@RonDHays

Emeritus

 Santa Monica, CA
Joined April 2009
  • Tweets1.4K
  • Following321
  • Followers422
174Media
Pain interference and fatigue, as well as an overall symptom burden, are useful prognostic indicators in patients receiving hemodialysis. doi.org/10.1016/j.xkme.2026.…
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A good read written by a young author. "My name is Eka Sonksen. Raised in the 626, I grew up just far enough away from LA and just close enough to LA. I write to tell stories that have gone unheard. culturaldaily.com/author/eka…
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How to Handle Missing Data August 19, 2026 | 3:10 - 4:10pm chime.ucla.edu/events/how-to…
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The current issue of Quality of Life Research has an egregious example of ignoring overlap between right-hand and left-hand variables.@ISOQOL xitter.cf/RonDHays/status/179046… link.springer.com/article/10…
Ron Hays@RonDHays14 May 2024
Replying to @RonDHays
link.springer.com/content/pd…
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Health and Quality of Life Outcomes continues to ignore the overlap between mental health on both sides of the equation. hqlo.biomedcentral.com/artic…

Health-related quality of life among adults with hypertension with or without anxiety and depress...

Health and Quality of Life Outcomes - Hypertension is a prevalent chronic medical condition that can impact health-related quality of life (HRQoL). While a relationship between mental disorders and...

link.springer.com
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Another example of ignoring the overlap between depression and health-related quality of life. Alwhaibi M. Depression, Anxiety, and Health-Related Quality of Life in Adults with Type 2 Diabetes. J Clin Med. 2024 Oct 10;13(20):6028. doi: 10.3390/jcm13206028
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Evaluation of the comprehensive score for financial toxicity measure in a multicenter cohort of adults with advanced liver disease pubmed.ncbi.nlm.nih.gov/4229…

Evaluation of the comprehensive score for financial toxicity measure in a multicenter cohort of...

Caution may be warranted when applying COST to patients with AdvLD, as suboptimal structural and construct validity compromise score interpretation and clinical utility. Future studies should...

pubmed.ncbi.nlm.nih.gov
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publichealth.realclearjourna…

Estimating the Importance of Change in Patient-Reported Outcome Measures

Patient-reported outcome measures (PROMs), along with observer-reported, clinician-reported, and performance-based measures, are clinical outcome assessments.  PROMs assess functioning and well-being...

publichealth.realclearjournals.org
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Study of 308 peritoneal dialysis patient, found that symptoms (fatigue, sleep disturbance, pain, and anxiety) are associated with SF-36 (includes fatigue, pain and anxiety items). Strange mean/SD SF-36 PCS (59/24) & MCS (63/17) reported. link.springer.com/article/10…

Latent profile analysis identifying symptom clusters of fatigue, sleep disturbance, pain, and...

Health and Quality of Life Outcomes - Peritoneal dialysis patients experience a high burden of co-occurring symptoms that impair health-related quality of life and self-efficacy. This study applied...

link.springer.com
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Using a Quality Improvement Priority Metric to Promote Uniformly High-Quality Care: An Illustrative Example Using Child HCAHPS Survey Data #HCAHPS #CAHPS #patientexperience journals.sagepub.com/doi/10.…

Using a Quality Improvement Priority Metric to Promote Uniformly High-Quality Care: An Illustrative...

Patient experience data are used to set performance targets and monitor effectiveness of quality improvement (QI) activities. However, assessing and determining...

journals.sagepub.com
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#Flytogether Ducks vs Blues. Skye and Mike – at Orange, CA
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Ducks vs Blues – at Orange, CA
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Meaningful within-person change estimates do not identify responders to treatment alz-journals.onlinelibrary.w…

Meaningful within‐person change estimates do not identify responders to treatment

Click on the article title to read more.

alz-journals.onlinelibrary.wiley.com
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Defining Global Standards for Glaucoma Endpoints cc-oi.org/event/ccoi-worksho…

CCOI Workshop: Defining Global Standards for Glaucoma Endpoints

cc-oi.org
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The Patient Experience Divide: How Income Relates to Care Quality in the Primary Care Setting pubmed.ncbi.nlm.nih.gov/4191… #CAHPS #patientexperience

The Patient Experience Divide: How Income Relates to Care Quality in the Primary Care Setting -...

Low-income patients report fewer positive and more negative health care experiences than higher-income patients across multiple aspects of care. These deficits may contribute to their higher morbid...

pubmed.ncbi.nlm.nih.gov
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Provider Perspectives of Patient Experience Measurement and Quality Improvement in Primary Care #CAHPS pubmed.ncbi.nlm.nih.gov/4148…

Provider Perspectives of Patient Experience Measurement and Quality Improvement in Primary Care -...

To improve the patient experience, primary care organizations should foster environments that support QI and invest more in QI that better incorporates patient feedback and experience measures in...

pubmed.ncbi.nlm.nih.gov
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Advance Directive Completion Among Community-Dwelling Adults with Decompensated Cirrhosis pubmed.ncbi.nlm.nih.gov/4145…

Advance Directive Completion Among Community-Dwelling Adults with Decompensated Cirrhosis - PubMed

Advance directive completion is low among adults with decompensated cirrhosis. Tailored programs are needed to improve advance directive completion among younger and Hispanic patients with decompen...

pubmed.ncbi.nlm.nih.gov
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Stakeholder input on the CAHPS ambulatory surveys #CAHPS #surveys #PatientExperience pubmed.ncbi.nlm.nih.gov/4142…

Stakeholder input on the CAHPS ambulatory surveys - PubMed

This study provides valuable insights into stakeholder perspectives on the relevance and potential improvements to CAHPS ambulatory survey content. The findings support revisions to existing items to...

pubmed.ncbi.nlm.nih.gov
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Health-related quality of life in kidney transplant recipients: association with graft function and comparison to patients on dialysis #HRQOL #PROMIS #Transplant pubmed.ncbi.nlm.nih.gov/4143…

Health-related quality of life in kidney transplant recipients: association with graft function and...

PURPOSE: Kidney transplantation (KT) is associated with better clinical and health-related quality of life (HRQOL) outcomes than dialysis. However, some KT recipients (KTRs) live with poor kidney...

pubmed.ncbi.nlm.nih.gov
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Pitfalls of using minimally important or meaningful differences to categorize individual patients #MID #MIC #MCID #MWIC sciencedirect.com/science/ar…
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Reliability and Validity of a Modified Version of the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Clinician and Group Visit Survey 4.0 (beta) for Ambulatory Behavioral Health Care pxjournal.org/journal/vol12/…

Reliability and Validity of a Modified Version of the Consumer Assessment of Healthcare Providers...

Patient experience is a fundamental indicator of healthcare quality. A patient experience survey that assesses telemedicine and in-person ambulatory behavioral health care is needed. This study aims...

pxjournal.org
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Evacuation and Transportation Barriers Among Vulnerable Populations in Natural Hazard-Related Disasters: A Scoping Review mdpi.com/1660-4601/22/11/168…

Evacuation and Transportation Barriers Among Vulnerable Populations in Natural Hazard-Related...

Background and Aim: Natural hazard-related disasters such as wildfires, hurricanes, earthquakes, and floods pose significant risks to older adults, individuals with disabilities, and those with...

mdpi.com
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