@SDMregistries

The home of international registries for rare conditions affecting sex development & maturation including I-DSD, I-CAH and I-TS

 Glasgow
sdmregistries.org
Joined December 2023
  • Tweets14
  • Following55
  • Followers22
3Media
The rationale for shared decision making in DSD; great talk by David Sandberg ama-assn.org/system/files/20…
1
1
122
SDMregistries retweeted
Nils Krone@Endo_Krone26 Jun 2024
What a day! 50 min to go before the start of the I-DSD symposium … counting down …
1
3
208
Excellent research on the genetic basis of early onset primary ovarian insufficiency from @SMCGB #idsd2024
2
9
718
All full now!
2
139
Looking forward to I-DSD 2024!
1
164
MRKH: 'None of us are prepared for this diagnosis' bbc.com/news/articles/cpddnj…

Race Across the World: MRKH - 'No one is prepared for diagnosis'

Race Across the World's Betty opened up about Mayer Rokitansky Küster Hauser, which affects one in 5,000 women.

bbc.com
1
1
52
SDMregistries retweeted
ESPE@EuroSPE21 Mar 2024
We are calling for your cutting-edge #research in the field of #PaediatricEndocrinology! Get noticed by the leading endocrine community at #ESPE2024. Find out more and submit your abstract today: eurospe.org/events/the-62nd-… #PaediatricEndocrinologist
3
4
323
Currently proudly topping the Endocrine Reviews webpage as featured article. Fully open access! @QMULWHRI academic.oup.com/edrv

Endocrine Reviews | Oxford Academic

An official journal of the Endocrine Society. Publishes on clinical and research topics in diabetes, endocrinology, and metabolism, also including thyroid disorders, pediatric endocrinology, growth...

academic.oup.com
3
4
1
21
1,211
The SDMregistries February 2024 Newsletter is out now mailchi.mp/0f98dc3469c0/sdmr… @EuroSPE @ESEndocrinology
1
50
Read our latest newsletter mailchi.mp/0f98dc3469c0/sdmr…
106
Professor Justin Davies presenting the activities of the CQI Committee
1
1
107
It's your last chance to book a place at our forthcoming Meet the Expert Day. More details are available on our website tss.org.uk/index.php/meet-th…
1
2
192
SDMregistries retweeted
GloBE-Reg@GloBE_Reg6 Dec 2023
The Expert Working Group on Adulthood GHD has started working on developing a minimum dataset for monitoring safety and effectiveness of rhGH therapy. To find out more, visit globe-reg.net/adulthood-ghd/

Adulthood GHD

The Adulthood GH Deficiency Expert Working Group (EWG) was formed in 2023. In addition to testing and using the GloBE-Reg platform and stimulating the development of studies, the EWG will also deve…

globe-reg.net
1
1
175
Load more