. Bob Glickman who recruited me to Columbia’s Dept of Medicine in 1988 as an assistant professor and to the @NIH (Physician Scientist, 1985-1990), @theNCI (RO-1 1992-1995) and the @ArthritisFdn (Arthritis Investigator 1992-1994) for their support of my career development and lab.
At @TonixPharma, we're advancing TNX-1500, an investigational third-generation anti-CD40L monoclonal antibody for organ transplant rejection and autoimmune diseases. (bit.ly/3Qn9RTK)
In collaboration with @MassGenBrigham, we plan to enroll an investigator-initiated study in kidney transplant in the 2nd half of 2026 pending clearance of the IND by the FDA.
Learn more: bit.ly/4o7d0DE
Complex conditions like fibromyalgia don't always follow a linear path, and responsive care can't be built on that premise. Today in @RealClearHealth, I outline how policy and research can accelerate a shift in better treating invisible conditions and chronic illnesses:
bit.ly/4dVPNzG
For many patients with chronic illnesses, symptoms build over time. But healthcare systems often respond best to acute crises.
In my new op-ed, I explore why persistent symptoms deserve earlier intervention.
Read here: bit.ly/49wnTZE
#Fibromyalgia #ChronicIllness #LymeDisease #Healthcare
Seth Lederman retweeted
“Your tests are normal.” Words that people might hear, yet their lives are anything but.
In a new op-ed, Tonix CEO @SethLederman discusses why patient experiences aligned with the latest advances in medicine must remain central to care.
Read more: sethmlederman.substack.com/p…
#Fibromyalgia #ChronicPain #Tonix
Patients can experience debilitating symptoms even when scans and lab work appear “normal.”
Too many people living with fibromyalgia and other chronic conditions can spend years without answers because their symptoms are difficult to measure.
I wrote about why it's time for patients to have a seat at the table for the care they receive.
open.substack.com/pub/sethml…
#Fibromyalgia #ChronicPain #Tonix
I’m honored to present at the 2nd Richard Slayman Clinical Xenotransplantation Workshop at @nyulangone this Sunday. It’s an important event to discuss innovations, including @TonixPharma’s 3rd-gen, anti-CD40-ligand antibody for the prevention of kidney transplant rejection.
Seth Lederman retweeted
On Fibromyalgia Awareness Day, watch a new video episode of The Fibro Show featuring Tonix CEO @SethLederman Lederman in conversation with Sharon Waldrop, host and Fibromyalgia Association founder.
Tonix is dedicated to supporting the fibromyalgia community. Alongside The Fibro Show, we are sponosring the Fibromyalgia Association’s 25th Annual Fibromyalgia Awareness Day.
Register: eventbrite.com/e/25th-annual…
#FibromyalgiaAwarenessMonth #FibromyalgiaAwarenessDay #Fibromyalgia
Cases of Lyme disease are rising. Too many patients are dismissed without answers, and there are still no FDA-approved vaccines or prophylactics to protect against it.
Early recognition and awareness matter.
people.com/woman-says-she-wa…
Washington is finally asking the right questions about Lyme disease. With 87M Americans at risk & ER visits surging, we need real solutions, not just 'wear long pants.' The answers are closer than ever. My latest on what's coming next.
bit.ly/4eFJSAF










