@Save_Arian

Arian, our only child has Hunter Syndrome (MPS-II),a rare, genetic and terminal disease. Here to raise awareness about MPS and other #RareDiseases #SaveArian

 Kolkata - India
Joined May 2012
  • Tweets8.3K
  • Following148
  • Followers927
252Media
– at Kolkata, India
1
39
fda.gov/news-events/press-an… – at Kolkata, India

FDA Approves First Gene Therapy for Pediatric Patients with Sanfilippo Syndrome Type A

The U.S. Food and Drug Administration today approved Fayuvi (rebisufligene etisparvovec-hopf), the first treatment for pediatric patients with mucopolysaccharidosis type IIIA (MPS IIIA), also known...

fda.gov
1
41
– at Kolkata, India
2
135
Challenges are like trees seen through a running train. As we approach them they grow bigger, once we pass them they become smaller #quote
2
60
International Rare Disease Day - 28th February, 2026 Every year on the last day of February, the world comes together to observe Rare Disease Day, a global movement dedicated to raising awareness of rare diseases and advancing equity in social opportunities, healthcare, diagnosis
1
1
63
Arian,a spirited soul living with Hunter Syndrome(a rare,genetic and terminal disease)plays Dhaak not just with his hands but with his heart. Despite a rare and terminal diagnosis,Arian fills our pandal with the rhythm of courage and joy, His music is a celebration of life itself
1
2
312
Debjani Chowdhury retweeted
Dipanjan Pal
@dipanjan_photos29 Aug 2025
Before Sunrise
4
4
32
490
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife21 Aug 2025
#Delhi #Aug21 Need Any group Blood donors At AIIMS Hospital Call 9414018340 via @auroraborara cc @WeAreNewDelhi #iCanSaveLife #BloodMatters
1
61
7
591
Debjani Chowdhury retweeted
Rahul kumawat@Pedal_India12 Aug 2025
#Hyderabad Need A-ve #Blood At Star hospital, banjara hills Call 9008406962 Via @JahnaviPabba Cc @BloodAid @BloodDonorsIn @iCanSaveLife
1
87
9
853
Debjani Chowdhury retweeted
Rahul kumawat@Pedal_India10 Aug 2025
#Kolkata Need O-ve #Blood At Shishumangal hospital Call 8240788400 @BloodDonorsIn @BloodAid @iCanSaveLife @deepshikhasaraf
1
2
344
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife9 Aug 2025
#Jaipur #Aug9 Need A+ve Blood donors At HCG cancer Hospital Call 9950410325 via @yogeshqmsr cc @We_Are_Jaipur #iCanSaveLife #BloodMatters
1
76
11
592
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife9 Aug 2025
#Mumbai #Aug9 Need O+ve Blood donors At Narayana SRCC Hospital Call +918469559966 via @apricity1stlady cc @InfoMumbai #iCanSaveLife #BloodMatters
1
66
10
579
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife7 Aug 2025
#Jodhpur #Aug7 Need AB+ve Blood donors At Aiims Hospital Call 8003567020 via @purohitvaibhav cc @WeAreJodhpur #iCanSaveLife #BloodMatters
2
68
7
742
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife29 Jul 2025
#Chennai #Jul29 Need A+ve Blood Platelets donor At Apollo Hospital Call 7010641484 via @calicut_sfc cc @svaishu95 #iCanSaveLife #BloodMatters
2
77
15
659
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife27 Jul 2025
#Lucknow #Jul27 Need B+ve Blood donors At KGMC Hospital Call 9455125115 via @luckydubey123 cc @MyLucknow #iCanSaveLife #BloodMatters
1
73
15
560
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife24 Jul 2025
#Hyderabad #Jul24 Need B+ve Blood Platelets donor At Continental Hospital Call 9491819999 via @its_merj cc @WeAreHyderabad #iCanSaveLife #BloodMatters
1
72
15
567
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife18 Jul 2025
#Faridabad #Jul18 Need O+ve/O-ve Blood donors At Asian Hospital Call 8929506011 via @mohitgulia #iCanSaveLife #BloodMatters
1
61
10
457
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife12 Jul 2025
#Secunderabad #Jul12 Need A+ve Blood Platelets donor At Apollo Hospital Call 9739885790 via @amritverma26 cc @JahnaviPabba #iCanSaveLife #BloodMatters
1
90
13
739
Debjani Chowdhury retweeted
iCanSaveLife@iCanSaveLife9 Jul 2025
#Hyderabad #Jul9 Need B+ve Blood donors At Basavatarakam Hospital Call +919494411411 via @heromanoj1 cc @WeAreHyderabad #iCanSaveLife #BloodMatters
1
76
14
846
Debjani Chowdhury retweeted
Rahul kumawat@Pedal_India4 Jul 2025
#Delhi Need AB+ve #Blood At Apollo hospital, Jasola Call 9810768884, 9810552337 @BloodDonorsIn @iCanSaveLife @BloodAid @amritabhinder
1
63
10
712
Load more