@ScottFightsALS

Father, husband, gym owner, ALS warrior and storyteller. Founder of BodySmith and Flex On ALS. 💪

 Kansas City, KS.
flexonals.com/blog
Joined January 2013
  • Tweets1.9K
  • Following465
  • Followers7.4K
194Media
The next chapter, "A Date with Redemption," is up on my #blog! It’s definitely different. Link in bio. #FlexOnALS #endals #alswarrior #alsadvocacy #alsawareness #blogger
8
16
3
238
Today was an up close reminder of how beautiful our hardwoods are. #FlexOnALS
25
3
259
For some reason my last tweet didn’t reach many of you, but I’m happy to announce that my latest chapter "A Date with Redemption" is now available on the blog. I have a link on my profile page. #FlexOnALS
3
14
2
412
Tomorrow’s (Wednesday’s) chapter will be like nothing you’ve ever seen out of my writing. I’m really excited/anxious to hear your thoughts regarding the direction I’m taking for the end of the book. 📖 #FlexOnALS #blog
7
6
194
Wishing everyone had as fun filled of a Halloween as this Mer-family! #halloween #kingtriton #ariel #halloweencostume #flexonALS
15
12
3
950
Today would normally be a #blog post day but I’m punting it to later this week on behalf of #Halloween. I want to enjoy all the amazing costumes coming across my feed plus add a few of my own! 💀👻🎃
6
1
171
I’ve been so busy writing I forgot how beautiful Falls are in Kansas City! #FlexOnALS
19
15
3
1,120
I didn’t feel good about yesterday’s post. I was feeling down and caught off guard by Iris talking about death for the first time. The truth is her therapy has been super helpful in her understanding of what’s happening to me… (1/2)
54
19
1,227
Also, before she said I was only going to get sicker and die, she saw me move my leg and told me I was so strong! I guess what I’m saying is I wanted to come clean and be 100% honest.
21
8
591
#TBT to last Halloween where I was still cool cause I could talk and go really fast. Cut to last night and Iris matter ‘o factly told me I was only going to get sicker and then die. The therapy is working. 😭
103
24
9
1,382
Thank you @Mayuri_Saxena for your thoughtful gift! My #ALS warrior friend got me a kit to make molds of my hands or my and my girls’ hands holding. Which do you recommend?
56
6
444
As a kid, I remember Pres Clinton saying bc of Pedro Zamora, we all knew someone who was living with AIDS.@ScottFightsALS @bsw5020 are that for me with ALS. Michael J does it with Parkinson’s. Showing one’s life makes us all better. It’s important work. Many thanks. @JuddWinick
2
13
123
In case you missed it… #FlexOnALS #blog flexonals.com/blog/8sng62ppo…

Chapter 0 (Prologue): Dear Hope — Flex On ALS

This adventure begins with an important dedication.

flexonals.com
13
15
1
164
Thank you for your response to my Hope letter. I was blown away by the expressions of love and great ideas to use going forward. #FlexOnALS 💪
17
19
1
1,288
This is a very special #love letter to my youngest daughter and will be the prologue to the book! Up now on the #blog, link on my profile page. #FlexOnALS
37
23
3
1,106
This one took everything I had. New #blog chapter tomorrow!
44
17
7
926
1,227 comments and you better believe that through teary eyes I read EVERY. SINGLE. ONE. Wow. Just wow. #FlexOnALS
297
95
16
4,856
.@JamieLW8 & I have decided to accept in-home hospice services. My health took a turn for the worse and we needed to shift goals. This doesn’t mean I plan on dying in the near future. Some stay on #hospice long term. But I’m feeling the full weight of #ALS and could use some ❤️
1,128
260
56
11,375
#AMX0035 becomes the the third @US_FDA approved drug for #ALS! This is a rare victory for this community and deserves celebration. #FlexOnALS 💪
21
91
2
1,562
FYI #ALS families, there’s a relatively new telehealth service for pALS that I really wish was around to help me when I was first diagnosed. It’s called @synapticure and I’m honored to be on their advisory board. I ADVISE you to check them out! #endALS #FlexOnALS
7
57
438
Load more